Muscular dystrophy patients could live extra 15 years, if care standards implementedBMJ 2010; 340 doi: https://doi.org/10.1136/bmj.c3055 (Published 08 June 2010) Cite this as: BMJ 2010;340:c3055
- Neil Chanchlani
People with Duchenne muscular dystrophy could live 10 to 15 years longer than at present if recommended care standards published earlier this year are put into practice, say experts.
They want the National Institute for Health and Clinical Excellence (NICE) to include these standards in new guidance, following on from a cross parliamentary report issued last year, which found that patients with neuromuscular disease were getting a raw deal (BMJ 2009;339:b3436).
Originally published in Lancet Neurology (2010;9:77-93 and 237), the care standards were developed by 84 international advisers after an extensive review of best …