Care for people with neuromuscular conditions is unacceptable, say MPs and peers

The NHS is failing people with muscular dystrophy and related conditions by providing unacceptably low standards of care, concludes a report from a cross party group of MPs and peers.

The all parliamentary group for muscular dystrophy’s national inquiry into access to specialist care found that gaps in access to specialist, multidisciplinary care are leading to huge disparities in life expectancy across the country. The result is that boys with Duchenne muscular dystrophy are living up to 30 years of age in the north east of England but to just 17 or 18 years in other parts of the UK.

In his evidence to …