Recent rapid responses
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Displaying 1-10 out of 12 published
8 August 2011
Equalising health information among developing countries is a complex problem. Information as it has been identifed by HIFA2015 is essential to improve the quality of health systems in the developing world. Information is a powerful tool and is often taken for granted. However, information has many diffferent meanings and needs to be considered in relation to its many contexts. Firstly, information is a key medical resource that contains the accurate procedural information needed to displace traditional practices in local 'knowledges'. Secondly, it needs reliable infrastructures to be in place to ensure effective dissemination. Thirdly, content has to be addressed: infomation needs will differ from user to user. Therefore, it has to be made specific to local needs. Information itself simply cannot be enough, these factors are interlinked and need to be in place before information can be used effectively. Therefore, health information should be considered not only within a medical context but also take into account social factors.
This is best represented through a sociological health model such as Marc Lalonde's (1974) 'Health Field Concept'. Within this concept Lalonde highlights four categories to which, he argues, any health problem can be traced back. These categories include Human Biology, Environment, Lifestyle and Health Care Organisation. The categories that are of particular interest are Lifestyle, Environment and Health Care Organisation. For example, the Internet is a useful tool in distributing health information. But for this to be successful within the environment there need to be phone lines to support an Internet connection. However, even with access to the Internet the issue of content is problematic. Information overload can be just as harmful as lack of information. Health care providers need to be able to identify reliable information among the huge amount of data available. So we can see that equalising health information distribution among developing countries is far from a simple solution. There are many challenging obstacles to overcome, but I believe that using Lalonde's Health Field Concept as a framework will help identify the areas within any given society that need to be adapted or implemented to provide the knowledge so many health care providers need to make informed decisions.
Lalonde, M. (1974) A New Perspective on the Health of Canadians: A Working Document. Minister of Supply and Services, [online] Available at: http://www.hc-sc.gc.ca/hcs-sss/pubs/system-regime/1974-lalonde/index- eng.php [Accessed: 7th August 2011].
Competing interests: None declared
London College of Communication, University of the Arts London
1 August 2011
In the federal polity of India, where Health is a state subject, many state governments have established Information, Education, and Communication Bureau within their respective public health systems.
Rajasthan was one such state where an IEC Bureau was established in early nineties. The mandate of IEC Bureau has been to generate awareness on health including population issues. They tried to exploit the media in informing and communicating with people which includes placing educative material in newspapers, on various channels as TV spot and radio ad, organizing puppet show, skits, nukkad-natak, posters, wall writings,and distributing pamphlets, and hand bills. Inter-personal communication was stressed by hooking in opinion leaders at the peripheral democratic bodies which in India is known as Panchayats.
But with a literacy rate of northern Indian states between 50 to 70 percent (with female literacy still lower), the IEC efforts could not elicit as much as the investments made therein!
Over these two decades, information technology has revolutionized. Even in the remote villages of a largely desert state like Rajasthan, signals of cellular phones have reached! We have reached a point of reinventing inter-personal communication through which an illiterate (or neo-literates whose number is fastly increasing) can be empowered. Mechanics need to be evolved albeit 2015 is too close to create such a culture. There is certainly need to draw inputs from HIFA 2015 which as a forum is providing worldwide experience through its net.
Competing interests: None declared
Public Health Specialist
29 July 2011
Peoples-uni (http://peoples-uni.org) strongly supports the proposed action to improve access to health information for all. As providers of low-cost online education for Public Health capacity building for health professionals in low income settings, we would make the point that in order to turn information into action, an educational component is required. Peoples-uni stands ready to help support the goal expressed by Smith and Koehlmoos, as I am sure will other educational initiatives and organisations.
Competing interests: None declared
Peoples-uni
21 July 2011
BMJ 2011; 342:d4151 doi: 10.1136/bmj.d4151 (Published 30 June 2011)
Dear Editor
Health information must address all promotive, preventive and treatment of diseases. The description of HIFA 2015 in this article has left a strong impression on me. First, such an initiative recognizes the importance of health information for all both at the household level and among health providers. It is encouraging that HIFA 2015 has prioritised middle and low income countries which suffer the most in terms of lack of access to health information. WHO 2006 recognizes that Africa alone bears 25% of the global disease burden but only 2-3% of African doctors and nurses are well informed on sources to health information and having access to electronic information
It is indeed commendable that the editor stresses the challenges in developing countries. I would however mention that as much as the information is available, language remains an important obstacle to accessing health information, which is experienced both in developed and developing countries. In ever-increasingly globalized societies, there are migrations; meaning that different languages are brought together and health information is not easily translated into individuals' first languages; moreover, in the process of translation, context of the information may be changed. For developing countries language is a critical issue because it is almost impossible to communicate at the rural levels where indigenous languages are plenty and English illiteracy levels are very high. In addition, much as there is improved electronic access to information, this avenue isn't applicable for most developing countries where computer and internet resources are limited and even if available, there is very limited knowledge to access.
Competing interests: None declared
Great lakes University
Dear Editor
We welcome Smith and Koehlmoos's call for a major funding agency to support HIFA2015 (Healthcare Information For All by 2015; www.hifa2015.org). [1] In 2006, when HIFA2015 was launched, Dr Tikki Pang of the World Health Organization said "HIFA2015 is an ambitious goal, but it can be achieved if all stakeholders work together". [2] The full range of stakeholders - from the World Health Organization in Geneva to grassroots organisations in Uganda - are indeed now working together. What is needed now is for a single major funding agency to commit to the HIFA2015 goal - to commit to a world where the availability and use of basic healthcare knowledge are no longer a major contributing factor to avoidable death and suffering.
Smith and Koehlmoos focus on the modest financial needs of HIFA2015 itself. HIFA2015 needs funding to expand from its current staffing level of one person. We shall then be able to build on what we have achieved (bringing together over 5000 providers and users of health information globally, nationally and across different languages), and develop the second and third components of our strategy: a specialised knowledge base of information needs and how to meet them, and an advocacy programme to raise awareness of the importance of healthcare information and the need for increased political and financial commitment to support the diverse efforts of health information services and projects worldwide.
In 1993 the late James Grant, former Executive Director of UNICEF, said: "The single biggest piece of unfinished business of the 20th century is to extend the basic benefits of modern science and medicine... The most urgent task before us is to get medical and health knowledge to those most in need of that knowledge. Of the approximately 50 million people who were dying each year in the late 1980s, fully two thirds could have been saved through the application of that knowledge." [3] Since then, as Smith and Koehlmoos point out, there has been 'little progress in meeting the information needs of frontline healthcare providers and ordinary citizens'. A recent literature review by us, with a focus on Africa, confirmed 'a gross lack of knowledge about the basics of how to diagnose and manage common diseases, going right across the health workforce and often associated with suboptimal, ineffective and dangerous health care practices'. [4] This is not due to the health workers themselves. It is due to lack of financial and political commitment to address their information and learning needs. The unfinished business of the 20th century has carried forward to the 21st, largely unaddressed. 'It is unlikely that this ambitious goal [HIFA2015] will be achieved', say Smith & Koehlmoos. If it is not achieved, it will be, again, because of lack of financial and political commitment.
Similar calls have been made repeatedly since 1993, including that in 2006 by the international health leaders Pang, Gray and Evans: "The Gates Foundation identified fourteen challenges but a fifteenth challenge stares us plainly in the face: The 15th challenge is to ensure that everyone in the world can have access to clean, clear, knowledge - a basic human right, and a public health need as important as access to clean, clear, water, and much more easily achievable." The authors emphasise that access to healthcare knowledge is 'critical for achieving the Millennium Development Goals'. [5]
We call on funding agencies and governments to commit to the goal of healthcare information for all by 2015.
Neil Pakenham-Walsh (Global Healthcare Information Network & Coordinator, HIFA2015) and Frederick Bukachi (Senior Lecturer, University of Nairobi Medical School, Kenya)
On behalf of the HIFA2015 Steering Group [6]
1. Smith R & Koehlmoos T P. Provision of health information for all. BMJ 2011;342:doi:10.1136/bmj.d4151 (Editorial, Published online 30 June 2011) http://www.bmj.com/content/342/bmj.d4151.full?sid=5748dbb0-459d-4f56-81cc- 91568fac317e
2. http://www.hifa2015.org/resources/letter-of-support/
3. Grant J. Opening Session, World Summit on Medical Education, Edinburgh 1993. Medical Education 1994; 28 (supplement 1): 11.
4. Pakenham-Walsh N & Bukachi F. Information needs of health care workers in developing countries: a literature review with a focus on Africa. Human Resources for Health 2009, 7:30doi:10.1186/1478-4491-7-30 http://www.human-resources-health.com/content/7/1/30
5. Tikki Pang (WHO), Muir Gray (NHS, UK), and Tim Evans (WHO): A 15th grand challenge for global public health. The Lancet 2006; 367:284-286. http://www.thelancet.com/journals/lancet/article/PIIS0140673606680501/fu...
Competing interests: None declared
Global Healthcare Information Network
8 July 2011
I am a social pediatrician in Turkey. In Turkey, we are trying to
develop General Practitioner System throughout the country. But we have a lot
of problems especially related to pediatric care.
1. Our generel practioners dont have enough training.
2. In rural areas there is no acess to knowledge and health care.
So what is happening in Turkey now? We can't achieve success in increasing breastfeeding rates because our general pediatricians don't know how to train mothers about expressing breastmilk in difficuilt situations. Formula companies are faster and rich. They can easily access mothers. I know that even some pediatricians recommend to stop breastfeeding when the infant has hyperbilirubinemia.
I think health information is very important for my country especially for general practitioners. I am very impressed with HIFA 2015 group that they have a lot of professionals for discussing primary health care problems (I've been in that group for 4 months). I hope this organisation can find a strong fund from some private organisations.
Competing interests: None declared
ESSOP
8 July 2011
Dear Editor,
This editorial and added comments confirm the view taken by such organisations as EIFL and the Electronic Publishing Trust for Development (EPT) 'that knowledge starvation has an adverse effect on mortality and ill health in resource-poor settings'. It is true that it is difficult to put figures on the impact on health of lack of access to knowledge, but new assessment tools are under development and will perhaps provide the figures that would prove the point. While we wait for these developments, HIFA2015 has made an enormous contribution towards raising awareness about the need for information in parallel with the need for medical treatment.
Such initiatives are at the forefront of the drive towards open access to all publicly funded research - the starting block for the development of effective treatments at the front line.
The following articles consider this issue and may be of interest:
"Excluding the poor from accessing biomedical literature: A rights violation that impedes global health", http://www.hhrjournal.org/index.php/hhr/article/view/20/88;
"The chain of communication in health science: from researcher to health worker through open access", Open Medicine 2009; 3(3):111-119, http://www.openmedicine.ca/article/view/298/245
Leslie Chan, Barbara Kirsop, Subbiah Arunachalam,
Trustees of the EPT
Competing interests: All three authors have published articles relating to the importance of knowledge for development and worked to promote open access to publicly funded information.
Electronic Publishing Trust for Development
8 July 2011
CHILD 2015 is a partner member of HIFA 2015 and brings together child health professionals from all over the world in an exchange of information on paediatrics and child health.
The forum has really impressed me by bringing together grass roots workers from a number of different health disciplines, and promoting contacts with academic and UN agency workers from major centres. The former have not previously had access to authoritative sources whilst the latter had little contact with rural health realities. This cross fertilisation is one of the huge benefits of HIFA and all its groups and I back up the views of the authors in saying that it is a very worthy beneficiary of new funding.
Tony Waterston
Competing interests: None declared
University of Newcastle upon Tyne
7 July 2011
Language is a key issue in access for information. Speakers of a dominant language like English - including most of the highly educated professionals in developing countries - can too easily overlook the fact that the people who most need healthcare information are not likely to have a good understanding of English (nor of French, Spanish, or Portuguese).
Language is a significant obstacle to comprehension, whether we're talking about training community healthcare workers with varying levels of educational achievement, or simply delivering information to the end consumers - frequently people in rural communities.
Ironically, people with scant knowledge of English tend to be those who need access to information the most. If we take just Africa alone, with 25% of the world's disease burden and only 2-3% of its doctors and nurses, well informed healthcare workers are critical. However, if neither the people themselves, nor the village healthcare workers meant to help them, have strong English skills, the information they have access to will be understood imperfectly, or not at all. And the whole information access chain breaks down.
Competing interests: None declared
Translators without Borders
Access to the high quality information is the basis of practicing evidence-based medicine (EBM) yet issues around fair and equitable access to information are still present. Without the actual information (i.e., journal articles, books, etc, in either electronic or print format) how can EBM be practiced or how can evidence be used to inform decision-making? Why is there such a lack of understanding or support for the provision of access to information? Why do libraries and those championing access to information need to prove that using knowledge is beneficial? To conduct a study that "quantifies" the use of information is quite difficult. A Cochrane Review that tried to do so found of improvements in knowledge but not changes in professional behavior. It did find that knowledge of the Cochrane Reproductive Health Library was better among health care professionals that had training.1
In a rich country like Canada, librarians have been struggling for more than a decade to fund a national network of libraries for health to provide equitable access to information for health care providers. They have only recently been able to create the framework for a Canadian Virtual Health Library/Biblioth?que virtuelle canadienne de la sant? (http://cvhl-bvcs.ca) with funding from the Canadian Institutes of Health Research. Muir Gray stated in 2006 that it seemed paradoxical; it has always seemed paradoxical that Canada, a country that introduction of evidence-based medicine to the advances in knowledge translation and implementation does not have a national library.2 Still there is no national license to The Cochrane Library in Canada.
After working in Kazakhstan, it is clear that there is little access to health information. As well, the issue of language (the main languages are Russian and Kazakh) mean that access to English material is only part of the problem and requires additional monies because of the need for permissions to use and translate information. As of January 1, 2011, Kazakhstan does not quality for Band 1 (free access) or Band 2 (low-cost access). Fortunately, after raising this issue, The Cochrane Collaboration's Evidence Aid project graciously agreed to provide access to The Cochrane Library in Kazakhstan for 2011, despite the fact that Kazakhstan has "graduated" from HINARI. This is an example of a small win.
The issues around championing access to information are critical. We all need to help HIFA2015 become a reality and allow everyone access to an informed healthcare provider.
References
1. McGowan JL, Grad R, Pluye P, Hannes K, Deane K, Labrecque M, Welch V, Tugwell P. Electronic retrieval of health information by healthcare providers to improve practice and patient care. Cochrane Database of Systematic Reviews 2009, Issue 3. Art. No.: CD004749. DOI: 10.1002/14651858.CD004749.pub2.
2. Gray JAM. Canadian clinicians and patients need clean, clear knowledge [editorial]. CMAJ 2006;175(2):129.
Competing interests: None declared
University of Ottawa








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