Intended for healthcare professionals

Letters Chronic fatigue syndrome and long covid

Charities, patients, and researchers are working together to find the cause and effective treatments for ME/CFS

BMJ 2021; 374 doi: (Published 28 July 2021) Cite this as: BMJ 2021;374:n1854
  1. Charles B Shepherd, honorary medical adviser
  1. ME Association, Gawcott, UK
  1. Charles.Shepherd{at}

As a charity that funds biomedical research into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), we are not aware of any researchers who hold negative views about the patient community.1 Patients, charities, and researchers are all working together on research initiatives such as Decode ME (, the ME Biobank (, and cardiorespiratory exercise testing.2

People with ME/CFS feel let down by the medical establishment because almost all biomedical research until recently has been funded by the …

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