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Spanish patients with rare diseases demand a better deal
BMJ 1999; 318 doi: https://doi.org/10.1136/bmj.318.7197.1510d (Published 05 June 1999) Cite this as: BMJ 1999;318:1510- Xavier Bosch
- Barcelona
The Spanish Federation for the Care of Rare Diseases has been set up by people with uncommon diseases to unite efforts, ensure that better care is provided to people with these diseases, and to gain funding for research into new drugs.
The members are trying to raise the awareness of rare disorders among …
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