Eroding trust in the entrusted patientsBMJ 2019; 364 doi: https://doi.org/10.1136/bmj.l734 (Published 18 February 2019) Cite this as: BMJ 2019;364:l734
- Francis P Crawley, executive director
- Good Clinical Practice Alliance—Europe and Strategic Initiative for Developing Capacity in Ethical Review, BE-1050 Brussels, Belgium
Repeatedly we are told that involving patients in all aspects of decision making related to their healthcare is essential: from research on new medicines and devices in the laboratory, to clinical trials, the registration of products, pricing and reimbursement, and bedside care. Nowhere do we find how to pay for this patient expertise.
Blaming the drug and medical device industries for providing resources to patient organisations to provide the competent advice that …