- Jeffrey K Aronson (jeffrey.aronson@clinpharm.ox.ac.uk), clinical reader
- Department of Clinical Pharmacology, University of Oxford, Radcliffe Infirmary, Oxford OX2 6HE
The case history was invented by Hippocrates. Since then medical practice has been straitjacketed by its artificiality, to the detriment of the patient's own narrative. But patients have found ways of expressing themselves other than by talking to their doctors. Over the past two years I have been collecting a bibliography of book length autobiographical medical narratives, each completely or largely devoted to the writer's personal experience of drug use or illness. My growing list currently runs to about 270 titles.
The usual term for a narrative of this sort is a pathography, originally defined in 1853 in Dunglison's Medical Lexicon as a description of disease, and later as “the study of the effects of any illness on the writer's (or other artist's) life or art, or the effects of an artist's life and personality development on his creative work.”1 The word was probably first used in this sense by Sigmund Freud, in Eine Kindheitserrinerung des Leonardo da Vinci (1910), and Oliver Sacks in the 1990 revised edition of Awakenings said that “the most perfect examples of … pathography are the matchless case-histories of Freud” (although in earlier editions he wrote “pathology”). However, no one has, to my knowledge, made the important distinction between pathography and autopathography; indeed the latter term seems not to have been coined at all. The critic Mark Lawson, recognising the genre, has called autopathographies “medical confessionals,”2 but I prefer to call them “patient's tales”—or, as Kipling might have put it, “plain tales from the ill.”
All of the unreferenced volumes that I mention in this review are listed in my partially annotated bibliography.3 From their wide variety some common themes emerge, the surfaces of which I shall attempt to scratch.
Summary points
The traditional case history stifles the patient's own narrative, but increasingly patients …
Sign in
Personal subscribers, sign in here:
Article access
Article access for 1 day
Purchase this article for £20 $30 €32*
The PDF version can be downloaded as your personal record
CiteULike
Connotea
Del.icio.us
Digg
Facebook
Reddit
Technorati
Twitter
Stumbleupon
Rapid responses
Latest Responses
Re: Does the BMJ have a particular ideology to pursue in assisted dying?
Published 3 February 2012
Re: The NHS is heading down a hole—should we stop digging?
Published 3 February 2012
Use social media to teach professionalism
Published 3 February 2012
Re: Independence in disciplinary proceedings against doctors
Published 3 February 2012
Editorial clarification
Published 3 February 2012
Most responses
Does anyone understand the government’s plan for the NHS? (17 responses)
Published 17 Jan 2012
Bad medicine: medical nutrition (15 responses)
Published 18 Jan 2012
Timing of onset of cognitive decline: results from Whitehall II prospective cohort study (11 responses)
Published 5 Jan 2012
Proposals to increase the motorway speed limit by 10 mph (5 responses)
Published 5 Jan 2012
Benefits and harms of mammography screening (5 responses)
Published 6 Jan 2012