February 2014 our then 5 year old daughter was diagnosed with T1 diabetes. The only advice given to us was carry on as before - kids need to be kids.
On a fixed insulin dose and a 'normal' diet saw BG levels in the 20s, there was no real direction given to us during the first 3-4 months after diagnosis. First HBa1c after diagnosis was 88, exactly the same as at diagnosis, our Consultant appeared less than pleased.
We began to see the correlation between what she ate (high carb school lunches) and the high BG levels. We began to reduce carbohydrates and she went to school with sugar free jelly for pudding. It was not long after that we were introduced to a Facebook group called Typeonegrit - T1's and parents of T1's who follow Dr Bernstein's approach to managing diabetes.
Carbohydrate intake was reduced to that recommended and we watched everything fall into place. Our paediatric diabetes team do not agree with this approach, insisting carbohydrates are increased to at least 120g. We have been told we are comprising our daughter's health and wellbeing.
Just over a year on Hba1c was 42, still room for improvement as we are stumbling over basal rates. This is entirely down to restriction of carbohydrates and not following NHS dietary advice.
Points to note - our daughter is achieving above and beyond her peer group academically and is extremely active.
Rapid Response:
Re: A patient request for some “deprescribing”
Dear Sirs,
February 2014 our then 5 year old daughter was diagnosed with T1 diabetes. The only advice given to us was carry on as before - kids need to be kids.
On a fixed insulin dose and a 'normal' diet saw BG levels in the 20s, there was no real direction given to us during the first 3-4 months after diagnosis. First HBa1c after diagnosis was 88, exactly the same as at diagnosis, our Consultant appeared less than pleased.
We began to see the correlation between what she ate (high carb school lunches) and the high BG levels. We began to reduce carbohydrates and she went to school with sugar free jelly for pudding. It was not long after that we were introduced to a Facebook group called Typeonegrit - T1's and parents of T1's who follow Dr Bernstein's approach to managing diabetes.
Carbohydrate intake was reduced to that recommended and we watched everything fall into place. Our paediatric diabetes team do not agree with this approach, insisting carbohydrates are increased to at least 120g. We have been told we are comprising our daughter's health and wellbeing.
Just over a year on Hba1c was 42, still room for improvement as we are stumbling over basal rates. This is entirely down to restriction of carbohydrates and not following NHS dietary advice.
Points to note - our daughter is achieving above and beyond her peer group academically and is extremely active.
Competing interests: No competing interests