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This article nails the challenges of arriving home with a very sick patient, especially where DX is complex, symptoms are alarming, and where survival is uncertain, In many cases, primary care is unable to deal and the consultant shuffle begins. It is helpful to have continuity of care including providers that communicate as we are whole people and not a body parts catalogue of doubtful quality sent for appraisal.
I appreciate the impassioned plea to do away with fragmented care and to have that care be continuous with intelligent handovers from critical care to home alone. The things that may be normal and make providers laugh or doubt the family sanity are terrifying in this setting and the things that seem ok may cost a life such as lungs that have filled with fluid and blood oxygen that hits critical levels
On one occasion we had a wonderful follow-up call, it was an anchor in the rough sea of a loved one's decline. Thank you to all medical providers who listen and consider life beyond the appointment, you are more precious than gold!