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Information In Practice INFOPOINTS

International online discussion lists on chronic myelogenous leukaemia

BMJ 2004; 328 doi: https://doi.org/10.1136/bmj.328.7449.1177 (Published 13 May 2004) Cite this as: BMJ 2004;328:1177
  1. Joana D Ramos (jdramos3@comcast.net), consultant1,
  2. Anjana Rai-Chaudhuri, founder2,
  3. Robert W Neill, founder3
  1. 1Cancer Resources and Advocacy, 7303 23rd Avenue NE, Seattle 98115 WA, USA
  2. 2Asian Chronic Myelogenous Leukaemia Support Group
  3. 3Chronic Myelogenous Leukaemia International Support Group
  1. Correspondence to: J D Ramos

    The rise of the internet as a communication tool has resulted in the creation of ehealth interfaces as a service for those with illness. We describe how two online discussion lists for patients with chronic myelogenous leukaemia affect the health care of patients both individually and worldwide.

    The Chronic Myelogenous Leukaemia International Support Group was formed in 1998 by Robert Neill after his mother was diagnosed as having the condition. The list has 1500 subscribers and averages 28 new postings a day. A major feature of list discussions is the sharing of information and experiences of patients undergoing treatment for disease (figure).

    Random sampling of topics covered over five years by Chronic Myelogenous Leukaemia International Support Group

    In 1999, imatinib (Novartis), a drug in the …

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