E-patients - Example of Tarlov Cyst support group
I am one of numerous world-wide sufferers of an unusual,
spinal condition. While some cases may be congenital, many
'acquire' it after trauma, in my case after a high-velocity car smash.
We belong to Support Group YahooGroup 'TarlovTalk' at
www.tarlovcyst.net, trying to resolve a nasty
affliction that doctors world-wide dismiss out-of-hand.
This is an amazing co-operative effort.
The Lancet editorial: ‘Sacral cysts and perineal pain? 9-11-91 page
1180 refers to this still ambiguous and unresolved health problem, that
though not life-threatening, destroys lives.
Competing interests: No competing interests