Alex: a tributeBMJ 1996; 313 doi: https://doi.org/10.1136/bmj.313.7064.1076 (Published 26 October 1996) Cite this as: BMJ 1996;313:1076
- Michael Steeper,
- Carolyn Steeper
Alex Steeper died in January, a few weeks short of his 5th birthday. He suffered from Angelman syndrome, a disorder causing severe learning difficulties and a susceptibility to seizures. Alex's death resulted from convulsive status epilepticus, a rare complication among children with the condition. The passage below is an abridged form of Alex's funeral tribute, written by his parents.
Here are some of our fondest thoughts about Alex. They're a bit unstructured and haphazard, just like he was. They seem to us to be both simple and profound, just like he did. Most of all, they're happy thoughts, because Alex was happiness in human form.
We haven't come here today to grieve for Alex. Nor should you have done, because none of us has really lost him. He's part of everyone he ever …