Rapid Responses to:

LETTERS:
Robert M Reece
The evidence base for shaken baby syndrome: Response to editorial from 106 doctors
BMJ 2004; 328: 1316-1317 [Full text]
*Rapid Responses: Submit a response to this article

Rapid Responses published:

[Read Rapid Response] Worrisome bias of Professor Reece et al;
Michael D Innis   (28 May 2004)
[Read Rapid Response] 106 Signatures and competing interests
Mark J Donohoe   (28 May 2004)
[Read Rapid Response] WOW Did these 106 MD"s Do any research
Lois Herlihy   (29 May 2004)
[Read Rapid Response] Smoke, Mirrors and Bandwagons
L. Travis Haws   (29 May 2004)
[Read Rapid Response] Re: 106 Signatures and competing interests
John D Stone   (29 May 2004)
[Read Rapid Response] Re: 106 Signatures and competing interests
Michael D Innis   (29 May 2004)
[Read Rapid Response] Re: Re: 106 Signatures and competing interests
John D Stone   (30 May 2004)
[Read Rapid Response] A self-perpetuating oligarchy?
John D Stone   (31 May 2004)
[Read Rapid Response] theory verses certain knowledge
CA Johnson   (4 June 2004)
[Read Rapid Response] Confessions are not evidence
Arnold D. Wadle   (5 June 2004)
[Read Rapid Response] Re: Confessions are not evidence
John P Heptonstall   (6 June 2004)
[Read Rapid Response] Nor are convictions in the criminal courts, or findings of fact in the family courts
Brian Morgan   (6 June 2004)
[Read Rapid Response] Re: Re: Confessions are not evidence
Hilary Butler   (7 June 2004)
[Read Rapid Response] Thanks for this article.
Linda D. Skinner   (7 June 2004)
[Read Rapid Response] First Hand Account-Dr Reece Open Your Mind
Mark D Sundloff   (12 June 2004)
[Read Rapid Response] SBS Proponents Should Disclose Funding
Tracy L. Emblem   (12 June 2004)
[Read Rapid Response] Re: SBS Proponents Should Disclose Funding
Peter J Stephens   (13 June 2004)
[Read Rapid Response] Re: Re: SBS Proponents Should Disclose Funding
HEATHER LOHR   (14 June 2004)
[Read Rapid Response] SBS EVIDENCE FLAWED - INJUSTICE RIFE
Michael D Innis   (14 June 2004)
[Read Rapid Response] Changes
Lisa C Blakemore-Brown   (17 June 2004)
[Read Rapid Response] Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice
Alan R. Yurko   (20 June 2004)
[Read Rapid Response] Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice
Michael D Innis   (23 June 2004)
[Read Rapid Response] Re: Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice
Michael D Innis   (24 June 2004)
[Read Rapid Response] Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT!
Donna L Meads-Barlow   (5 August 2004)
[Read Rapid Response] Evidence base?
Brian Morgan   (24 September 2004)
[Read Rapid Response] Re: Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT!
Michael Innis   (27 January 2005)
[Read Rapid Response] Reece et al's Collective Discrepancies Noted by a Collective Group of Concerned Citizens
L. Travis Haws, Co-signators listed below references   (2 August 2006)

Worrisome bias of Professor Reece et al; 28 May 2004
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Michael D Innis,
Director Medisets International
Home 4575t

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Re: Worrisome bias of Professor Reece et al;

Editor,

The display of a “worrisome and persistent bias” exists in Professor Reece and his 105 colleagues and not in anything Drs Geddes and Plunkett have said in their Editorial.

The persistent bias manifests itself in their continued inability to see that “Shaken Baby Syndrome” and its synonyms are myths invented by some doctors to explain Intracranial lesions and sometimes fractures in a child for which they have no diagnosis.

I have repeatedly pointed out in these columns the need to take notice of the mother’s concern that the symptoms could often be dated to the last immunization suggesting an adverse Hypersensitivity Reaction. Other possibilities relate to Nutritional disturbances particularly in low birth weight Formula fed premature infants and also Defects of Haemostasis.

These have been the causes in the cases which have been reported to me. Can Professor Reece produce a single case in which there was no relation to immunization, nutrition or adequately investigated haemostasis? I venture to say he cannot. Nor can any of the other 105 signatories.

Michael Innis

Competing interests: None declared

106 Signatures and competing interests 28 May 2004
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Mark J Donohoe,
N/A
Mosman, Australia 2088

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Re: 106 Signatures and competing interests

Professor Reece's response to the article of Geddes and Plunkett claims to be a response of "106 doctors". It is difficult to imagine that 106 doctors actually constructed the letter, so what precisely do their signatures on this letter signify? Does it indicate that all had thoroughly reviewed the letter, and that they were all in total agreement with all details of the letter submitted by Professor Reece? Are they simply indicating that they agree with the general views and the thrust of Professor Reece's letter? Or is this more a show of solidarity on the part of doctors who care deeply about the risks of shaking on children, and do not want doubt cast on the current methods used to convict presumed perpetrators?

This is an important issue for the Journal, the principle author and the 105 other signatories to clarify. I find it incomprehensible that all 106 signatories could have concluded that the editorial of Geddes and Plunkett demonstrated "a worrisome and persistent bias against the diagnosis of child abuse in general". It is simply not a conclusion which can logically be reached from the content of the editorial.

In addition, I note that no competing interests were declared. All 106 signatories would need to make that declaration, or the signatures are meaningless in terms of authors' responsibilities.

Six of the signatories (Levin, Chadwick, Alexander, Barr, Jenny and Reece) are medical practitioners on the International Advisory Board of the National Center on Shaken Baby Syndrome (www.dontshake.com). All six appear to be speaking at the Center's upcoming conference in Montreal in September 2004. Five of the six are participating in what is termed a "Pre- Conference Mock Trial and Training Session", which is represented as a training session to achieve successful prosecutions.

The letter of Professor Reece, unfortunately, demonstrates one of the very problems which I identified in my own paper (1) - that the literature on SBS, at least up until 1998, was polarised and based less on strong data than on strong beliefs. The pursuit of successful prosecutions without an evidence base is not science. Science struggles when evidence is displaced by emotions and outrage.

A large number of signatories do not increase either the amount or the quality of evidence regarding a given subject (2). It simply increases the work of the editors of the Journal, who now have an obligation to determine from each of the 106 authors precisely what their signature denoted, and whether they all comply with the Journal's guidelines on competing interests.

I seek assurance by the Journal Editors that this will now be done, and that the modifiers, disclaimers and competing interests of each of the 106 signatories will be published in a future issue of the BMJ.

Dr Mark Donohoe Sydney, Australia

Refs

Donohoe M. Evidence-based medicine and shaken baby syndrome. Part I: Literature review, 1966-1998. Am J Forens Med Pathol 2003;24: 239-42

Davies S, Downing D. Truth, Ethics and Consensus - Their Relation to Medical Progress and the Quality of Patient Care. Journal of Nutritional Medicine 1992; 3:91-98

Competing interests: None declared

WOW Did these 106 MD"s Do any research 29 May 2004
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Lois Herlihy,
none
33029

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Re: WOW Did these 106 MD"s Do any research

I read this article in response to the Geddes and Plunkett article it was like I was reading a different article. The article by Reece and his 106 other MD's is riddled with errors, misquotes. One person decides this is the "correct assumption" and 106 other "PROFESSIONALS" sign their name in agreement. If this was the case, why do we now see the UK deciding it is necessary that cases be reopened? This group of MD’s utilizes the same theory and misconception as others have done in the past, in the name of protectin children.They dare to question biomechanics and differnetial diagnosis that can cause SDH, Retinal Hemorrhage etc. Yes, abuse is out there but these 106 MD's are adding to it but signing their names to something they personally have not researched or even care to get involved in What makes it so ironic, they may start examining the "THEORY OF SHAKEN BABY SYNDROME" if it was someone in their family accused and charged. I totally am appalled about the article. I guess Reece also believes that since it looks lieka duck it always is a duck. A health care professional with a closed mind who will not open to science is a very scary thought at best

Competing interests: None declared

Smoke, Mirrors and Bandwagons 29 May 2004
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L. Travis Haws,
Dentist
Lakewood CO U.S.A. 80228

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Re: Smoke, Mirrors and Bandwagons

Editor: Have we been here before? Are we in a non-ending circular continuum? As the child protection "experts" really have no valid argument or explanations of their shenanigans, they band together so as to appear that their wagon has strength and credibility. They now have 106 doctors as co-signators as compared to the 50 or so that signed the Louis Woodward response letter. (1) Wherein the response letter it is stated “Indeed, the courtroom is not the forum for scientific speculation, but rather the place where only, according to the U.S. Supreme Court in Daubert vs. Merrill Dow, peer reviewed, generally accepted, and APPROPRIATELY [my emphasis] tested scientific evidence should be presented”. Just another instance of stones and glass houses as the courtroom/law is exactly how these multi-disciplinary teams “appropriately” tested and “established” the hypothesis. This is now reiterated again as Reece and 105 et al. elude to "emerging literature of confessed shaking causing brain injury in infants" Unbelievable that "confessions" would be part of a study's inclusion data/criteria. Are Reece and 105 et al. really that naive that they don't understand that the majority of confessions come under threats, promises of leniency or that the doctors, in a position of authority, tell investigators that the only plausible explanation is the "fact" of shaking or slamming of an infant if multi-story falls or high speed car crashes are excluded. That statement of fact has been shown to be wrong over and over, and so it is safe to say that such a statement under threats...is lies. A confession based on lies should hardly be included in a medical study, let alone a court of law.

How can such devastating statements be made and testified to in light of the fact that proper birth and health histories or lab tests are seldomly done? An instantaneous diagnosis of SBS/SIS is made and further investigation basically ceases. How can such bold statements be made without proper investigation? This applies to the studies cited by Reece and 105 et al. If the inclusion criteria of a study is wrong (i.e. this infant really did not suffer "non-accidental" injury), then the outcome or conclusions are meaningless. This is the very argument of Donohoe, Barnes and Lantz et al. (2,3,4) Then along comes reports of other etiologies of subdural, retinal hemorrhages and brain edema. What does this mean? It supports the concerns of Donohoe, Lantz, Barnes, Plunkett, Geddes...I'm sure we can come up with at least 106 signatories or match any number the child protection "experts" pronounce? Such case reports simply support such concerns in that it is a very real likelihood that many of these alleged shaken infants included in the study to determine prevalence of retinal hemorrhage..., for example, may not have suffered non-accidental injury after all and thus any conclusions drawn from such a study are WRONG...are MEANINGLESS and show us nothing! Just a bunch of smoke and mirrors.

How sad for the poor families who have suffered such injustices at the hands of opinions, assumptions and dogmas. How sad for the doctors who are responsible for such. How can they sleep at night? I guess in knowing that they did catch a couple of bad guys in the process. Is catching the few bad guys, using an "all-encompassing" "pathognomonic" diagnosis, worth the devastation heaped upon the innocent?

Of course child abuse happens and is usually pretty obvious, even to a lay person. Conversely, of course children suffer tragedies from apparent benign accidents, natural diseases and adverse vaccine reactions. To deny such is nothing more than stupidity. And the seemingly lack of desire on the child protection "experts" to differentiate the two, instead sticking to entrenched flawed assumptions, in a majorigy of cases is appalling.

Reece and 105 et al. speak to some 25 studies that show short falls are not fatal. These studies are just as flawed as the rest (http://bmj.bmjjournals.com/cgi/eletters/328/7442/719#56526). I've seen and listed just as many that show fatal short falls/accidents are very real. (5, 6, 7, 8,9 ,10, 11, 12, 13, 14, 15, 16, 17) When in reality, all you need is one incidence of a fatal short fall to disprove such falsely assumed beliefs and testified triads of a multi-story fall, high-speed car crash or SBS/SIS. They state Plunkett's falls were from seven feet and not short? That is still much shorter than multi-story's or certain "experts" claims that falls below 20 and then 10 feet are not fatal.

What about the fact that asymptomatic (glascow coma scale of 13-15) presentation following a "trivial" fall can show abnormal brain findings upon imaging including subdural and epidural hemorrhage, edema...? (18,19,20,21,22)

Of course trivial falls rarely kill. That goes without saying, as if it commonly killed we'd be an extinct race as any infant/toddler falls countless times. But to assume that it does not and that all parents are liars, when presenting as such, is beyond reason and contemtable.

Furthermore and additionally, this doesn't even cover the numerous natural and congenital disease processes. I've personally seen many cases of alleged SBS/SIS and it is appalling how sick so many of these infants were either during birth, post-birth, or were pre-mature infants coupled with those countless complications. That entails an entire other article or response, so I won't elude to it here. Just say the word and it's done, or go to http://bmj.bmjjournals.com/cgi/eletters/328/7442/719#59982.

At the end of the day, one would have hoped that the child protection "experts" would have reasoned with themselves and at least questioned their "pathognomonic" beliefs in light of the vast amount of evidence that refutes their beliefs and especially with the utter devastation of lives at stake. Unfortunately that has failed to occur once again, and they are again flexing their so called staunch "numbers". You can only hide ignorance behind "numbers" for so long. Once the smoke and mirrors are finally put aside, one of the greatest scandals of time may be revealed which will surely pull off the wagons wheels.

1) http://child-abuse.com/sbsletter.shtml

2) Donohoe M. Evidence-Based Medicine and Shaken Baby Syndrome. American Journal of Forensic Medicine and Pathology 2003; 24: 239-42.

3) Barnes P. Ethical Issues in Imaging Nonaccidental Injury: Child Abuse. Topics in Magnetic Resonance Imaging 2002; 13; 85-94.

4) Lantz PE, Sinal SH, Stanton CA, Weaver RG Jr. Perimacular retinal folds from childhood head trauma. BMJ. 2004; 328:754-6.

5) Plunkett J. Fatal pediatric head injuries caused by short-distance falls. Am J Forensic Med Pathol 2001;22:1-12.

6)Aoki N, Masuzawa H. Infantile acute subdural hematoma. Clinical analysis of 26 cases. J Neurosurgery 1984;61:273-80.

7)Hall JR, Reyes HM, Horvat M. The mortality of childhood falls. J Trauma 1989;29:1273.

8)Berney J, Froidevaux AC, Favier J. Pediatric head trauma: influence of age and sex. II. Biomechanical and anatomo-clinical correlations. Childs Nerv Syst 1994;10:517-23.

9)Greenes DS, Schutzman SA. Occult intracranial injury in infants. Ann Emerg Med 1998;32:680-6.

10)Di Rocco C, Velardi F. Epidemiology and etiology of craniocerebral trauma in the first two years of life, in Eds Head Injuries in teh Newborn and Infant. New York: Springer-Verlag, 1986;125-39.

11) Canestri G, Monzali GL. Cranial injuries in childhood. Clinico- statistical data on patients hospitalized in a 5-year period. Minerva Pediatr 1970;22:1687-9.

12)Wissow, LS, Wilson, MH. The use of consumer injury registry data to evaluate physical abuse. Child Abuse and Neglect. 1988;12:25-31.

13) Shane SA, Fuchs SM. Skull fractures in infants and predictors of associated intracranial injury. Pediatr Emerg Care. 1997 Jun;13(3):198- 203.

14)Browne GJ, Lam LT. Isolated extradural hematoma in children presenting to an emergency department in Australia. Pediatr Emerg Care. 2002 Apr;18(2):86-90.

15) Goldsmith W, Plunkett J, A Biomechanical Analysis of the Causes of Traumatic Brain Injury in Infants and Children. The American Journal of Forensic Medicine and Pathology. June 2004,Vol. 25 No. 2:89-100

16) Piatt JH. A Pitfall in the Diagnosis of Child Abuse: External Hydrocephalus, Subdural Hematoma, and Retinal Hemorrhages. Neurosurg Focus 1999:7(4).

17) Denton S, Mileusnic D. Delayed Sudden Death in an Infant Following an Accidental Fall. American Journal of Forensic Medicine and Pathology December 2003: Vol. 24 No. 4:371-6.

18) Simon B, Letourneau P, Vitorino E, McCall J. Pediatric minor head trauma:indications for computed tomographic scanning revisited. J Trauma. 2001 Aug;51(2):231-7; discussion 237-8.

19)Mandera M, Wencel T, Bazowski P, Krauze J. How should we manage children after mild head injury? Childs Nerv Syst. 2000 Mar;16(3):156-60.

20)Stein SC, Young GS, Talucci RC, Greenbaum BH, Ross SE. Delayed brain injury after head trauma: significance of coagulopathy. Neurosurgery. 1992 Feb;30(2):16.

21)Ros SP, Cetta. Are skull radiographs useful in the evaluation of asymptomatic infants following minor head injury? Pediatr Emerg Care. 1992 Dec;8(6):328-30.

22)Hahn YS, McLone DG. Risk factors in the outcome of children with minor head injury. Pediatr Neurosurg. 1993 May-Jun;19(3):135-42.

Competing interests: Know the Falsely Accused and the Devastation Heaped Upon Them and Their Families at the Hands of a Dogma

Re: 106 Signatures and competing interests 29 May 2004
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John D Stone,
none
London N22

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Re: Re: 106 Signatures and competing interests

It is interesting to consider the present letter in relation to a report by Liam McDougall in the Sunday Herald (9 May 2004) 'Testimony of child abuse experts under new scrutiny'.

According this report the Royal College of Paediatrics and Child Health is to host a review by "50 eminent US padiatricians" and "will be the first time that the opinons of witnesses in child care cases will effectively be "peer reviewed" to establish their reliability". It will "examine the transcripts of recent high-profile child abuse cases [sic] to review the quality of evidence given by expert witnesses on both sides. The study aims to lead to better quality witnesses in the wake of the recent cases of Angela Cannings, Sally Clark, Trupti Patel and Mark Latta - all were acquitted of murdering their children"...(Dr Harvey) Marcovitch said the Royal College had been approached by around 50 US padiatricians - led by Professor David Chadwick of the University of Utah [a signatory to the present letter] - who were concerned that the "British child protection procedures were in danger of breaking down".

These paediatricians certainly know how to organise.

Competing interests: None declared

Re: 106 Signatures and competing interests 29 May 2004
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Michael D Innis,
Director Medisets International
Home 4575

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Re: Re: 106 Signatures and competing interests

Editor,

Dr Mark Donohoe expresses concern at the legitimacy of the letter of Professor Reece and 105 other doctors in that they failed to declare any conflict of interest. I have the court reports of some of them sent to me for my opinion and I agree failure to disclose this information leaves open the question of the validity of their claim of bias in the Editorial of Drs Geddes and Plunkett.

Michael Innis

Competing interests: I have given evidence in Court on this subject and been paid for it.

Re: Re: 106 Signatures and competing interests 30 May 2004
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John D Stone,
none
London N22

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Re: Re: Re: 106 Signatures and competing interests

I am happy to note that according to a reliable source the Royal College of Paediatrics and Child Health will not be inviting 50 eminent US padiatricians to review the data in alleged child abuse cases, as reported in Sunday Herald (9 May) and quoted by myself in my Rapid Response above. Apologies particularly to Harvey Marcovitch if - as seems likely - the paper quoted him out of context.

Competing interests: None declared

A self-perpetuating oligarchy? 31 May 2004
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John D Stone,
none
London N22

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Re: A self-perpetuating oligarchy?

In a newspaper article this weekend [1] Simon Crompton writing of the mounting cost of the expert witness business concludes:

"The solution could lie in appointing a single expert to weigh both sides of a case - a practice already adopted in some civil cases. Or it could be introducing a system in which an an expert consensus is gained before a case begins - a proposal being considered by a Royal College of Paediatrics working party."

In effect no transparency, no accountability and a trial in which the result is already predertermined. No doubt the Legal Services Commission will love it.

[1] "Expert witness: The evidence against the experts", The Times 29 May 2004.

Competing interests: Member of the public

theory verses certain knowledge 4 June 2004
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CA Johnson,
parent
LA9

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Re: theory verses certain knowledge

There are some people on this planet who know for certain that Drs Geddes and Plunkett are right and that Professor Reece and his 105 are wrong. They are the parents and carers falsely accused of murder or assault by "shaken baby syndrome".

They also know that the stance taken by Reece and fellow signatories is thwarting preventative care for vulnerable infants.

One day, when this certain knowledge is shared by all, including the most reluctant, we will be able to return to this debate, identify the reluctant by their names and dogma, and ask them precisely what their motives were. Two things they will never have sound cause to claim are a) that they caused no harm, and b) that no one told them.

Competing interests: None declared

Confessions are not evidence 5 June 2004
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Arnold D. Wadle,
none
4630 Forge Road, Colorado Springs, CO 80907

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Re: Confessions are not evidence

Dr Reece seems to be the true source of worrisome and persistant bias. His response denies the fundimentals of physics and finally relies on "confessions" of shaking. Given the well known coercion by law enforcement to get confessions, zero credibility should be given to confessions.

Arnold D. Wadle' Spouse of a wrongfully accused.

Competing interests: None declared

Re: Confessions are not evidence 6 June 2004
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John P Heptonstall,
Director of The Morley Acupuncture Clinic and Complementary Therapy Centre
LS27 8EG

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Re: Re: Confessions are not evidence

Sir

Is it not also true that in order to obtain early release from prison British 'justice' requires a 'confession' from the prisoner before an early release can be considered?

This would provide a dilemma it is impossible for one who is not in that position to appreciate - does the innocent parent wrongly convicted remain in gaol 'indefinitely' or admit to the offence to return to the family he/she had been inappropriately removed from? The guilty would not have such a dilemma.

Admission of guilt during due process is a different matter and, barring any untoward action or omission by the authorities that could have influenced the admission by the accused or if the accused were 'temporarily relieved of his/her sanity' due to the circumstances, must weigh heavily against the accused.

It would help if those who use 'admission of guilt' to condemn an accused were to clarify when the admission took place and what was the current state of mind of the accused when the admission was made - this should not be difficult for a caring physician?

Regards

John H.

Competing interests: None declared

Nor are convictions in the criminal courts, or findings of fact in the family courts 6 June 2004
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Brian Morgan,
Freelance Journalist
Cardiff CF11 6LF

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Re: Nor are convictions in the criminal courts, or findings of fact in the family courts

Findings of fact in the family courts and convictions in the criminal courts have been cited in biomedical literature in support of suggestions for assessment of child abuse.

Both categories are subject to review. How should the literature be amended?

Would experts care to discuss?

Competing interests: I make programmes and write on the subject for payment.

Re: Re: Confessions are not evidence 7 June 2004
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Hilary Butler,
freelance journalist
Home 1892, N.Z.

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Re: Re: Re: Confessions are not evidence

Dear Sir,

There is a problem with the concept of "confessions are not evidence".

I propose that to most medical experts in SBS cases, repeated assertions of innocence are considered confessions of guilt.

After all, I have heard it with my own "ears"... a renowned specialist standing on oath, saying this very fact. That denial is the main way he knows a mother/father killed their child.

When asked on what grounds he could assert that, he said words to the effect "Because I know the mind of a murderer after all these years..."

How interesting.

So I presume then, by the same logic, if I stood up in court and said "I didn't steal something" repeatedly, I would be guilty?

It is very difficult for the average parent in such cases to get their heads around the medical concept or reality of what constitutes either evidence or honesty.

Especially when they appear to define the parameters to suit themselves.

We see parents jailed all the time without one shred of autopsy or medical evidence to prove that it was SBS. And in most of these cases, the careful analytic cases put forward by defence witnesses are studiously ignored.

It's almost as if the judges or jury are totally overwhelmed by the thought that it was something else...

The whole basis of the evidence base for shaken baby syndrome is fraught with posturing, pride, position and prestige, and until such times as we can get rid of the the medical pomp and the prejudice as well, and realise that the "fallacy of authority" ( as well as many other fallacies) is rampant here, there will be no progress made.

It is a sad state of affairs, that the experts who so parsimoniously pontificate about their "evidence" being the "only" and the "right" evidence, have no idea that in the eyes of those who know they are innocent, and later proven innocent, they are making asses of themselves.

It's not good enough to claim that experts "made" mistakes in X cases. It seems to me, that actually, experts have a predetermined twisted and convoluted idea of what really does constitute evidence.

The rate things are going now, with the medical profession, parents worldwide are starting to realise that taking any baby with even one bruise to a doctor, could start a selective cascade of innuendo and accusation, that gains the litigious life of a runaway train. Not to mention leaving them bankrupt.

And if that's the way the medical profession wants it, well.. beggar me. I would have thought they would have more sense.

Hilary Butler.

Competing interests: None declared

Thanks for this article. 7 June 2004
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Linda D. Skinner,
none
80918

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Re: Thanks for this article.

I appreciate the article on shaken baby syndrome SBS for it's objectivity. People should be aware that SBS is a very subjective issue.

Competing interests: None declared

First Hand Account-Dr Reece Open Your Mind 12 June 2004
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Mark D Sundloff,
Day Care Provider's Husband
Washington DC 20004

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Re: First Hand Account-Dr Reece Open Your Mind

My wife and mother of 3 adorable children was arrested and accused of baby shaking a 3 month infant. My wife was a daycare provider in our home for 6 years and ran a successful business with letter after letter of recommendations from 20 parents. She was the model baby sitter and always took quick precautions in all areas of health issues regarding our babies and the families she tended too. Yet when this baby suffered a seizure in our home, of unknown origin, and later died,the doctors, CPS, and the local police just could not wait to get their hands on her. She only had the baby 4 hours and he mostly slept. Yet the accusation was she shook the living daylights out of him to wake him up!!! When you are watching 4 children for a living , when they are sleeping, you let them sleep. The whole ordeal was proposterous.

My wife won her court battle. She was proven innocent. Why? Because it was completely obvious that my wife, by all of her prior history, experience, certification, and her unherald natural ability as a wonderful mommy and care giver, all came shining through.

Some of the symptoms of baby shaking were present-brain swelling, retinal hemmorages, but there was no bruising, or finger marks. No obvious signs of abuse. Just some fable information that has never, ever been verified first hand.

I stood strong by wife and if there was in sign of guilt, I would of known it. So Dr Reece, put yourself in my shoes, what if it was your wife being condemned, would you want all your beliefs on the line?

Mark Sundloff msundloff@att.net

Competing interests: None declared

SBS Proponents Should Disclose Funding 12 June 2004
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Tracy L. Emblem,
Appellate Research Attorney
205 W. Fifth Ave., Suite 105, Escondido, CA 92025

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Re: SBS Proponents Should Disclose Funding

I have been researching head injury for the last three years. The Shaken-Baby diagnostic prosecution testimony varies from courtroom to courtroom. There is no set diagnostic criteria. The emergence of moral causes, or ends that justify the means, such as "end child abuse," contributed greatly to the breakdown of prosecutorial restraint and courtroom inquiry in the U.S.

We all know that various forms of child abuse occurs. However, the current debate is not about child-protection or child abuse, but about the medical science of Shaken-Baby Syndrome. A medical theory is not infallible. Medical theories are only as good as the foundation on which they are based. If physicians cannot question medical theories without being impugned, who will be able to demonstrate an erroneous medical diagnosis?

I write to follow up on Mark Donohoe’s Rapid Response questioning the competing interests of the 106 SBS proponents. The National Center on Shaken-Baby Syndrome is in Ogden, Utah, USA. Some of the international advisory board members in 2001, were Robert Reece, MD., Ronald Barr, MDCM, David Chadwick, M.D., Alex Levin, M.D.,and Det. Chief Inspector Philip Wheeler, England.(1)

The Reece, et al. 106 proponents lash out at those who dare to question the science behind their "medical diagnosis." Why?

Let's examine some of the doctors potential competing interests, and ask, do they have any financial interest or other motive to promote SBS?

Dr. Reece, of course, is an international advisory board member. Dr. Ronald Barr also appears to benefit from promoting Shaken-Baby. Just recently on June 7, 2004, the National Center announced a $1.5 million dollar grant secured for the "purple crying" program. Some of the funding goes to the National Center, Harborview Injury Prevention and Research Center, and Dr. Barr, principal investigator and their affiliated organizations.(2)

Dr. Chadwick, another advisory board member, is calling for $10 million in SESPA funding which includes funding for SBS "research."(3) Chadwick is associated with the Intermountain Injury "Research" Center, an organization that helps to fund the National SBS Center.(4)

On May 9, 2004, the Herald News reported that the Royal College had been approached by approximately 50 U.S. pediatricians – led by Dr. Chadwick of the University of Utah. Their purpose is to "investigate" expert medical witnesses' testimony from U.K. cases.(5) Why is it so important to critique or silence any medical expert who disagrees or questions their medical diagnosis and the science behind it?

Inspector Phillip Wheeler had never heard of Shaken-Baby Syndrome until Autumn 1997, when he was introduced to the National Shaken-Baby Center in Utah.(6) In March 2001, Wheeler brought in Chadwick to help prosecute a case where an alleged shaken baby fell falling from a couch. Wheeler now serves on the Center's international advisory board and Shaken -Baby is well on its way of becoming a national epidemic in the U.K. like it is in the U.S. One has to ask, is Shaken-Baby research and diagnosis based on medical science or is it a "research" funded driven theory?

One of the 106 signatories, Rachel Berger, M.D., is an assistant investigator of a $4.4 million, 5-year grant to study inflicted traumatic brain injury.(7) Another, signatory, Des Runyon, M.D., according to his curriculum vitae, has assisted or secured $45 million in grants in the last ten years.(8) One head injury study produced shows Hurricane Floyd boosted abuse and non-abuse brain injuries in children.(9) I have to ask the medical/science community - What is the scientific causal connection to abusive head injuries and a hurricane?

These are just a few of the 106, who, from a simple internet search, appear to have competing financial interests in promoting SBS. Mark Donohoe suggests the Journal Editors should ask the signatories to disclose their competing interest in the future. BMJ should challenge the 106 signatories to disclose their funding amounts for SBS research and their funding sources in the last ten years.

Tracy L. Emblem, Esq.

1. http://www.dontshake.com/quarterly/sbsspring01board.html

2. http://www.send2press.com/PRnetwire/pr04_060702-ncsbs.shtm

3. http://www.stop-shaken-baby.com/SESPA.php

4. http://iicrc.med.utah.edu/projects/default.htm

5. http://www.sundayherald.com/41868

6. http://www.homeoffice.gov.uk/docs/shakenbabyintroduction.pdf

7. http://www.neurosurgery.pitt.edu/research/pro jects/clinical_research/circl_infant_trauma.htm

8. http://www.sph.unc.edu/iprc/aboutiprc/

9. Published in American Journal of Preventive Medicine, Volume 26, Issue 3 , April 2004, Pages 189-193.

Competing interests: None declared

Re: SBS Proponents Should Disclose Funding 13 June 2004
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Peter J Stephens,
Retired pathologist
Burnsville, NC 28714 USA

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Re: Re: SBS Proponents Should Disclose Funding

Financial disclosure should also be routinely asked of witnesses in court, on both sides. SBS defendants are almost invariably indigent. Public defender offices operate on budgets far smaller than those of the prosecution. Many, if not most, of the experts who I know consult and testify either pro bono or for drastically reduced fees or for expenses only. On the other hand, prosecution witnesses are normally paid handsomely, either by the prosecuting agency or the government grant that funds their "Child Abuse Center".

Competing interests: Have testified in court on both sides of this issue, both paid and pro bono for over twenty five years.

Re: Re: SBS Proponents Should Disclose Funding 14 June 2004
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HEATHER LOHR,
parent
Huntingdon, PA 16652 USA

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Re: Re: Re: SBS Proponents Should Disclose Funding

It has also been my personal experience that many defense witnesses do not charge or ask only that their expenses be reimbursed.

This would remove financial incentives from any motivation to testify. What is left then? OH, maybe just that they believe in justice and want to see it prevail.

Thank you to the doctors who believe so strongly that they will travel across the country to help people they do not have to. Thanks for not turning your backs on the falsely accused.

Competing interests: MOTHER OF CHILD FALSELY ACCUSED OF BEING ABUSED

SBS EVIDENCE FLAWED - INJUSTICE RIFE 14 June 2004
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Michael D Innis,
Honorary Consultant Haematologist
Home 4575

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Re: SBS EVIDENCE FLAWED - INJUSTICE RIFE

Editor,

Brian Morgan notes that findings of fact in the family courts and convictions in the criminal courts have been cited in biomedical literature in support of suggestions for assessment of child abuse. Both categories are subject to review and asks “how should the literature be amended?”

Based on my analysis of the records of 22 such cases I suggest the following amendments be made to ensure Justice in both the family and criminal courts:

1.The publication entitled “The Fabricated or Induced Illness Report” put out by the Royal College of Paediatrics and Child Health contains such statements as “Frank bleeding from the nose or mouth is significant of physical intervention, and to be distinguished from blood tinged secretions.” This and several other statements are likely to mislead the inexperienced with limited knowledge of haemostasis and should not be admitted as evidence of child abuse in the law courts.

2.The diagnosis of Shaken Baby Syndrome (SBS) is a fabrication and should no longer be considered a valid diagnosis. From evidence I have all the alleged cases of Shaken Baby Syndrome can be accounted for by the following:

a.Adverse reaction to a vaccine administered within 21 days of the onset of symptoms. (Check the history, Vitamin C and Histamine in the blood)

b.Haemorrhagic Disease of the Newborn or, more correctly, Vitamin K Deficiency Bleeding.(Check PT, APPT and PIVKA)

c.Malabsorption or Malnutrition which is often associated with low birth weight and prematurity (Check Serum ALBUMIN, UREA, ALKALINE PHOSPHATASE and ESSENTIAL AMINOACIDS)

d.Infections – both viral and bacterial (Check for EB Virus and perform test for C-Reactive Protein and FBC. CSF, Blood and Urine cultures)

e.Liver disease causing deficiency of clotting factors.(Check AST, ALT, GAMMA GT, PT, APTT, PIVKA)

f.Vasculitis including Kawasaki Disease and Microscopic Polyangiitis (Check AST/ALT, p-ANCA, c-ANCA and AECA)

While I do not have any cases of Alloimmune Thrombocytopenia, Bernard -Soulier Syndrome, Prekallikrein deficiency and other exotic bleeding or congenital disorders among the cases sent to me it is imperative that they be considered before making the erroneous diagnosis of Shaken Baby Syndrome.

I can produce documented evidence to support each of the categories, a – f, and I invite Professors Reece, Craft and Hall and the other 105 doctors [1,2] who believe SBS is not fabricated to produce a SINGLE case which cannot be accounted for by the conditions listed above.

If they cannot do so they should admit the diagnosis ‘Shaken Baby Syndrome’ has no legitimacy and should be abandoned forthwith. But judging from the huge financial considerations recorded by Tracy Emblem [3] it is unlikely they will do so and the only alternative is for the Law Courts in England, America and Australia to ignore a diagnosis of SBS as a Brisbane Court ignored MSBP as a diagnosis.[4].

Because it is necessary to restrict the word count one can look up 'Laboratory Medicine' The Selection and Interpretation of Clinical Laboratory Studies Edited by Noe DA and Rock RC. for the abbreviations.

Michael D Innis MBBS; DTM&H; FRCPA; FRCPath. Honorary Consultant Haematologist, Princess Alexandra Hospital Brisbane Australia.

References

1.Reece RM The evidence base for shaken baby syndrome: Response to editorial from 106 doctors BMJ, May 2004; 328: 1316 - 1317.

2.Craft AW, Hall DMB Munchausen syndrome by proxy and sudden infant death BMJ, May 2004; 328: 1309 - 1312

3.Emblem TL SBS Proponents Should Disclose Funding http://bmj.com/cgi/eletters/328/7451/1316#62462,

4.R v LM ttp://www.courts.qld.gov.au/qjudgment/ca04_151.htm (192)

Competing interests: As previously declared

Changes 17 June 2004
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Lisa C Blakemore-Brown,
Psychologist
UK

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Re: Changes

Today a leading proponent of parent blame theories was charged with abusing his professional position. David Southall claimed that his own small study on nose bleeds led him to the solid conclusion that a man he saw on a TV programme talking about his child having a nose bleed had killed his children, this man's wife already locked up for this. There was absolutely no basis to his deeply held beliefs.

The astonishing conclusions are echoed in so many cases in which parents are blamed in a cavalier manner for causing their childrens' illnesses, often iatrogenically induced. I informed the Government before they were even the current Government about this shocking state of affairs in another case.

The obvious has been ignored, the enigmas embraced. This must stop.

Competing interests: Specialist in ASD and ADHD disorders

Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice 20 June 2004
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Alan R. Yurko,
X13917 - CCI
400 Tedder Road, Century, FL 32535

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Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice

Reece et al display a worrisome and persistent bias against the diagnosis of child abuse which can lead to malpractice (inter alia). Certainly, parents and others abuse children, and certainly, the violent shaking of infants can have injurious sequelae. Drs. Plunkett and Geddes do not appear to dispute this in any of their publications or testimonies. What is worrisome is that Reece et al appear to endorse and embrace a zealous position on myriad presentations of potential child abuse especially surrounding pediatric head injury and the so-called shaken baby syndrome (SBS). Rather than seek and perpetuate stringent and critically objective conclusions from medical literature and their clinicianship, it seems they’ve taken a persistent bias that excludes any margin of error in their theories and hypotheses. This inability to be objective, and consequent disregard for scientific method, should be a grave concern to the medical and legal communities. True objectivity would attempt to disprove one’s own hypotheses. Reece et al seem more intent on defending unproven theories of causation and etiology. Perhaps Reece et al have forgotten the tenets of scientific method? Perhaps they fear, with good reason, that the fate of Meadows et al will befall them?

Statistically, one must wonder how many cases of child abuse have been misdiagnosed by Reece et al. Even objectivity of the purest nature will have a margin of misdiagnoses. That margin multiplies when bias and zealousy are factors. How many innocent people are in prison? How many families have been destroyed? How many children died because a proper diagnosis wasn’t made, thus preventing proper therapeutic intervention? How many diagnoses of child abuse are really malpractice?

I have been intimately involved in this field for seven years. I was wrongly convicted of murder due to SBS. Over the years, we (myself and medical experts) discovered that our Chief Medical Examiner, Shashi Gore, MD, cross-contaminated my son’s autopsy with tissue samples and data that were not my son’s. Dr. Gore has met a similar fate as Meadows et al. The Florida Department of Law Enforcement and The Florida Medical Examiners Commission ruled in our favor and has barred Shashi Gore from ever doing autopsies again. The courts have scheduled a hearing and my exoneration is imminent. Other evidence of malpractice and misdiagnosis has been uncovered as well. My son is dead. My daughter was taken from my wife and molested in foster care. We were treated as pariahs and the malpractice destroyed our family, utterly.

Interestingly, I have personally contacted 88 of the 106 doctors, including Reece. I asked each one to look at the case objectively. Not one would do so. Several (n=11) "offered" to review the records but "needed" an average of $5,000 to $8,000 (USD) as a "retainer" (non-refundable) and then "work" at an average hourly cost of $400 to $600 per hour. The price of objectivity is certainly outrageous with Reece and a majority of his colleagues. Some of Reece’s colleagues have even tried to stifle the new evidence and malpractice involved in my case.

I pray that Reece et al take pause. Their worrisome and persistent bias will have dire consequences for children, families, and possibly the cost of 106 doctors’ malpractice insurance.

(This response was transcribed by Susan E. Kreider, RN, CPC for Mr. Yurko.)

Competing interests: Alan Yurko is co-founder of The Yurko Project which advocates for wrongly accused parents, persons, and families in child abuse cases concerning pediatric head injury and the so-called shaken baby syndrome. The Yurko Project has assisted over 100 families and has aided both prosecution and defense, as well as courts.

Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice 23 June 2004
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Michael D Innis,
Director Medisets International
Home 4575

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Re: Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice

Editor,

“When Truth and Error clash the perception of both is made clearer”[1]

Alan Yurko draws attention to the worrisome and persistent bias of Reece et al.

If Reeece et al,[2] believe SBS and NAI are not fabricated diagnoses let them produce a single case in which Vaccination, Haemostasis, Nutrition, Liver disease and Infection played no part.

If the RCPCH required proof of the absurdity of their advice “Frank bleeding from the nose or mouth is significant of physical intervention, and to be distinguished from blood tinged secretions”[3] they have it in the findings of the GMC in the Southall case.

Bleeding from any site - mouth, brain, retina or skin can occur, as Professor Clements points out, in Barlow’s disease precipitated by vaccination of a susceptible child.[4]

The conditions Shaken Baby Syndrome and Non-accidental Injury (as it applies to infants) are, for the most part, fabrications.

Some Paediatricians are planning to “peer review” the credentials of those giving evidence in cases of alleged child abuse. The “peer review” is a subterfuge by these individuals to set up Kangaroo Courts in England, America and Australia. They fear their mistaken diagnoses may be exposed.

Professors Reece, Craft, Mann and 105 others asserting the authenticity of SBS are now silent in spite of the diagnosis they espouse being claimed to be fabricated. Have they no answer for Professor Clement and Alan Yurko?

Why?

Michael Innis

Reference:

1.I have mislaid the name of the author. Perhaps one of your readers can remind me.

2.Reece RM The evidence base for shaken baby syndrome: Response to editorial from 106 doctors BMJ, May 2004; 328: 1316 - 1317.

3.The Fabricated and Induced Illness Report Report of the Working Party of the Royal College of Paediatrics and Child Health November 2001 p 22

4.Clemetson CAB. Barlow’s Disease Medical Hypotheses (2002) 59(1) 52- 56

Competing interests: I agree with Alan Yurko

Re: Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice 24 June 2004
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Michael D Innis,
Director Medisets International
Home 4575w

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Re: Re: Re: Reece et al’s Worrisome Bias and Persistent Zealousy: Malpractice

Editor,

I wish to offer my apologies to Professors Reece and Clemetson for spelling their names incorrectly.

Michael Innis

Competing interests: None declared

Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT! 5 August 2004
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Donna L Meads-Barlow,
Mother and Company Director
Sydney, NSW 2113

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Re: Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT!

As a mother who went through the agony of temporarily loosing custody of my infant son, and nearly loosing custody of him forever, because it was wrongly claimed, he had been shaken, I understand how other similarly charged parents’ feel and suffer. I am therefore morally obliged to do whatever is possible to prevent this happening to other parents and carers unnecessarily.

In Australia, health workers, and others, are legally compelled to notify authorities, such as The Department of Youth and Community Services and the police, when there is evidence or suspicion of abuse – and this includes what has become known as ‘shaking’.

Unfortunately, few individuals understand the complexity of the issues involved. Often, from the beginning, a decision is made that the ‘cause’ of the problem is ‘shaking’, and there is no need to proceed through what should be the routine of what is known as a ‘differential diagnosis’. This involves a consideration of all possible causes, the collection of evidence and the performance of an array of special medical investigations.

Unfortunately this procedure is rarely followed. Worse still, as recent cases demonstrate, prosecuting witnesses sometimes deliberately withhold information, invent information, become extremely careless, break many of the rules relating to the collection and interpretation of evidence – and escape relatively unharmed when one compares their fate with the sufferings of those falsely, or wrongly, accused and charged.

In medical journals throughout the world the vastness of information that is pertinent to the pathologies found in so-called ‘shaken babies’ is impressive. This should be collected, carefully considered, and made ‘compulsory reading’ for all those involved in the investigation of cases. I have no doubt that, if this is done, justice will be served, and we will emerge from one of the darkest pages in the history of medicine into a better understanding of the nature of infant illnesses.

To begin, I suggest that the following investigations be considered:

Case history - including family history, pregnancy, labour, birth, and continue to the time of collapse, recovery or death.

The number of medical consultations, including those with nurses and specialists.

Reasons for these consultations.

Feeding, and gastrointestinal problems, including diarrhea

Antibiotics administered and reasons for why

All medications administered, Reasons why. Were there side effects or potential side effects? Were parents properly counselled about this?

All medications administered and reasons why. Was counselling about side effects provided to the parents?

Vaccine history including batch numbers in case some were known to be ‘hot’ batches. That is known to have produced excessive side effects.

Eardrums. Inspect on admission, and daily. If an infant dies both middle ears should be inspected during the autopsy and swabs taken to enable tests for bacteria and viruses. At the same time, if excessive fluid is present some should be collected and tested for endotoxin levels

Perform and record electroencephalogram, electrocardiogram, CT scan, MRI, brain ultrasound, Ophthalmic investigations, including retina, Retcam (retinal photographs), head circumference (repeat daily”, pupil size, record and repeat as necessary.

Neurological observations.

Skeletal survey – if possible.

Endotoxin levels in blood, and, if prudent, in the CSF.

Look for 'toxic' strains of gut bacteria. These produce excessive amounts of endotoxin. If an autopsy is performed light and electron microscope studied may reveal the presence of toxic strains and the damage done to the gut.

Look for abnormal gut viruses

Genetic testing of patient, parents, and siblings.

When ‘fractures’ exist, light and electron microscope studies of bones, including epiphyseal and fracture areas. This is recommended because, sometimes, fractures can be due to bone disorders related to the effects of endotoxin and an increased utilization of Vitamin C.

Extensive coagulation/bleeding profiles, including (despite some difficulties) platelet functions, capillary fragility, and bleeding time.

Blood levels of Vitamin C and histamine

Von Willebrand factor

Factor x111

Vitamin K levels.

D-dimer levels – to the end-point.

Liver and kidney functions

Bruise should be carefully examined, during life and autopsies – despite known difficulties. This includes (during autopsies, cutting into the areas, and light and electron microscope examinations.

Glutaric acid levels.

Some of these tests are expensive and laboratories will need to establish the necessary facilities. The alternative is to jail some innocent individuals for long periods and destroy their families.

If the doctors involved in the investigation of cases do not agree to do these tests, and satisfactory reasons for such actions are not produced, charges of negligence should be set in motion.

Parents claiming to be innocent should be entitled to know why these tests are not being done. During the 2001 International Conference on the Shaken Baby Syndrome, in Sydney, I asked Dr Ryan, who often gave evidence as an expert for the prosecution, why extensive tests were not done and he answered, in a packed lecture theatre, ‘Its too expensive’. My response was, ‘Then why are the parents and family not offered the opportunity to have these tests performed at their own costs?’ There was no answer.

Clearly, if parents and carers are innocent, and doctors and authorities claim that the cause of the pathologies is ‘shaking’, the only option available is to demand that tests be done. Furthermore, if tests are not done quickly, at the time of admission, as time goes by the presence of some causes may be absent or masked.

Despite the fact that retinal haemorrhages alone are not necessarily diagnostic of ‘shaking’, experts have been allowed to offer the opposite opinion without demonstrating that all other possible causes have been eliminated. This is medical and legal lunacy. The claim that certain ‘types’ of retinal haemorrhages are diagnostic is also a falsehood.

A PERSONAL NIGHTMARE

I was 5 months pregnant with my son, Codey, when our daughter developed diabetes.

At the 6 months stage I was found to have borderline gestational diabetes, and iron deficiency.

Codey’s birth-date, after an induction, was on February 28, 2000. He was artificially fed, and then quickly developed gut problems. His paediatrician found it necessary to change the formula 3 times in the first 2 months.

Progress was not normal. May 5, 2000, developed cold/flu

May 8, 2000, vaccinations – DPT, Polio, and HIB

Mid May 2000, Nasal congestion, trouble breathing – chest checked.

Early June 2000, Bronchiolitis and productive cough.

Mid June 2000, Bronchiolitis, fever, productive cough.

Antibiotics administered

June 21, 2000, Back to GP, a level of distress, concern about cry –query pneumonia, inflamed eardrums.

June 21, 2000, attends paediatrician. No improvement on antibiotics. Chest X-ray, otitis media. For check with GP in 6 days.

Deteriorates, extremely high temperature, crying, and severe coughing.

June 26,2000, Grand mal seizure. Admitted to hospital.

1st admission High temperature on arrival of ambulance.

Blood taken for tests on day of admission. These showed a leucocytosis, reactive thrombocytosis, high platelet count, high white cell count, and high glucose level. Intravenous drip. Antibiotics administered intravenously. Panadol and painstop administered frequently, alternatively.

Discharged June 30, 2000 – on augmentum for 8 days. Panadol and painstop continued.

Between June 30 and July 11, continues to have fevers, crying, back arching, little improvement. Antibiotics, panadol and painstop continued.

June 11, 2000, taken to GP. Given the ‘4 month’ DPT/polio and HIB, DPT/polio and HIB boosters

High temperature followed, arched back, crying. Panadol and painstop prescribed by paediatrician.

July 12, second admission. Another seizure. Hospital records show ‘Post vaccination febrile convulsion’.

Managed with pulmonary resuscitation, and high flow oxygen. Likely cause for seizure was said to be fever - post vaccination.

At this point Codey was not weighed. An overdose of antibiotics was administered intravenously. Next morning the consulting physician stopped this medication.

24 hours after admission Codey was diagnosed as a ‘shaken baby’.

Immediately, all tests were stopped. The authorities were called in, and we began a roller coaster ride that threatened to destroy our family.

Codey was removed to unknown foster care. – A day we will never forget!

August 4, similar presentation to that of July 12. Foster carer could not be located. Codey was hungry, and no formulae was available. Codey had a rash on his back, was unsettled, crying, and had loose, green and offensive stools.. A list of what was not done is as follows:

No blood tests

No liver tests

No ECG

No EEG

No MRI No CT scan

No brain ultrasound

No eye examination

No measurement of head circumference

No neurological monitoring

No pupil scale record

No skeletal survey

No intensive coagulation/bleeding studies.

13 months of court battles followed. Legal fees were $150,000. The effort involved was huge. It was as if we spent 25 hours a day and 8 days every week researching the literature so that we would at least understand what was going on in Codey’s little body. What we found was certainly not pretty. It was, in reality, a nightmare of unbelievable proportions.

The cause of what happpened? It was not something that we had done. It was not something that that was unknown. It was ‘the system’ that indoctrinated doctors, and others, in a way that closed all the doors to understanding and fed poison into the minds of those who were supposed, because of their special skills and training, to know better.

We know that Codey was never shaken.

We know that statements like, ‘Codey was a previously well baby’, were ludicrous to the extreme.

We know that only standard coagulation/bleeding profiles were done at admission, and never repeated.

We have reasons to believe that medical negligence contributed to the pathologies.

We know that the diagnosing paediatrician (who provided the evidence that was relied on for the diagnosis of ‘shaking’) later admitted that he should have carried out extensive coagulation tests, inclusive of testing for Factor X111 abnormalities.

The Department of Youth and Community blamed the hospital for errors. The hospital blamed that department.

Codey is now home and reunited with our family unit. He is safe, well, and has never been vaccinated again or prescribed antibiotics.

Our family believes in, and praises, the immunization schedule. However, we also believe that, for some children, immunizations can cause a number of side effects, (as stated in the TGA records), specifically when combined with other toxins and illnesses.

We also know that, today, as I write, sadly, there are innocent Australian families currently caught in the system and while in the system (ie, the Children’s Court) no-one can, and will, assist or intervene – even though those charged are innocent. The cry of HELP falls on deaf ears. There is no support, nowhere to turn! Hundreds of thousands of tax payer’s dollars, could be saved if SBS diagnosing physicians took greater care. I know. I have been there!

A few weeks ago in England, news-papers headlined, ‘Scotland Yard changes tact over suspicious baby deaths’ (Sandra Laville, Wednesday July 14, 2004, The Guardian). I was delighted to read this, and learn that UK authorities are progressing towards the reversal of unlawful convictions for what was stated to be the ultimate crime – shaking a baby to death.

Wrongly accused mother's like Angela Canning’s, Sally Clark and Trupti Patel, have, at last, through the efforts of a handful of dedicated individuals, been freed, physically and mentally, from terrible accusations.

The English authorities have stated, in response to criticism, that they now intend to ‘get it absolutely right, and that these investigations are something which need expertise and particular skills’. I quite agree!

I believe that it is possible to shake a baby to death. I also know that, often, there are causes for the pathologies that have nothing to do with inflicted trauma.

BOTTOM LINE

We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT!

If authorities do not agree with what I have stated, particularly because there is a huge amount of supporting literature, they could be, and should be, regarded as being negligent. If they refuse to perform adequate tests, not pay adequate attention to case histories, and simply farm out the problem to individuals or organizations that are not properly qualified to handle the issues, they should be compelled to provide reasons for such actions – or face legal actions. They should not be allowed to wash their hands and walk away.

References:

1. Greenwald MJ, Weiss A, Oesterle CS, Friendly DS Traumatic retinoschisis in battered babies. Ophthalmology 93(5):618-625, May 1986

2. Vanderlinden RG, Chisholm LD Vitreous hemorrhages and sudden increased intracranial pressure. J Neurosurg. 1974 Aug;41(2):167-76

3. Tomasi LG, Rosman NP Purtscher retinopathy in the battered child syndrome Am J Dis Child. 1975 Nov;129(11):1335-7

4. Pollack JS, Tychsen L Prevalence of retinal hemorrhages in infants after extracorporeal membrane oxygenation. Am J Ophthalmol. 1996 Mar;121(3):297-303

5. Goetting MG, Sowa B Retinal hemorrhage after cardiopulmonary resuscitation in children: an etiologic reevaluation. Pediatrics 85(4):585 -588, April 1990

6. Weedn VW, Mansour AM, Nichols MM Retinal hemorrhage in an infant after cardiopulmonary resuscitation. Am J Forensic Med Pathol. 1990 Mar;11(1):79-82

7. Adetona N, Kramarenko W, McGavin CR. Retinal changes in scurvy. Eye. 1994;8 ( Pt 6):709-10

8. Bloxham CA, Clough C, Beevers DG. Retinal infarcts and haemorrhages due to scurvy. Postgrad Med J. 1990 Aug;66(778):687

9. Biousse V, Mendicino ME, Simon DJ, Newman NJ The ophthalmology of intracranial vascular abnormalities. Am J Ophthalmol. 1998 Apr;125(4):527- 44.

10. Biousse V, Newman NJ. Intracranial vascular abnormalities. Ophthalmol Clin North Am. 2001 Mar;14(1):243-64

11. Beratis NG, Varvarigou A, Katsibris J, Gartaganis SP Vascular retinal abnormalities in neonates of mothers who smoked during pregnancy. J Pediatr. 2000 Jun;136(6):760-6

12. Budenz DL, Farber MG, Mirchandani HG, Park H, Rorke LB Ocular and optic nerve hemorrhages in abused infants with intracranial injuries. Ophthalmology. 1994 Mar;101(3):559-65

13. Weissgold DJ, Budenz DL, Hood I, Rorke LB Ruptured vascular malformation masquerading as battered/shaken baby syndrome: a nearly tragic mistake. Survey of Ophthalmology 39(6):509-512, May-June 1995

14. Gutman FA Evaluation of a patient with central retinal vein occlusion Ophthalmology. 1983 May;90(5):481-3

15. Iijima H Gohdo T Imai M Tsukahara S. Thrombin-antithrombin III complex in acute retinal vein occlusion. Am J Ophthalmol. 1998 Nov;126(5):677-82

16. Granel B Disdier P Devin F Swiader L Riss JM Coupier L Harle JR Jouglard J Weiller PJ. Occlusion of the central retinal vein after vaccination against viral hepatitis B with recombinant vaccines. 4 cases Presse Med. 1997 Feb 1;26(2):62-5

17. Fledelius HC. Unilateral papilloedema after hepatitis B vaccination in a migraine patient. A case report including forensic aspects. Acta Ophthalmol Scand. 1999 Dec;77(6):722-4

18. Miller E Waight P Farrington CP Andrews N Stowe J Taylor B. Idiopathic thrombocytopenic purpura and MMR vaccine. Arch Dis Child. 2001 Mar;84(3):227-9

19. Kumagai K Nishiwaki K Sato K Kitamura H Yano K Komatsu T Shimada Y. Perioperative management of a patient with purpura fulminans syndrome due to protein C deficiency. Can J Anaesth. 2001 Dec;48(11):1070-4

20. Russell-Eggitt IM Thompson DA Khair K Liesner R Hann IM Hermansky -Pudlak syndrome presenting with subdural haematoma and retinal haemorrhages in infancy. J R Soc Med. 2000 Nov;93(11):591-2

21. Marshman WE Adams GG Ohri R. Bilateral vitreous hemorrhages in an infant with low fibrinogen levels. J AAPOS. 1999 Aug;3(4):255-6

22. Hattenbach LO Beeg T Kreuz W Zubcov A Ophthalmic manifestation of congenital protein C deficiency. J AAPOS. 1999 Jun;3(3):188-90

23. Kaur B, Taylor D Fundus hemorrhages in infancy. Survey of Ophthalmology 37(1):1-17, July-August 1992

24. Mei-Zahav M, Uziel Y, Raz J, Ginot N, Wolach B, Fainmesser P Convulsions and retinal haemorrhage: should we look further? Arch Dis Child. 2002 May;86(5):334-5

25. J. F. Geddes, R. C. Tasker, A. K. Hackshaw, C. D. Nickols, G. G. W. Adams, H. L. Whitwell and I. Scheimberg (2003) Neuropathology and Applied Neurobiology 29, 14-22 Dural haemorrhage in non-traumatic infant deaths: does it explain the bleeding in 'shaken baby syndrome'?

26. J. F. Geddes, J Plunkett. The evidence base for shaken baby syndrome. We need to question the diagnostic criteria BMJ 2004;328:719- 720 (27 March), doi:10.1136/bmj.328.7442.719

27. NH Thomas, JE Collins, SA Robb and RO Robinson Mycoplasma pneumoniae infection and neurological disease Archives of Disease in Childhood, Vol 69, 573-576

28. Caffey J. On The Theory and Practice of Shaking Infants. Its Potential Residual Effects of Permanent Brain Damage and Mental Retardation. Am J Dis Child 1972; 124:161-69.

29. Ganesh A, Jenny C, Geyer J, Shouldice M, Levin AV. Retinal hemorrhages in type I osteogenesis imperfecta after minor trauma. Ophthalmology. 2004 Jul;111(7):1428-31.

30. Berrocal AM Scott IU Flynn HW Jr Walker-Warburg syndrome: congenital neurodysplasia and bilateral retinal folds. Ophthalmic Surg Lasers Imaging. 2004 May-Jun;35(3):256-8.

31. Divizia MT, Priolo M, Priolo E, Ottonello G, Baban A, Rossi A, Silengo MC, Lerone M. How wide is the ocular spectrum of Delleman syndrome? Clin Dysmorphol. 2004 Jan;13(1):33-4.

32. Mosin IM Vasil'eva OIu Skripets PP Iaroslavtseva EV Avuchenkova TN Iziumova EB, Shakarova EA Shuleshko OV Neuro-ophthalmological and radiological signs of Aicardi syndrome Vestn Oftalmol. 2004 Mar- Apr;120(2):15-20.

33. Lee WB O'Halloran HS Grossfeld PD Scher C, Jockin YM Jones C. Ocular findings in Jacobsen syndrome. J AAPOS. 2004 Apr;8(2):141-5

34. Gardner HB. Hypoxia leading to intracranial problems may be a retinal haemorrhage. Neuropathol Appl Neurobiol. 2004 Apr;30(2):192

35. Ahmad OF Hirose T. Severe retinopathy in a child with hypoplastic left heart syndrome. Am J Ophthalmol. 2004 Mar;137(3):566-7

36. Pierre-Kahn V Roche O Dureau P Uteza Y Renier D Pierre-Kahn A Dufier JL. Ophthalmologic findings in suspected child abuse victims with subdural hematomas. Ophthalmology. 2003 Sep;110(9):1718-23

37. Gable EM Brandonisio TM Ocular manifestations of Donohue's syndrome. Optom Vis Sci. 2003 May;80(5):339-43 38. Donohoe M Evidence-based medicine and shaken baby syndrome: part I: literature review, 1966-1998 - Am J Forensic Med Pathol. 2003 Sep;24(3):239-42

39. Clemetson CA. Child abuse or Barlow's disease? Pediatr Int. 2003 Dec;45(6):758

40. Geier MR, Geier DA Neurodevelopmental disorders after thimerosal- containing vaccines: a brief communication. Exp Biol Med (Maywood). 2003 Jun;228(6):660-4

41. Vahedi K, Massin P, Guichard JP, Miocque S, Polivka M, Goutieres F, Dress D, Chapon F, Ruchoux MM, Riant F, Joutel A, Gaudric A, Bousser MG, Tournier-Lasserve E Hereditary infantile hemiparesis retinal arteriolar tortuosity, and leukoencephalopathy Neurology. 2003 Jan 14;60(1):57-63

42. Gaetz M. The neurophysiology of brain injury Clinical Neurophysiology, January 2004, vol. 115, iss. 1, pp. 4-18(15)

Competing interests: None declared

Evidence base? 24 September 2004
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Brian Morgan,
Freelance Journalist
Cardiff CF11 6LF

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Re: Evidence base?

The final paragraph with the conclusion of Professor Reece's letter contains sentiments most of which few might disagree with, but one sentence leaves me puzzled: "Unfortunately, there remains considerable difficulty for some doctors to accept that children are abused."

It would be helpful if the source of this statement were identified and what study or survey had led to it?

It's a claim I find hard to credit, that anyone, a doctor even, refuses to believe some children are abused, or has difficulty accepting this.

There is a debate about the extent of child abuse and whether sometimes experts are correct in their opinions as to whether abuse has taken place in a particular case, and whether their opinions are based on secure research, but surely not a debate as to whether any children are abused at all?

Competing interests: I am currently working on a television documentary reporting a pending appeal application against conviction for murder of an infant.

Re: Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT! 27 January 2005
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Michael Innis,
Director Medisets International
Home 4575 email micinnis@ozemail.com.au

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Re: Re: Shaken Baby Syndrome - We NEED a DIAGNOSTIC PROTOCOL - WE NEED to get it RIGHT!

Editor,

“If there is any greater crime or sin that we as members of the Human Race and citizens of this great country can commit beyond that of harming a child, it is to wrongfully accuse and/or persecute an innocent parent that has already suffered the loss or harm of one of their offspring" Lee E Woodard, Sr.--Human rights USA @ MSN Groups

Yet this is exactly what is happening, not only in the USA, but in Britain and Australia. False allegations against already devastated parents is the shameful action of a Justice System ignorant of, and unwilling to properly investigate, unfamiliar disorders of childhood which are then labelled “Shaken Baby Syndrome” or “Munchausen Syndrome By Proxy.”

Constant reminders from the more senior members of the Royal Colleges that younger members are difficult to recruit into the Child Protection Service illustrate a change may be occurring. No longer are the myths and fabrications of SBS and MSBP accepted as Gospel Truth because the Professors say so. Unfortunately the change is too late and too slow for some and several are still awaiting a review of their fate – which incidentally is mainly in the hands of those that originally charged them.

There is evidence that some Paediatricians have mistaken the cutaneous lesions of Atypical Kawasaki disease for “cigarette burns.” [1]

The Rachitic Rosary of Vitamin D deficiency is frequently mistaken for malicious blows or even kicks to the front of the infant’s chest by some Radiologists.

Rib fractures, which can be shown to be due the absence of an essential amino acid, have been attributed to Non-accidental Injury by Radiologists, Paediatricians and Pathologists alike.(Innis MD Unpublished)

The cerebral hypoxia which follows an Apparent Life Threatening Event, frequently brought on by a Seizure, is ignored by those who condemn an innocent parent when Cerebral and Retinal haemorrhages form part of the infant’s problems.

It is time to dispense with the flawed and fabricated diagnoses of Shaken Baby Syndrome and Munchausen Syndrome By Proxy and adopt a more rational approach to the investigation of children.

Results of Haematological and Biochemical investigations should be interpreted by the appropriate specialist – misinterpretation by a generalist is not uncommon in my experience.

Judges and Juries must be made aware that the myth of the Shaken Baby Syndrome had its origins in unsubstantiated claims made before a more enlightened approach to the investigation of Bleeding, Nutritional and Congenital Disorders was demanded.

The Attorney General, Lord Goldsmith … stated “ if there are alternative explanations, we need to know. If the Expert only owns up to possible alternatives under cross examination, he risks showing himself as careless, inexpert or worse – a charlatan” London November 27th 2004 [2].

Perhaps those “non-specific feelings” that paediatricians are advised to ponder[3] should be the first casualties in restoring some semblance of scientific rigor into the Judicial Systems of England, Australia and the USA.

Let us have some action …before mothers run out of tears.

Michael D Innis MBBS; DTM&H; FRCPA; FRCPath

Reference: 1.Innis MD Conference on SBS and MSBP held in Sydney Australia 2004

2.Blakemore-Brown L. MSBP - A PSEUDO-SCIENTIFIC TRAP. A Paper presented at Portcullis House on 2nd December 2004 as part of Conference Proceedings entitled `ABUSE ALLEGATIONS –SYSTEMIC FAILURE’ and organised by the All Party Group for Abuse Investigations (APGAI)

3.FABRICATED OR INDUCED ILLNESS BY CARERS Report of the Working Party of the Royal College of Paediatrics and Child Health November 2001

Competing interests: As previously declared

Reece et al's Collective Discrepancies Noted by a Collective Group of Concerned Citizens 2 August 2006
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L. Travis Haws,
Dentist
Lakewood CO 80228,
Co-signators listed below references

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Re: Reece et al's Collective Discrepancies Noted by a Collective Group of Concerned Citizens

Editor:

This response is by many people (listed below the references) from all walks of life that share serious concerns with the current state of the multi-“disciplined” child “protection” agencies in this country and countries abroad. This serious dysfunctional “system” needs immediate redress before many more innocent families are destroyed. We know that we, the signers of this letter, are just the tip of the ice-berg of the seriously concerned.

The recent letter by Reece et al published by the British Medical Journal is more of the same opinion-based literature which has severely impaired the investigation into the numerous alternative causes of symptoms which are too often diagnosed as nonaccidental trauma, shaken baby syndrome, inflicted head injury, etc. And in using SBS as a catch-all diagnosis, they have greatly over-stepped their bounds—resulting in great suffering to many innocent families and society in general.

Donahoe recently reviewed literature and found serious flaws in reports. (1) He pointed out that most of the reports were opinion, small case studies and had poor controls. No where in any literature that he reviewed did he find any report that was acceptable by the criteria for evidence-based medicine. The literature that was not covered by Donahoe, according to Reece and 105 et al, has the same flaws as again cited by Plunkett and Geddes in their response to Reece. (2)

We invite Reece and 105 et al, to explain their claims in light of the few biomechanical studies by Duhaime et al. and Prange et al. that demonstrated shaking doesn't generate enough force for concussion, let alone subdural hemorrhage or traumatic axonal injury. (3,4). Nor could they demonstrate enough force for such brain injury via inflicted impact against a padded surface as thin as 4 inches of unencased foam. (4) Reece and 105 et al. cite the Prange study as a more biofidelic model, but then state it is premature to make conclusions from such. We assert that the premature suffering and conclusions started 30+ years ago from such flawed and opinionated work and we demand nothing less than solid research before continuing to haphazardly dismantle families.

More examples of these flawed non-accidental trauma studies were done in part by Dr. Runyan (a Reece and 105 et al. cosignatory and Helfer Society co-founder), and was an epidemiological study where infants “injuries were considered inflicted if accompanied by a confession or a medical and social service agency determination of abuse.” (5) We assert that this study is flawed from the very get-go as many “confessions” are hardly reliable. Many confessions are false and provided under investigator lies, threats, promises of leniency (if you admit as we know you did it … someone said you did), promises to keep kids in the home if you name your partner, etc. Thus, studies based from confessions cannot be used to generalize. We now have a form of medicine that has been evolving for quite some time and has reached its pinnacle; it is called CBM (confession-based medicine). Of course, conviction and confession are interchangeable in “high quality” CBM. Furthermore, it’s known that as much as 85% of social service claims of abuse are false. (6)

Another example of such “studies” was to determine the incidence of inflicted and non-inflicted TBI before and following natural disasters (i.e. hurricane Floyd). (7) We’d love to know the causal connection between a hurricane and simultaneous increases of both accidental traumatic brain injury and non-accidental child abusive head injury. We’re thankful for the contribution these studies have provided in protecting children and diagnosing abuse?

We suggest the huge amount of governmental funding that supports such studies (http://bmj.bmjjournals.com/cgi/eletters/328/7451/1316#62462) could be more appropriately utilized. That some go to those, who ironically have difficulty obtaining funds, with true interests in scientifically studying the biomechanics, physiology, pathophysiology, pathoneurology, nutrition and health effects on injury/injurability.

In the March 27 issue of BMJ, Geddes and Plunkett called attention to the findings of Donahoe and also of Lantz, who reported in the same issue, a child with eye pathology that had been previously associated only with shaking injury or abusive head trauma, and despite every indication otherwise, some still consider the case presented by Lantz et al as abuse. Lantz, like Donahoe, reviewed the available literature and could find no report which could qualitatively and appropriately support the claim that retinal hemorrhages, perimacular folds and retinoschisis cavities were pathognomic for abusive injury. (8)

Geddes, Plunkett, Lantz and Donahoe are right to point out the problems with the literature and also to point out new findings which conflict with abusive head injury. Don’t we all deserve the truth? It would be negligence if they hadn’t. Thus, the combination of flawed literature and extensive refuting literature shows that the child protection “experts” court testimony and claims have gone far beyond their limits and have done society a great disservice.

Numerous studies have demonstrated short falls can be fatal and result in SDH and/or RH. (9,10,11,12,13,14,15,16,17,18,19,20,21) Plunkett documented many such instances in his report. Certainly short falls are the cause of many deaths involving the elderly who have more space between their brain and skull due to atrophy. It is also documented that infants have increased space. Some have more than others as evidenced by hydrocephalus, craniocerebral disproportion and benign extra-axial spaces and have been shown to suffer SDH and/or RH with minimal or no trauma. (20,22,23) Yet, and despite this data, the child protection “experts” still cite studies that claim hydrocephalus is a result of shaking. (24,25) Or would have us believe a child, which had a chronic SDH, that had a minor fall out of a hospital bed, and required acute surgical evacuation of a large acute SDH actually supports re-inflicted intentional abuse/injury/trauma. (25) Chalk it all up to just another misquote/misunderstanding.

There are numerous examples of literature cites and expert testimony that it requires massive forces of a multi-story fall, high speed car crash or equivocal forces from violent shaking and/or impact to cause a SDH and brain injury. (26,27,28,29,30,31,32,33) Then, out of the other side of their mouth (double standard), Reece and 105 et al. state “that 30%-40% of newly diagnosed shaken baby cases had medical evidence of previously undiagnosed head injury. These infants had such mild or non- specific symptoms and signs that their trauma was previously not diagnosed. The diagnosis was ultimately made when the children had subsequent severe episodes of abuse, with computer tomographic evidence of both acute and older subdural haematoma and brain injuries..” We find some serious discrepancies here. How could the initial SDH, which requires such massive intentional and inflicted forces to occur, as testified and seen in the literature … go undetected? Could any normal person, “lay” or otherwise not be able to see abnormal behavior or injuries that result from such massive/violent forces?

What about the fact that chronic SDH’s can rebleed with minimal or no trauma? (25,34,35,36,37) In light of this fact, Reece and 105 et al. have seriously misrepresented the facts when they state the old SDH was subsequently discovered after “severe” episodes of abuse (the cited data shows it does not require any trauma let alone severe). The discrepancies are further highlighted by the fact that infants and children which are asymptomatic (appear/act normal) with a Glascow coma score of 13 – 15 following MILD trauma can have abnormal brain imaging scans which show edema, subdural or epidural hemorrhages, which may ominously progress. (38,39,40,41,42)

Consider the very likelihood if we have a normal acting asymptomatic child (as shown above), that really has a bleeding or swelling brain (i.e. chronic SDH or hydrocephalus), and since infants with chronic subdural hemorrhages or hydrocephalus can rebleed or bleed with minimal or no trauma (20,22,23,25,34,35,36,37,38,39,40,41,42), we basically could have a ticking time bomb. A time bomb that falls unresponsive with little or no trauma, with little or no explanations or as a result of cumulative “minor” trauma/rebleeds. In which a care taker may have mildly shaken, slapped … to revive the infant, may fear they did something wrong, and then are subsequently convinced they did by the authoritative assumptive child protection “experts”, then confess under extreme duress (via aforementioned scenarios), are left helpless, confused and with significant collateral time bomb damage in the form of charges, convictions and familial dismantling. Don’t forget that up to 9% of normal births have SDH and some of these may not be clinically apparent until 6 weeks of life. (43,44) What if that SDH episodically rebleeds spontaneously or from minor trauma/child-play, disease or vaccine reaction, hypertension … brain irritation until collapse occurs. Reece and 105 et al. would not like anyone to consider this as they continue to collude with and co-train with social service workers, investigators, prosecutors … on the most efficient way to obtain a conviction while rebutting any plausible alternative explanation, in their national SBS conferences. (dontshake.com)

Visiting the National Center for Shaken Baby Syndrome brings one to citing of a manuscript written by Reece himself. It cites the short-fall study by Helfer. (45) Other commonly cited studies eluding that short falls are not fatal are by Williams and Chadwick et al. (32,33) These studies are greatly flawed. The authors forget to tell us, and more importantly the courts, that the data is severely impaired. There is no discussion of the biomechanics of the falls, the behaviors prior, during and following the falls, the part of the body impacted, differences among impacted surfaces, did something brake the fall, was it a free fall, was it translational or rotational ...? Maybe they feel that biomechanics is irrelevant. Yet, despite this they conclude and correlate (as pre- determined?) that it is extremely rare to have serious injury following "trivial" falls. The Chadwick study had a fatality of several stories that was found outside a multi-story window, but no one knew how the infant got there. These types of studies lack any external validity (ability to generalize to the population) whatsoever, let alone citation in a court of law.

These studies point out another child protection “expert” double standard in that the short fall studies by Helfer and Chadwick (a co- signator to the Reece letter), for example, state that care-takers description of events are biased and that is why Helfer et al. claim their “studies” are “less” biased than parental descriptions. Chadwick, himself, states that his data is absurd in that it shows short falls are more likely to be fatal than long falls. The double standard is clear as they claim the care-takers descriptions of falls…are biased and unreliable, but then accept whole heartedly their descriptive “confessions” as scientifically reliable. Of course, the “confessions” conformed to the hypothesis -- their belief is “confirmed” -- just what they needed. We invite Reece and 105 et al. to please explain these inconsistencies.

Let’s not forget another “article” written in 1994 by Chadwick concluding that “given the availability of prompt and appropriate medical care, falls contribute minimally to deaths in childhood. Death from a fall is now considered very unlikely when the fall is less than 20 feet, and accumulating experience may soon extend that.” (46) We ask, does this also apply to the aforementioned infants with chronic subdural bleeds, hydrocephalus, or the ones with potential asymptomatic bleeds/swelling following minor trauma, vaccine reactions or natural diseases? If this statement applies to the ones with chronic subdural bleeds and now have an acute bleed, have these children now fallen 20 feet, twice? What about the ones that end up fatal; did the physicians not give prompt and appropriate care as discussed by Chadwick? Did the parents not rush their infant that fell 20 feet to a hospital or call an ambulance? Again, we invite Reece and 105 et al. to please explain these huge discrepancies.

Then there are the testified, televised and written statements the injury occurred the instant of unconsciousness…that there is no lucid interval. We declare that this is another bunch of biased opinion as the literature is replete with examples of lucid intervals. (9,13,38,39,40,41,42,47,48,49) Additionally, if only CT scans are utilized, the timing is not reliable as Dr. Patrick Barnes gives an example where court testimony stated that the “inflicted” SDH injury on CT scan happened the instant the child became seriously ill or was “abused,” but MRI demonstrated the bleeding was actually three days old. (49) We invite Reece and 105 et al to explain this discrepancy of actual imaging limitation evidence and court testimony. It is quite evident the testimony went well beyond the scientific limits.

Retinal hemorrhages have never been proven to be a result of acceleration/deceleration forces. Just a time-related association. Recall that the SBS supporting literature is greatly flawed and opinion, as well, inclusion criteria is often based on “confessions,” so how can any correlation between SDH and association of RH be made? Conversely, retinal hemorrhages have been reported in many other conditions besides supposed acceleration/deceleration injury. (3,8,20,44,50,51,52,53,54,55,56,57,58,88,89)

Recently, Adams et al. report a case of retinal hemorrhage occuring, either spontaneously or from the very mild pressure exerted on the eye from a retcam examination. (95) The hemorrhages were widespread and of various shapes (dot, blot, flame) indicated bleeding in different depths or layers of the retina. They state that this report illustrates how fragile the infant retinal vasculature is. This fragility completely contradicts the statements and court testimony by Reece et al. and SBS proponents that massive forces are required.

Other than the numerous conditions previously mentioned, the differential diagnosis for the signs/symptoms of so called SBS/SIS, non- accidental trauma or inflicted head injury is long, and thus, the SBS triad is far from a unique single all-encompassing diagnosis as the child protection “experts” would have us believe. (59 thru 89) We ask Reece and 105 et al. why as recent as 2001, the American Academy of Pediatrics Committee on Child Abuse states that “cerebral edema with subarachnoid hemorrhage may be the only finding”, (90) and how this correlates with the totality of findings and the “triad” espoused by Harding, Risdon and Krous. (91) Krous is a co-signator to the Reece letter and a member of the committee.

We ask why neck or cervical cord trauma is not a main component of the “triad” as found by Geddes and as Ommaya et al. state that such trauma would occur before any brain injury. (92,93,94) It is only common sense that such neck injury would accompany the violent shaking, child protection physicians claim and demonstrate in court and on computer models, that is “pathognomonic” of SDH or RH or edema -- singular or combined. Geddes found a predominance of hypoxic axonal injury. Doesn’t shear injury require, for the most part, two opposite forces pointing towards or away from each other to tear such axons (basic physics/mechanics)? So, to sustain global brain injury, wouldn’t these opposing forces need to occur in hundreds or thousands of different planes (axons in the brain travel different directions)? We invite Reece and 105 et al. to please explain the biomechanics behind their claims of shear injury, from violent shaking, causing diffuse axonal injury in comparison to Geddes findings. How does this occur during acceleration/deceleration or impact? Is the head shaken side-to-side, up-and-down, forward-and- backward and any combination of these? If they cannot explain such, then Geddes work stands as the most reliable research on the brain injury of these infants/children.

We suggest that instead of attacking those who choose to search for answers, Reece et al review their own literature and try to find the scientific basis of such. Opinion does not make it true. We propose that CBM is far from meeting the criteria for beyond a reasonable doubt or medical certainty. And the innocents devastated from CBM should be allowed due recourse.

We, the signers of this letter, are banded together by one belief. We believe that true investigation need occur before any person can be accused and convicted of shaken baby syndrome.

We applaud Geddes, Plunkett, Donahoe, Lantz and others for bucking the norm and reporting findings and concerns about this hypothesis. The very fact that these concerns exist warrants further investigation and thought.

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2) Plunkett J, Geddes J F. The evidence base for shaken baby syndrome: Authors’ reply BMJ, May 2004; 328: 1317.

3) Duhaime A. et al., The Shaken baby syndrome. A clinical, pathological, and biomechanical study. J Neurosurg 1987; 66:409-415.

4) Prange M. et al. Anthropomorphic simulations of falls, shakes, and inflicted impacts in infants. Journal of Neurosurgery 2003 99: 143-150.

5) Keenan HT, Runyan DK, Marshall SW, Nocera MA, Merten D, Sinal S. A population-Based Study of Inflicted Traumatic Brain Injury in Young Children. JAMA, August 6 2003, Vol. 190 #5:621-26.

6) http://www.redflagsweekly.com/conferences/shaken_baby/aug27_Fishman.html

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11) Hall JR, Reyes HM, Horvat M. The mortality of childhood falls. J Trauma 1989;29:1273.

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41) Ros SP, Cetta. Are skull radiographs useful in the evaluation of asymptomatic infants following minor head injury? Pediatr Emerg Care. 1992 Dec;8(6):328-30.

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46) Chadwick DL. Falls and Childhood Deaths: Sorting Real Falls From Inflicted Injuries. The APSAC Advisor 1994 Vol, 7 No, 4:24-25.

47) Dacey R.G, Alves W, Rimel R, Winn R, and Jane J. Neurosurgical complications after apparently minor head injury. Neurosurgery 1986; 65:203-10.

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CO-SIGNATORS:

Heather J. Lohr, Huntingdon, PA USA (Falsely accused)

Robert E. Lohr, Huntingdon, PA USA (Falsely accused)

Susan Kreider, RN, CPC susan.kreider@uphs.upenn.edu Philadelphia, PA, , USA (hepatitis B vax-injured adult, friend of the falsely-accused)

Debbie Grater Pottstown, Pa USA (Falsely accused)

Ken Grater Pottstown, Pa USA (Spouse of falsely accused)

VRAN - Vaccination Risk Awareness Network Inc. (Canada). A not-for- profit educational society with members across Canada, which informs the public about vaccine risks. (Some members have children who have suffered vaccine reactions, injuries and death.)

Richard J. Thomas, DC, Life Chiropractic Center, USA

Robert "Bob" Flint, director, Great Falls Professional Services, ( VacLib Chapter of Maine ), Lewiston, Maine, USA www.greatfallspro.net

John Brooks, Mesa, AZ, USA (Concerned grandparent)

Joan Mootry, Spokane, WA, USA

Ingri Cassel, Spirit Lake, Idaho, USA (director of Vaccination Liberation - www.vaclib.org)

Don Harkins, Spirit Lake, Idaho, USA (editor and publisher of The Idaho Observer - www.idaho-observer.com)

Lisa Jillani, president, PAVE Charlotte, NC, USA www.vaccineeducation.com

Jason Behrens, Orlando, Florida 32817, USA, (Falsely Accused)

Onnie Kahlenberg, eggallery@mfire.com

Thomas Grazier Jr. Huntingdon, PA USA

Karen Grazier, Huntingdon, PA USA, Registered Nurse

Karen Mayne Salt Lake City, Utah, USA (parent of falsely accused)

William Mayne Salt Lake City, Utah, USA (parent of falsely accused)

Jean M. Bernstein

Arnold Wadle, Colorado Springs, CO, USA

Tara Benton, Sacramento, CA, USA (Falsely accused of SBS)

Bob Benton, Sacramento, CA, USA (Falsely accused of SBS)

Karen Lyke

Martin Hewitt, London, N22 7FX (parent of an autistic child)

Gary Krasner, Director, Coalition For Informed Choice, Hollis, NY, USA

Lois Herlihy, Pembrooke Pines, FL, USA (mother of wrongfully convicted son)

Wendy Callahan Hawthorne, FL, USA vaccinetruth.org

Christine Anderson

Tracy Anderson, Burnie, TAS 7320, Australia, (family of falsely accused)

Holly Bender, Thorndale, PA, U.S.A. (family of falsely accused)

Shawn Bender, Thorndale, PA, U.S.A., (falsely accused)

Brenda Warter, San Diego, CA, USA

Melissa Archibald, West Jordan, Utah, USA (none)

Doug Archibald, West Jordan, Utah, USA (none)

Carolyn Burke, Hillsboro, Missouri, USA

Christy A. Shutz, Boise, Idaho, USA (Mother of wrongfully convicted son)

Chris Huffman, Harrisonburg VA, USA

Shannon Huffman, Harrisonburg VA, USA

Angela Grazier, Huntingdon, PA, USA

Hiram Reynolds, Huntingdon, PA, USA

Belinda Moran, Apopka FL, USA

Kevin Moran, Apopka FL, USA

Ryan Moran, Apopka FL, USA

Kieran Moran, Apopka FL, USA

Rudy Torres, San Diego, TX, USA

Mary Broderick, Chicago, IL, USA (Falsely accused of SBS)

Tom Broderick, Chicago, IL, USA (Falsely accused of SBS)

Thomas Grazier III, Huntingdon, PA, USA

Christina Grazier, Huntingdon, PA, USA

Pat Kelly, Chicago, IL, USA

Lisa Blakemore-Brown Psychologist UK

Christopher Grazier, Charlotte, NC, USA

Kim Grazier, Charlotte, NC, USA

Competing interests: We are the accused, friends of the accused and people who are just plain fed up with the all too easy dismantling and imprisonment of families, without exhaustive investigation of the infant’s/child’s condition and family background/character, by an all too powerful “system.”