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Slow and costly access to anonymised patient data impedes academic research

BMJ 2015; 351 doi: https://doi.org/10.1136/bmj.h5087 (Published 25 September 2015) Cite this as: BMJ 2015;351:h5087
  1. Jonathan Filippon, PhD research fellow, public health, Queen Mary University of London, London E1 2AB
  1. jonathanfilippon@gmail.com

Getting data from the Health and Social Care Information Centre in England is time consuming and expensive—and Jonathan Filippon is still waiting

I am in my third year of PhD studies at the Centre for Primary Care and Public Health at the medical school of Queen Mary University of London, funded by the Brazilian National Council for Scientific and Technological Development.

With the help of my supervisor I designed a cross country study to analyse access to, and equity in, healthcare in the public sector, using elective hip replacements as a proxy measure of equity. My objective was to compare treatment rates in Brazil with those in England and Scotland, two nations with long established public healthcare systems. Despite the large economic and social differences between Latin America and the United Kingdom my goal was to improve the Brazilian public health system, with a particular focus on routine data collection systems and methods of disseminating information to inform policy …

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