Letters Researchers’ access to medical records

Close the loop to show patients the value of taking part in research

BMJ 2015; 351 doi: https://doi.org/10.1136/bmj.h4313 (Published 11 August 2015) Cite this as: BMJ 2015;351:h4313
  1. Paul Wicks, vice president of innovation1
  1. 1PatientsLikeMe, Cambridge, MA 02141, USA
  1. pwicks{at}patientslikeme.com

Darzi describes challenges to overcome in persuading sceptical members of the public to share their medical records for research.1 To inspire confidence we must close the value loop in patients’ minds between what their data mean, what data can do, and what has been done with their data. One example of a virtuous altruism loop occurs …

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