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Judge orders that teenager with narcolepsy be allowed to try sodium oxybate

BMJ 2016; 353 doi: https://doi.org/10.1136/bmj.i3413 (Published 17 June 2016) Cite this as: BMJ 2016;353:i3413
  1. Clare Dyer
  1. The BMJ

A High Court judge has ordered a three month trial of sodium oxybate for a 17 year old girl with narcolepsy and cataplexy, after ruling that NHS England had incorrectly applied its policy on exceptional drug funding when it turned her down.

“S,” whose identity is protected by an anonymity order, and her family had been trying for two years to obtain the drug after the drugs normally used in the NHS for narcolepsy failed to control the condition, which was severely affecting her life.

Mr Justice Collins delivered his judgment on 15 June, but at the end of the hearing on 4 May he ordered the three month trial of the drug, which costs £13 000 (€16 000; $18 000) …

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