True patient participation is difficult and takes dialogueBMJ 2016; 352 doi: https://doi.org/10.1136/bmj.i1506 (Published 17 March 2016) Cite this as: BMJ 2016;352:i1506
- J Ditters,
- healthcare policy, innovation and patients
- Vondellaan 60, 6824NG Arnhem, Netherlands
I felt tense driving to the conference. My neurologist and I had been asked to speak about the potential benefits of technology for neurology patients. My tenseness puzzled me: this should have been a routine task for someone who works as an innovation manager in a health centre, empowering patients and their families with social and technological advances.
I fumbled at the parking meter, and in the cloakroom I dropped my umbrella for the third time that day. I have muscular dystrophy with myotonia. I often have cold, stiff hands, but today this upset me. I felt as if all of the doctors there would identify me as a patient.
Treated as a partner
As an optimist, I’ve always let myself be guided by possibilities rather than …