Education And Debate

Commentary: The mother's story

BMJ 1996; 313 doi: (Published 20 July 1996) Cite this as: BMJ 1996;313:155

I was not sure what to make of my child's condition when she was first ill. I did not think much about the long term. Once the diagnosis was made the only thing I could think was that her brain was all right and her heart was all right and that she could live as normal a life as possible. When I actually realised what peripheral neuropathy meant it was a shock. By the time she was 12 …

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