A nice try at yet another psychobabble theory for the causation and
continuation of M.E. What a pity it doesn't fit my personal experience one
little bit! I was actually very active during my childhood even though I
often felt unwell or very tired following a mystery virus illness at the
age of 13. Contrary to your expectations I never went to visit my GP once
about it.
I just got on with my life just thinking that maybe all people felt
like this and did not dwell on it at all. I was a very happy, active, out-
going, young person until eventually I went down with a glandular fever
type virus at the age of 18(shown up in two blood tests) and my "real" ME
began.
Now my feeling is that ever this was a reactivation of my original
illness at age 13 OR it was another virus on top of the one that still
lingered within my system and somehow they combined, or whatever, to casue
my "real" ME to start. That was over twenty years ago and I'm no better.
Even now I didn't give in to the ME and went to Poly and did some
work. I shouldn't have even though I enjoyed my time because it caused my
health to deteriorate further and I have never recovered. These are not
the actions of the sort of person Dr. White would have you all believe us
to be is it? Frankly it is time for all this psychobabble nonsense to stop
and for some usefull physical research to be done or else ME's puzzle will
NEVER be worked out.
One last thing, can the psyches such as Dr.White please stop
repeating the false information that graded exercise and CBT help people
with ME to feel better. It is not true and is based on a handful of small
research trials done by parties with vested interests in the outcomes and
using unsound methods such as not counting the many people who dropped out
due to being unable to continue with the treatment due to it making them
physically too unwell and excacerbating their ME symptoms. One study done
amongst people with ME showed that a large majority had been made worse by
graded activity and CBT, and please don't beieve the old chestnut that the
psyches come out with about the programmes having to be carried out by
accomplished practitoners at these therapies. It doesn't wash.
This latest hogwash is one pathetic desperate theory too far. I
expect you've got some more though when this one is also discredited.
Rapid Response:
Wrong...AGAIN!!!!!!!!!
A nice try at yet another psychobabble theory for the causation and
continuation of M.E. What a pity it doesn't fit my personal experience one
little bit! I was actually very active during my childhood even though I
often felt unwell or very tired following a mystery virus illness at the
age of 13. Contrary to your expectations I never went to visit my GP once
about it.
I just got on with my life just thinking that maybe all people felt
like this and did not dwell on it at all. I was a very happy, active, out-
going, young person until eventually I went down with a glandular fever
type virus at the age of 18(shown up in two blood tests) and my "real" ME
began.
Now my feeling is that ever this was a reactivation of my original
illness at age 13 OR it was another virus on top of the one that still
lingered within my system and somehow they combined, or whatever, to casue
my "real" ME to start. That was over twenty years ago and I'm no better.
Even now I didn't give in to the ME and went to Poly and did some
work. I shouldn't have even though I enjoyed my time because it caused my
health to deteriorate further and I have never recovered. These are not
the actions of the sort of person Dr. White would have you all believe us
to be is it? Frankly it is time for all this psychobabble nonsense to stop
and for some usefull physical research to be done or else ME's puzzle will
NEVER be worked out.
One last thing, can the psyches such as Dr.White please stop
repeating the false information that graded exercise and CBT help people
with ME to feel better. It is not true and is based on a handful of small
research trials done by parties with vested interests in the outcomes and
using unsound methods such as not counting the many people who dropped out
due to being unable to continue with the treatment due to it making them
physically too unwell and excacerbating their ME symptoms. One study done
amongst people with ME showed that a large majority had been made worse by
graded activity and CBT, and please don't beieve the old chestnut that the
psyches come out with about the programmes having to be carried out by
accomplished practitoners at these therapies. It doesn't wash.
This latest hogwash is one pathetic desperate theory too far. I
expect you've got some more though when this one is also discredited.
Competing interests:
None declared
Competing interests: No competing interests