- S Danielle MacNeil, medical student,
- Conrad V Fernandez, paediatric oncologist (conrad.fernandez@iwk.nshealth.ca)
- Dalhousie University, Halifax, NS, Canada B3K 6R8
- Dalhousie University, Halifax, NS, Canada B3K 6R8
Do participants of research trials wish to be offered a summary of the trial results? This practice is being encouraged as a means of demonstrating greater respect for research participants: it recognises the central role of participants in the completion of research studies and avoids treating them as a means to an end.1 2 The International Ethical Guidelines for Biomedical Research Involving Human Subjects stipulate that offering results to subjects after study completion is an essential obligation of researchers (guideline 5, article 7).3 However, many national policies on research ethics do not mention this practice, and few research ethics boards or committees have policies or guidelines governing the process.4 This is mirrored in the low prevalence of offering to return results, which is documented in a wide variety of research settings.5
A paper by Dixon-Woods and colleagues in this issue (p 206) reports a study in which they offered a summary …
Sign in
Personal subscribers, sign in here:
Article access
Article access for 1 day
Purchase this article for £20 $30 €32*
The PDF version can be downloaded as your personal record
CiteULike
Connotea
Del.icio.us
Digg
Facebook
Reddit
Technorati
Twitter
Stumbleupon
Rapid responses
Latest Responses
The decline in the breast cancer incidence is 1.2% and it is not significant.
Published 10 February 2012
'twas ever thus
Published 10 February 2012
The value of historic human remains
Published 10 February 2012
In Praise of British Literature
Published 10 February 2012
Is real shared decision making possible?
Published 10 February 2012
Most responses
Does anyone understand the government’s plan for the NHS? (17 responses)
Published 17 Jan 2012
Bad medicine: medical nutrition (15 responses)
Published 18 Jan 2012
Shared decision making: really putting patients at the centre of healthcare (7 responses)
Published 27 Jan 2012
Why legislation is necessary for my health reforms (7 responses)
Published 1 Feb 2012
Search for evidence goes on (5 responses)
Published 17 Jan 2012