Re: Avoiding premature death in epilepsy
The letter, and associated call to action, by Ridsdale is timely and demands a response from professional bodies. SUDEP has a devastating impact. It appears now that an evidence base is emerging to reduce risk. Importantly, but not solely, based on improved seizure control. Achieved through treatment access, adherence and lifestyle change.
To add to this call it should be noted that many individuals at risk of SUDEP are adults with an intellectual disability who face their own challenges in our health system.
This call should be strongly supported and GPs should be enabled by other professionals to ensure that those most vulnerable in our health system are also included in this prevention process.
Competing interests: I am a medical advisor to SUDEP ACTION. I have met many people who have lost their family members to SUDEP