Table 3

 Outcomes in 56 patients who died. Values are numbers (percentages) unless stated otherwise

OutcomesIntervention groupControl groupP value
Patients29 (19)27 (17)0.75
Median (interquartile range) age (years)85 (84-89)84 (81-87)0.06
Men17 (59)13 (48)0.43
Completed advance care planning25 (86)*0 (0)<0.001
Wishes known and followed25 (86)8 (30)<0.001
Wishes unknown3 (10)17 (63)<0.001
Wishes known but not followed1 (3)2 (7)0.51
Location of death:0.09 (overall)
 Acute hospital but not intensive care unit16 (55)12 (44)0.42
 Intensive care unit0 (0)4 (15)0.03
 Home or non-acute hospital6 (21)8 (30)0.19
 Palliative care7 (24)3 (11)0.20
End of life decision making:
 None—died suddenly6 (21)6 (23)0.02
 Involved in decision making17 (58)10 (37)
 Not involved in decision making6 (21)11 (30)
Impact of events scale:
 Median (interquartile range) score5 (2-5.5)15 (5-21)<0.001
 Score >30†0 (0)4 (15)0.03
Hospital anxiety and depression scale:
 Median (interquartile range) depression0 (0-1.5)5 (0-9)<0.001
  Score >8‡0 (0)8 (30)0.002
 Median (interquartile range) anxiety0 (0-3.5)3 (0-6)0.03
  Score >8‡0 (0)5 (19)0.02
Satisfaction with quality of death
Family member§¶:
 Very satisfied24 (83)13 (48)0.02
 Satisfied2 (7)8 (30)
 Not satisfied3 (10)6 (22)
Family member’s perception of patient’s satisfaction**:
 Very satisfied25 (86)10 (37)<0.001
 Satisfied1 (4)10 (37)
 Not satisfied3 (10)7 (26)

*Discussion, no wishes (n=3); advance care planning discussion card only (n=8); documented advance care plan (n=14).

†High risk of developing post-traumatic stress disorder.

‡Clinically significant depression or anxiety.

§Nominated by patient at enrolment to study.

¶Question posed: How satisfied are you about the way in which x died?

**Question posed: Thinking about it from x’s perspective, how satisfied are you that x died in the way that he/she would have wanted to?