Research bureaucracy in the United Kingdom: Practical example illustrates problems of ethical review of genetics

BMJ 2004; 329 doi: https://doi.org/10.1136/bmj.329.7466.624 (Published 09 September 2004) Cite this as: BMJ 2004;329:624
  1. Patrick Morrison, consultant in clinical genetics (Patrick.Morrison@bch.n-i.nhs.uk)
  1. Department of Medical Genetics, Belfast City Hospital Trust, Belfast BT9 7AB

    EDITOR—Increasingly, genetic testing for newly discovered or recognised genes is only available in certain laboratories in the world. From 2000-3 I have on average each year submitted four full submissions and four “annex D” forms (these allow me to participate in someone else's medical research ethics committee proposal locally). Each full submission took four hours, and each annex D two hours. Most proposals allowed DNA analysis in a research study for clinical benefit as testing was not available in the …

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