Intended for healthcare professionals

Letters Patients’ roles and rights in research

Patients’ roles in research: where is Africa?

BMJ 2018; 363 doi: https://doi.org/10.1136/bmj.k4427 (Published 25 October 2018) Cite this as: BMJ 2018;363:k4427
  1. James Ditai, PhD fellow1 2,
  2. Andrew Weeks, professor of international maternal health2
  1. 1Sanyu Africa Research Institute, Hosted at Mbale Regional Referral Hospital, Pallisa Road, PO Box 2190, Mbale, Uganda
  2. 2University of Liverpool, Department of Women’s and Children’s Health, Liverpool Women’s Hospital, Liverpool L8 7SS, UK
  1. j.ditai{at}safri.ac.ug

Patients’ roles and rights in research are vital.1 In Africa, the challenges are greater than in other parts of the world owing to the large educational and societal gap between researchers and patients. Researchers may study matters affecting patients categorised as “illiterate” or “literate but not emancipated” and whose life experience is atypical. This can lead to well meaning but …

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