Letters Social networking for patients

Addison’s forum helps to support and engage patients

BMJ 2016; 354 doi: https://doi.org/10.1136/bmj.i4998 (Published 20 September 2016) Cite this as: BMJ 2016;354:i4998
  1. Katherine G White, chair and clinical advisory panel coordinator1,
  2. Nick Willson, ADSHG webmaster1,
  3. Pippa Sharman, ADSHG Twitter coordinator1,
  4. Vick Smith, ADSHG Facebook coordinator1
  1. 1Addison’s Disease Self-Help Group, PO Box 1083, Guildford GU1 9HX, UK
  1. kgwhite{at}addisons.org.uk

As Armstrong observes, social media can allow people with rare conditions to connect and share experiences, especially when unstable health makes travel difficult.1

The combined visitor peak to the Addison’s Disease Self-Help Group (ADSHG) website and forum in one day was 443 (www.addisons.org.uk); by contrast, our largest in-person meeting numbered 180.

We established a members-only online discussion forum in 2008. This now …

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