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Patients’ views can improve clinical trials for participants

BMJ 2016; 353 doi: https://doi.org/10.1136/bmj.i1922 (Published 07 April 2016) Cite this as: BMJ 2016;353:i1922
  1. Cynthia Chauhan,
  2. patient
  1. Mayo Clinic, Rochester, MN, USA
  1. cynthiachauhan{at}aol.com

Participation in clinical trials is more likely, and the evidence gleaned more useful, when researchers take patients’ views into account, writes the patient Cynthia Chauhan

I’m a patient with multiple comorbidities including history of two cancers. I participate in clinical studies, volunteer as a research advocate, and provide support to other cancer patients, in gratitude for the care I’ve received and to help advance the science to change the future standard of care for other patients. Advocates also support trial participants and family members by writing summaries of the trial for them and by answering their questions.

Make participation easier

Including patients’ voices from inception through to the completion of trials, as well as focusing on the emotional, social, and financial aspects of trial participation for patients, can make participation easier for more of us.

Patients and their advocates can help clinicians and researchers to consider the implications …

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