Covid-19, equity, and inclusivenessBMJ 2021; 373 doi: https://doi.org/10.1136/bmj.n1631 (Published 29 June 2021) Cite this as: BMJ 2021;373:n1631
- Nicholas G Evans, assistant professor1,
- Zackary D Berger, associate professor2,
- Alexandra L Phelan, assistant professor3,
- Ross D Silverman, professor4
- 1University of Massachusetts Lowell, MA, USA
- 2Johns Hopkins School of Medicine and Johns Hopkins Berman Institute of Bioethics, Baltimore, USA
- 3Georgetown University, Washington, DC, USA
- 4Richard M Fairbanks School of Public Health and Robert H McKinney School of Law, Indiana University, Indianapolis, USA
- Correspondence to: N G Evans
In March 2020, as cases of covid-19 spiked around the world, we set out the requirements for an equitable response. We argued that honest, transparent communication on patients’ terms was vital; that free covid-19 testing and equitable sharing of health resources were essential to public health; that social distancing needed to be coupled with community support; and for robust sick leave policies for employees with covid-19 and paid time off for those affected by shutdowns. We argued congregate settings such as correctional institutions, homeless shelters, and refugee camps should be reconsidered where possible and adequately supported when necessary. Finally, we argued for adequate mental healthcare for essential workers and their families.1
The story of equity in covid-19, however, is a story of failure. Systems guaranteeing access to testing remain absent; in the US, despite major legislation, even patients with health insurance can still incur substantial costs for testing or be unable to physically access testing locations.2 Hoarding of health resources continues, most notably of vaccines by high income nations at the expense of everyone else.3 Sick leave policies remain inadequate while workers have seen an 8.8% global loss in working hours from unemployment, inactivity, and reduced working hours.4
Women, particularly those from marginalised communities, are disproportionally affected by loss of paid work and further burdened by increased unpaid labour, while at the same time making up most of the healthcare workforce.5 Congregate settings, in particular food processing plants, prisons, and detention centres, remain critical sites of transmission, illness, and death.6 Although some attempts have been made to mitigate the pandemic’s toll on mental health, efforts have been inconsistent, under-resourced, and may not target the most vulnerable groups.7 UN Women (the UN body for gender equality and the empowerment of women) has described increased violence against women and girls as a “shadow pandemic” exacerbated by both the effects of, and control measures for, covid-19.
These ongoing inequities are grounded in the historical marginalisation of communities and neglect of community health. In the context of this pandemic, however, they risk reinforcing disparities between those who survive this pandemic with affluence intact, and those who—even if they do not become infected—may be permanently disadvantaged and harmed by the lack of action to protect vulnerable people.
The arrival of vaccines will not relieve these inequities and may even exacerbate them. When, where, and how someone gets vaccinated are mediated by structural and systemic factors that created inequities in previous phases of the pandemic. People with limited or no internet connectivity are unable to access vaccine appointment websites, while those employed in (often low paid) service work may be unable to take time off to get vaccinated.
Increasing state and business interest in vaccine and immunity passports suggests we may be heading towards a time when ability to work, access goods and services, or even move within society will be contingent on vaccination or immunity. Those least able to access vaccines will once again be harmed most by the inequities of the pandemic response.8 The situation may become even more dire as high income countries continue their vaccine nationalism, enabling their economies to rebound while denying low and middle income countries vaccines for essential workers and vulnerable groups.
It is not too late to start helping struggling individuals, communities, and countries through this pandemic. Given the real possibility of further covid-19 waves, even in countries where vaccines are lowering transmission,9 we need to ensure case counts stay low by giving people the resources they need to maintain social distance and eliminating contexts that increase transmission. As US states set up vaccine lotteries and scholarships10 instead of investing in equitable access and pandemic resilience, we must continue to push for these structural supports.
Yet supportive measures are only part of the solution. Pandemic resilience requires repairing or restoring individuals and communities who have experienced severe loss or deprivation from mismanaged or ill applied control measures; have lost access to their basic needs through government negligence; or who contracted covid-19 because a lack of equitable control measures forced them into high risk situations. This also should include the substantial population with long term symptoms from covid.
Calls have already been made for covid-19 reparations,11 and for a covid-19 truth and reconciliation process.12 Without reparation, we risk creating a covid-19 underclass of people who will never recover from the pandemic. Without truth and reconciliation, we risk failing to account for the full scope of the harm of this pandemic, leaving communities even less prepared for the next one.
Without change, preventable domestic and global inequities will persist, perhaps for many generations, to the detriment of communities, national economies, and even global stability. Given the potential for this crisis to endure for years, we owe it to each other to ensure that all control measures become equitable and inclusive, and to find justice for the victims we have already created.
Competing interests: We have read and understood BMJ policy on declaration of interests and have no interests to declare.
Provenance and peer review: Commissioned; not externally peer reviewed.
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