Patients and stakeholders take part in research
In the Ambito Territoriale sociale 24 of Marche Region, Italy, there has been a survey of 45 psychotic patients and their families, to know opinions on both sides, and to establish the elements for a better clinical relationship with patients. Patients responded to SF-36 and families to QOL-Proxy for information about physical and mental health. A person from the Mental Health department used HoNOS scales in further evaluations.
Patients were requested to have an active part in research about physical and mental health, their answers showing concordance for these two dimensions. When comparing HoNOS items for alcohol and drugs misuse, illegal behaviours and self harm with hospitalization rate, we found that increased discomfort index corresponded to decreased mental health score in the SF-36 inventory. SF-36 and QOL-Proxy were according to the evaluation of the quality of life.
A small example of involving patients and caregivers in research.
Competing interests: No competing interests