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Charities call for “public-researcher partnership” in sharing electronic patient data

BMJ 2009; 338 doi: https://doi.org/10.1136/bmj.b856 (Published 27 February 2009) Cite this as: BMJ 2009;338:b856
  1. Lizy Cooper
  1. 1BMJ

    UK charities involved in clinical research have called for greater public participation in the debate on the use of patients’ data, in particular electronic records.

    The British Heart Foundation, the Wellcome Trust, and Cancer Research UK warned that clinical trials are being delayed because of problems identifying patients suitable for research projects. Time spent recruiting patients is also eroding the money and time available to spend conducting clinical trials, they said.

    Mark Walport, director of the Wellcome Trust, said that patients had “a very strong altruistic view” of the use of their medical records for research.

    “Surveys show that most patients want their data to be used,” he said. “The big challenge is …

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