What do people hospitalised with covid-19 think about the care they received?BMJ 2020; 370 doi: https://doi.org/10.1136/bmj.m3496 (Published 08 September 2020) Cite this as: BMJ 2020;370:m3496
- Meng-San Wu, specialist trainee1 2,
- Fatima Hayat, core medical trainee2,
- Libuse Ratcliffe, consultant physician in infectious diseases and general internal medicine2,
- Mike B J Beadsworth, honorary senior clinical lecturer and consultant physician in infectious diseases and general internal medicine2 3,
- Sylviane Defres, senior clinical lecturer and consultant physician in infectious diseases and general internal medicine2 3 4,
- Tom Wingfield, senior clinical lecturer and honorary consultant physician in infectious diseases and general internal medicine2 3 5
- 1Imperial College Healthcare NHS Trust, London, UK
- 2Tropical and Infectious Diseases Unit, Liverpool University Hospitals NHS Trust, Liverpool, UK
- 3Liverpool School of Tropical Medicine, Liverpool, UK
- 4University of Liverpool, Liverpool, UK
- 5Karolinksa Institutet, Stockholm, Sweden
Since the start of the covid-19 pandemic, an inordinate mass of variable quality evidence concerning clinical presentation, diagnostic assays, novel treatments, and vaccines has accumulated. As Michie and colleagues note,1 beyond modelling, practical evidence of social, environmental, behavioural, and systems interventions against covid-19 has received little attention. This is despite such complex interventions forming a cornerstone of the public health response of many countries around the world.
Understanding the health perceptions and beliefs of people affected and ensuring their involvement in the design, implementation, and evaluation of complex covid-19 interventions is vital.234 Sadly, as reflects wider practice,4 this has been overlooked by the scientific community during the pandemic. This may, in part, explain why some well meaning policy guidelines are not followed.
Hospitals are no different. Amid the development of excellent diagnostic, treatment, and infection prevention algorithms and guidance,5 there has been scant focus on the perspectives of people with covid-19 during their patient journey.
To tackle this shortcoming, we asked people with covid-19 admitted to our specialist tropical and infectious disease unit in Liverpool about the care they received. The feedback covered areas including personal care, fears and expectations, involvement in treatment decisions and discharge planning, information and communication, nutrition, and sleep quality.
We are reviewing this feedback and will compare it with responses received before covid-19. We hope this will help us to establish what we did well and, most importantly, shape what we can do better. We are grateful to the patients who contributed and hope their perspectives will help to improve patient care.
We must all strive to ensure that people, especially from underserved and high risk groups, remain at the heart of our social, economic, clinical, and public health response to covid-19 in the UK and beyond.
Meng-San Wu and Fatima Hayat are joint first authors.
Competing interests: None declared.
Full response at: www.bmj.com/content/370/bmj.m2982/rr-3.