Frequent attenders are getting poor care
BMJ 2014; 348 doi: https://doi.org/10.1136/bmj.g208 (Published 13 January 2014) Cite this as: BMJ 2014;348:g208All rapid responses
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Des Spence is in his best exasperating form in his article on frequent attenders. He puts his finger exactly on an area of wasted doctor and patient time, which is hugely expensive, and typified by inappropriate management which is at worst harmful, and always reinforcing of the behaviour. But the solution in his words is "better medicine"!
This is an iatrogenic problem, and the solution is not to do it better, but not do it at all. Charging for appointments is the easiest first step.
Competing interests: No competing interests
Des Spence gets it right again. This is a problem of elephantine proportions for our entire health economy, made steadily worse by an increasing predilection amongst our politicians and the public for rapid access to any GP, investigation or treatment facility. The inexorable trend of super-specialisation within secondary care adds to the general mix. Where we don't quite agree is over research. Here in the UK, we have already carried out some of the most important research on the subject in the world, with names such as Dowrick, Creed, Guthrie, Salmon, Stone, Morriss, Wessely, to name but a few, covering as they do an array of medical specialties.
No, the lack is not in primary research, it is in the application of that research into daily practice. The answer lies not in simply throwing IAPT at it, but in understanding our patients' ideas, concerns, fears and health beliefs, enabling them to trust us, making sure we really listen (and check that they think so too). We must also enable a new shared understanding about the problem to develop between primary care generalists and secondary care specialists, utilising recognised and evidence based therapeutic approaches when patients are ready, and expert advice & input from psychiatric colleagues in liaison and psychotherapy. Our experience of putting together a pilot of this kind proves that it can work. The question is, is the system now ready to allow itself to deal with this elephant in the room?
Competing interests: co-author on Guidance for Health Professsionals on the Medically Unexplained Symptoms http://www.rcgp.org.uk/clinical-and-research/clinical-resources/~/media/Files/CIRC/Mental-health-forum/Mental-Health-Page-September-2013/PCMHF-MUS-factsheet-Jan-2011.ashx
A nominal charge of £5.00 per visit will significantly reduce the numbers of worried well frequent attenders to GP Surgeries and A&E.
Waivers will apply for certain medical conditions - eg palliative care.
NHS dental and car park charges are potentially similar schemes.
A possible delayed reimbursment will allay concerns of NHS pseudo privatisation.
There will be cost implications but these will be offset by avoidance of recent events at Belfast A&E departments.
Competing interests: No competing interests
Dear Editors
Dr Spence yet again started another timely discussion of a highly relevant topic: dealing patients who are frequent attenders of healthcare.
The "heartsinks" attending emergency department and general practices tend to tie up significant NHS resources and yet does not appear help reduce their need to seek medical attention. Dr Spence did not specifically attempt to dissect the types of patients or situations that resulted in the phenomenon of frequent attenders.
My opinion is that there are certain traits and character in both the patient profile and healthcare delivery that have resulted in this situation. This level 5 evidence considers the following:
1. Patient personality profile consisting of one of the following
Normal reasonable, Normal uninformed, Attention seeking, Unhappy with most things in life, Manipulative and distorted sense of entitlement (exists mostly in nationalised health system)
2. Patient actual health status consisting of one of the following:
Fit and Healthy, Unfit but no actual illness, minor/transient ailment of no major significance, major treatable illness, terminal condition (other than life itself)
3. Diagnosis/labelling made to explain complaints
Correct diagnosis made, Incomplete (partial) diagnosis made, wrong diagnosis made, no diagnosis made
4. Treatment recommendation
Correct treatment plan, incomplete/inadequate treatment plan, incorrect treatment plan, no treatment
5. Patient adherence to treatment
Complete compliance, partial or non compliance only as due to actual socio-economic inability to comply, partial or non compliance due to patient's lack of ownership or determination/commitment, conscious deliberate decision not to comply inspite of lack of barrier to do so.
Taken in any combination above any patient can turn into heartsinks but I generally find in my 25 year involvement in healthcare that a frequent attender is likely to be one of the following:
1. Normal personality, actual disease, incomplete/incorrect/no diagnosis, incorrect or no treatment, good compliance
2. Normal personality or normal uninformed, actual disease, correct diagnosis, correct treatment, partial compliance due to socio-economic issues (unable to change living or working condition, unable to afford foodstuff or products not fully paid for by national healthcare)
3. Attention seeking/ Consciously manipulative, actual disease, correct diagnosis, correct treatment, deliberately partial or complete failure to comply
4. Attention seeking/ Unhappy in life/ consciously manipulative, minor ailment or unfit but healthy, correct or no diagnosis, correct or no treatment, deliberate non compliance or partial compliance lack of ownership
It is the latter 2 that is the hardest to look after. It is important that we identify group 1 or 2: group 1 is likely to benefit from complete back to square one reassessment or a second or even third opinion, doctors looking after group 2 patients should access allied health assistance who may be more versed in negotiating the complex maze of healthcare/social support schemes particularly in national healthcare system like Australia with different jurisdiction held by federal vs state agencies plus NGOs.
It is the latter 2 that is the hardest to look after.
Group 3 and 4 will require ancillary services including counsellors and psychologist as well as community nurse coordinators as their first port of call or case managers. There are unlikely to attain permanent state of "feeling well" as normal people but hopefully with adequate contact and monitoring, we can deflect any unfounded automatic attempt to head for the nearest NHS health facility and reduce unnecessary attendance for healthcare service.
Perhaps Dr Spence was writing tongue in cheek when he suggested referring such patients to NHS Homeopathy practitioners. However I will be horrified if there is any element of true intent by Dr Spence to do so, as the action condones the practice of homeopathy and allows the continued funding of this aspect of NHS service by increasing referrals. Furthermore homeopathic practitioners will showcase their success stories “where conventional medicine failed" while the bulk of the non-responders (who will remain on the books of these practitioners) will continue to seek attention from GPs and ED.
Competing interests: I am also guilty of labelling frequent attenders as "heartsink" patients.
It is not surprising that “The frequent attenders at emergency services attend as many as fifty times in a year.”(1) As Dr Spence puts it these are heart sink patients.
For most clinicians working in primary care or hospital services has a few heart sink patients. It is reported that 14-15 symptoms clusters cause majority of the primary care visit. Out of these only 10-15% has an organic cause (2).
These visits cause lots of time and money of the health services. As reported by freedom of information act 12,000 people made more than 10 visits to the same unit in 2012-13 (1 ).Most of the time the primary care physician feels that there is not a lot that they can do in the general practice set up. Most of these cases will get referred to secondary care and despite numerous specialist investigation, they come back to general practice without any specialist diagnosis. These cases often classified as medically unexplained symptoms (MUS). These patients go on the revolving door and often remain as heart sink patients in the community.
Previous studies suggest that most of the MUS cases had unexplained psychiatric disorders (mostly anxiety and depression) at presentation (3). Cognitive behavior therapy was an effective treatment for “somatization or symptom syndromes” and that physical symptoms were more responsive to treatment than psychological symptoms.
Therefore these heart sink patients could be treated by bringing primary care psychiatry using the bio psycho social model and not overindulging in just one aspect of the model. As most GPs have only 10 minutes for a single appointment they may not be able to address all the issues of the patient and besides the new appointment system doesn’t often let the patient to see the same GP regularly. This can lead to loss of rapport with the primary care provider. Those patients who feel their needs are not met in primary care are more likely to go to A&E. Primary care psychiatry is able to provide a service by giving up to 10-20 sessions for these group of patients and bringing a relief to the symptomatology and quality of patient care. On the long term this could be cost effective.
There have been a few studies regarding the effectiveness of psychological therapies in primary care for MUS (4). A recent model that has been reasonably successful is the IAPT (Increasing access to Psychological Therapies) for Medically unexplained symptoms and this has been tried locally in various places. I think we need to consider the increase in access to psychological therapies in primary care which can go a long way in reducing the frequent attendance at emergency services.
Ref:
1.Triggle N. A&E: some patients visit units 50 times a year. BBC News2014 Jan 7. www.bbc.co.uk/news/health-25628009. 20), 1998, 15-21.
2.Katon, Wayne J.; Walker, Edward A: Medically unexplained symptoms in primary care. Journal of Clinical Psychiatry, Vol 59(Suppl)
3.Crimlisk HL, Bhatia K, Cope H, David A, Marsden CD, Ron MA. Slater revisited: six year follow up study of patients with medically unexplained motor symptoms. BMJ1998; 316:582-6.
4.Steven Reid, Simon Wessely, Tim Crayford and Mathew Hotopf: Frequent attenders with medically unexplained symptoms: service use and costs in secondary care. BJP 2002, 180:248-253.
Competing interests: No competing interests
Re: Frequent attenders are getting poor care
Dear Editor,
We would like to respond from a Dutch healthcare perspective to Des Spence’s interesting observations on frequent attenders (FAs) in the BMJ. Most of the research until now has been done in patients who frequently attend their GP during one year. It may, however, be more fruitful to study persistent or repeated frequent attendance.1;2 Perhaps these persistent FAs are the heart sink patients Des Spence refers to.
Persistent FAs attend more frequently than FAs and often suffer from multiple somatic, psychiatric and social problems.1 To explore possible explanations for persistence of frequent attendance, we performed a prospective cohort study in Dutch primary care on psychosocial causes of persistent frequent attendance. We found that panic disorder, other anxiety, recent negative life events (last year), illness behaviour and poor mastery are independently associated with persistence of frequent attendance. This leads to the hypothesis that intervention(s) targeting these factors, apart from their intrinsic benefits to these patients, may reduce attendance rates, and healthcare expenditures in primary and specialist care.
In another recent study, we found that the unadjusted mean 3-year healthcare expenditures were €5,044 (£4,168) and €15,824 (£13,075) for non-FAs and three-year-FAs, respectively. After adjustment for confounders (morbidity as noted by the GP and patient and GP characteristics), costs both in primary and specialist care remained substantially higher and increased with longer duration of frequent attendance. As compared to non-FAs, adjusted mean expenditures were €1,723 (£1,424) and €5,293(£4,374) higher for one-year and three-year FAs, respectively.
Based on these results, we concluded that patients’ morbidities as currently documented by the GP and patient and GP characteristics only partly explain the much higher expenditures by FAs in primary and specialist healthcare.3
Despite the clinical and financial importance of FAs, studies show, that treatment of (persistent) FAs has only limited effects.4. However, a more recent study by Bellon et al showed that, when GPs discuss the problems of FAs and develop a targeted treatment, attendance slows down.5 Screening and treatment of FAs for depression or somatoform disorders has been shown to have modest positive results.6-8 We are currently updating a systematic review of randomised trials of interventions on FAs.
All together, we agree with Des Spence that FAs need and deserve better medicine. As most somatic problems in this patient group are probably already dealt with in normal GP care, this ‘better medicine’ is likely to be gained by care which addresses psychological problems (panic, other anxiety, depression) of the involved patients and which tries to strengthen the self-efficacy and mastery of these patients.
Frans Smits, GP
Judith Bosmans, MSc PhD
Dany Haroun, BSc, Medical student
Gerben ter Riet, MD PhD
Reference List
(1) Smits FT, Brouwer HJ, ter Riet G, van Weert HC. Epidemiology of frequent attenders: a 3-year historic cohort study comparing attendance, morbidity and prescriptions of one-year and persistent frequent attenders. BMC Public Health 2009; 9(1):36.
(2) Smits FTM, Brouwer H.J., ter Riet G, van Weert HC. Predictability of persistent frequent attendance. A historic 3-year cohort study. Br J Gen Pract 2009; 2-2009(59):114-119.
(3) Smits FT, Brouwer HJ, Zwinderman AH, Mohrs J, Smeets HM, Bosmans JE et al. Morbidity and doctor characteristics only partly explain the substantial healthcare expenditures of frequent attenders: a record linkage study between patient data and reimbursements data. BMC Fam Pract 2013; 2013(1):138.
(4) Smits FT, Wittkampf KA, Schene AH, Bindels PJ, van Weert HC. Interventions on frequent attenders in primary care. A systematic literature review. Scand J Prim Health Care 2008; 26(2):111-116.
(5) Bellon JA, Rodriguez-Bayon A, de Dios LJ, Torres-Gonzalez F. Successful GP intervention with frequent attenders in primary care: randomised controlled trial. Br J Gen Pract 2008; 58(550):324-330.
(6) Simon GE, Manning WG, Katzelnick DJ, Pearson SD, Henk HJ, Helstad CS. Cost-effectiveness of systematic depression treatment for high utilizers of general medical care. Arch Gen Psychiatry 2001; 58(2):181-187.
(7) Barsky AJ, Ahern DK, Bauer MR, Nolido N, Orav EJ. A Randomized Trial of Treatments for High-Utilizing Somatizing Patients. J Gen Intern Med 2013:Mar.
(8) Baas KD, Wittkampf KA, van Weert HC, Lucassen P, Huyser J, van den Hoogen H et al. Screening for depression in high-risk groups: prospective cohort study in general practice. The British Journal of Psychiatry 2009; 194(5):399-403.
Competing interests: No competing interests