Community participation is essential in clinical trialsBMJ 2000; 321 doi: https://doi.org/10.1136/bmj.321.7264.833 (Published 30 September 2000) Cite this as: BMJ 2000;321:833
- Caroline Wills, health consumer advocate,
- Villas Tyeku, health consumer advocate
- POLICY Project, PO BOX 3580, Cape Town 8000, South Africa
EDITOR—Health research should be treated as a public good, but currently the positive impact of clinical trials in developing countries is limited. The research agenda is usually set without consulting the communities concerned, and disadvantaged people may not have fair access to treatment in trials.
Trials of more relevance to the community may be undertaken in a way that maximises adherence to trial protocols by taking into account the cultural, language, literacy, and socioeconomic barriers that have an impact on people's behaviour and ability to …