Re: E-patients hold key to the future of healthcare
Thank you for writing this article. I have uveal melanoma which is a rare disease. I was told very little when I was first diagnosed so naturally being a curious person I went to the internet to find out more.
I want to be in control of my disease and have choices for treatment but often find I am educating others. I want to be seen as part of the team not the person at the end of all the debate and discussion , this is my life not yours.
Of course not everything on the Internet is accurate/ true but a lot of support and knowledge can be gained from arming yourself with information. I am still learning about this disease but so are my doctors, please let us go forward together without suspicion, negativity, fear.
Rapid Response:
Re: E-patients hold key to the future of healthcare
Thank you for writing this article. I have uveal melanoma which is a rare disease. I was told very little when I was first diagnosed so naturally being a curious person I went to the internet to find out more.
I want to be in control of my disease and have choices for treatment but often find I am educating others. I want to be seen as part of the team not the person at the end of all the debate and discussion , this is my life not yours.
Of course not everything on the Internet is accurate/ true but a lot of support and knowledge can be gained from arming yourself with information. I am still learning about this disease but so are my doctors, please let us go forward together without suspicion, negativity, fear.
Competing interests: No competing interests