Intended for healthcare professionals

Letters Chronic fatigue syndrome and long covid

Charities, patients, and researchers are working together to find the cause and effective treatments for ME/CFS

BMJ 2021; 374 doi: https://doi.org/10.1136/bmj.n1854 (Published 28 July 2021) Cite this as: BMJ 2021;374:n1854
  1. Charles B Shepherd, honorary medical adviser
  1. ME Association, Gawcott, UK
  1. Charles.Shepherd{at}meassociation.org.uk

As a charity that funds biomedical research into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), we are not aware of any researchers who hold negative views about the patient community.1 Patients, charities, and researchers are all working together on research initiatives such as Decode ME (https://www.decodeme.org.uk), the ME Biobank (https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank), and cardiorespiratory exercise testing.2

People with ME/CFS feel let down by the medical establishment because almost all biomedical research until recently has been funded by the …

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