Intended for healthcare professionals


Patients’ roles and rights in research

BMJ 2018; 362 doi: (Published 25 July 2018) Cite this as: BMJ 2018;362:k3193

Patients and stakeholders take part in research

In the Ambito Territoriale sociale 24 of Marche Region, Italy, there has been a survey of 45 psychotic patients and their families, to know opinions on both sides, and to establish the elements for a better clinical relationship with patients. Patients responded to SF-36 and families to QOL-Proxy for information about physical and mental health. A person from the Mental Health department used HoNOS scales in further evaluations.

Patients were requested to have an active part in research about physical and mental health, their answers showing concordance for these two dimensions. When comparing HoNOS items for alcohol and drugs misuse, illegal behaviours and self harm with hospitalization rate, we found that increased discomfort index corresponded to decreased mental health score in the SF-36 inventory. SF-36 and QOL-Proxy were according to the evaluation of the quality of life.

A small example of involving patients and caregivers in research.

Competing interests: No competing interests

07 November 2018
damiani tiberio
Asur Marche, Mental Health Department, Area Vasta 5, Ascoli Piceno
via degli Iris, Ascoli PIceno