- David Isaacs, paediatrician123,
- H A Kilham, paediatrician14,
- S Jacobe, paediatric intensivist5,
- Monique M Ryan, paediatric neurologist6,
- Bernadette Tobin, ethicist7
- 1Clinical Ethics Advisory Service, Children’s Hospital at Westmead, Westmead, NSW 2145, Australia
- 2Department of Allergy, Immunology, and Infectious Diseases, Children’s Hospital at Westmead
- 3University of Sydney, Sydney, NSW 2006, Australia
- 4Department of Medicine, Children’s Hospital at Westmead
- 5Paediatric Intensive Care Unit, Children’s Hospital at Westmead
- 6Children’s Neurosciences Centre, Royal Children’s Hospital, Melbourne, Victoria 3052, Australia
- 7Plunkett Centre, St Vincent’s Hospital, Darlinghurst, NSW 2010, Australia
- Correspondence to: D Isaacs DavidI{at}chw.edu.au
We recently wrote a case study on the treatment and care of an infant with spinal muscular atrophy type 1, an inherited disorder causing progressive muscle weakness without apparent intellectual impairment …
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