Intended for healthcare professionals

Rapid response to:


ME/CFS: Researchers question credibility of NICE guidance

BMJ 2023; 382 doi: (Published 13 July 2023) Cite this as: BMJ 2023;382:p1621

Rapid Response:

People with ME/CFS welcome the recommendations in the NICE guideline

Dear Editor

The NICE guideline committee (of which I was a member) spent an enormous amount of time over three years reviewing all the evidence on CBT and GET from both clinical trials and from people with ME/CFS.

They concluded that the clinical trial evidence for the use of CBT and GET was of very poor quality and acknowledged that people with ME/CFS have consistently reported that CBT was ineffective and that GET made their condition worse - some ending up in wheelchairs as a result of receiving harmful advice on activity mansagement.

The ME Association is therefore pleased to see that NICE is robustly defending the new recommendations regarding the use of CBT and the removal of GET and the way in which these recommendations were reached.

These recommendations have been widely welcomed by the ME/CFS patient community here and abroad, and by the vast majority of health professionals who are actively involved in managing people with ME/CFS in both primary and secondary care.

Competing interests: No competing interests

13 July 2023
Charles B Shepherd
Medical Adviser - ME Association
7 Apollo Office Court, Radclive Road, Gawcott, Buckingham MK18 4DF