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Transfer of high cost drugs to NICE risks fragmentation of care of rare diseases
Hendriksz and On behalf of D A Hughes, A B Mehta, J E Wraith, S E Jones, U Ramaswami, P Deegan, R Lachmann, E Murphy, T Hiwot, S V Vijay, F Stewart, M Cleary; Society for Mucupolysaccharide Diseases, Association for Glycogen Storage Disease (UK), Gauchers Association, BMJ 2012 345 (aug24_1), p. e5727


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