The sudden death of a childBMJ 2004; 328 doi: https://doi.org/10.1136/bmj.328.7435.0-g (Published 05 February 2004) Cite this as: BMJ 2004;328:0-g
- Richard Smith, editor ()
“The sudden unexpected death of an infant or child is one of the worst events to happen to any family.” This is the opening line of a review by authors from Bristol of how best to investigate such deaths and care for bereaved families (p 331). Such a death presents great difficulties to doctors, social workers, and the police, and the difficulties have been increased by the publicity surrounding wrongful conviction of parents of murder. Every primary care trust is supposed to have a “designated doctor” to serve on child protection teams, but a third of these posts are unfilled (p 307).
The management of sudden deaths of infants would be extremely testing even if the doctors could be confident that they were all due to natural causes. But they can't be. A study of 456 deaths and 1800 age matched surviving controls showed that 21 deaths (nearly 5%) were directly due to non-accidental injury. In another 22 deaths maltreatment—through either commission or omission—was thought to have contributed. How can investigators distinguish the 10% of cases where abuse may be a factor from the 90% where it is not?
The first aim of the investigators, writes the Bristol team, must be to recognise the needs of the family, including the need for information. Next they must identify any underlying medical cause that might have genetic or public health implications. There must also be a thorough investigation to exclude unnatural causes of death. Other children must be protected. But families must also be protected from false or inappropriate accusations.
Success in these investigations depends on doctors, social workers, and police working closely together. The Bristol team has systematically reviewed the evidence in order to devise an optimum protocol for investigation. The first step is for all the investigators to meet together as soon as possible after the death to plan the investigation. The paediatrician and police officer then usually see the family together in the emergency department. Next they make a joint home visit with the family doctor or health visitor. A full history is needed together with a careful review of the circumstances and scene of the death.
A careful postmortem is essential, and this has been made more difficult by public reaction to previous practices of tissue or organ retention. An evidence based protocol has now been devised which combines a minimum number of tissue samples with radiological, microbiological, and biochemical investigations. If major concerns are raised about child protection then police or social workers take the lead, but the doctors stay involved.
Two to three months after the death all the professionals meet and reach conclusions. The family is give a written explanation in plain English of the cause of death and the results of pathology investigations—and a chance to discuss the findings.
This is enormously important work, and it's in the interest of everybody that there are good people to do it and that it's done optimally.
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