Intended for healthcare professionals

Rapid response to:

Education And Debate

For Debate: Continuing with pregnancy after a diagnosis of lethal abnormality: experience of five couples and recommendations for management

BMJ 1996; 313 doi: https://doi.org/10.1136/bmj.313.7055.478 (Published 24 August 1996) Cite this as: BMJ 1996;313:478

Rapid Response:

Children Living with Trisomy 13- Photos

There is a wonderful support site for Trisomy 13
families.
Living with Trisomy 13 - Patau Syndrome
"Growing in Love"

http://www.livingwithtrisomy13.org

On this site we celebrate and embrace each precious
moment. (and sometimes it is just that) --see our
treasured memories page...Gemma- lived just an hour.
But they have hugs and photos to last a lifetime.

This site offers support for families caring for their living
trisomy 13 children. (37 families share their living
children at present), Treasured Memories page,
Support for Prenatal Diagnosis, and Grief Support
pages.

This site offers HOPE for this "inappropriate to treat"
diagnosis.
Hope you enjoy visiting the site.

Blessings,
ThereseAnn Seigle
Mom to Natalia - Full Trisomy 13 , 5 1/2 yrs.
Humming songs, walking with help and a happy child.
Approx. 1 1/2 yrs cognitive.

Competing interests:
Not sure if this is a
competing interest?
Living with Trisomy 13 -
Patau Syndrome

http://www.livingwithtris
omy13.org

Competing interests: No competing interests

11 December 2005
ThereseAnn Siegle
Site Developer: www.Livingwithtrisomy13.org
92649