Nuffield Council opens consultation on use of personal biological and health dataBMJ 2013; 347 doi: https://doi.org/10.1136/bmj.f6315 (Published 18 October 2013) Cite this as: BMJ 2013;347:f6315
- Matthew Limb
A major initiative has begun to find out what UK citizens think about their biological and health data being used by research, government, and commercial interests, potentially on a global scale.
The Nuffield Council of Bioethics said that its consultation, launched on 17 October,1 would give people a say on the many implications of widening access to “unprecedented” quantities of data.
It said that people’s views would inform a policy response to technological and scientific advances that have given many parties new opportunities to collect, use, analyse, and link up people’s personal health information.
The council has established a working group to examine ethical questions raised by …