Details of federally funded studies should be available on web, US commission says

BMJ 2011; 343 doi: (Published 20 December 2011) Cite this as: BMJ 2011;343:d8239
  1. Janice Hopkins Tanne
  1. 1New York

People who take part in federally funded research studies need better protection, and trials should be more closely tracked, says a report from a US commission.

The Presidential Commission for the Study of Bioethical Issues said that the public should have website access to information about all research conducted by federal agencies that involves human participants. The federal government should also consider setting up a national system of compensation for people injured in trials.

Amy Gutmann, president of the University of Pennsylvania and chairwoman of the commission, acknowledged that “current rules and regulations provide substantial and adequate safeguards to mitigate risk and to protect human subjects against unethical treatment.” However, …

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