Intended for healthcare professionals

Editorials

The first generation of e-patients

BMJ 2004; 328 doi: https://doi.org/10.1136/bmj.328.7449.1148 (Published 13 May 2004) Cite this as: BMJ 2004;328:1148

E-patients - Example of Tarlov Cyst support group

I am one of numerous world-wide sufferers of an unusual,
spinal condition. While some cases may be congenital, many
'acquire' it after trauma, in my case after a high-velocity car smash.

We belong to Support Group YahooGroup 'TarlovTalk' at
www.tarlovcyst.net, trying to resolve a nasty
affliction that doctors world-wide dismiss out-of-hand.

This is an amazing co-operative effort.

The Lancet editorial: ‘Sacral cysts and perineal pain? 9-11-91 page
1180 refers to this still ambiguous and unresolved health problem, that
though not life-threatening, destroys lives.

Competing interests:
None declared

Competing interests: No competing interests

28 May 2004
Adi Bilimoria
Sufferer of Tarlov Cyst
3171 Australia