Jump to: Page Content, Site Navigation, Site Search,
You are seeing this message because your web browser does not support basic web standards. Find out more about why this message is appearing and what you can do to make your experience on this site better.
BMJ 2007;334:303 (10 February), doi:10.1136/bmj.39059.594444.AE (published 12 January 2007)
Amanda Howerton , research fellow1, Richard Byng , primary care research network lead1, John Campbell , professor of general practice and primary care1, David Hess , development lead1, Christabel Owens , honorary research fellow2, Peter Aitken , honorary clinical lecturer2
1 Primary Care Research Group, Peninsula Medical School, Exeter EX1 2LU , 2 Mental Health Research Group, Peninsula Medical School
Correspondence to: J Campbell? john.campbell{at}pms.ac.uk
Design Qualitative study based on in-depth interviews with prisoners before and after release.
Setting One category B local prison in southern England.
Participants 35 male offenders aged 18-52, a quarter of whom had been flagged as being at risk of self harm.
Results Most respondents reported that they would not seek help from a general practitioner or other healthcare professional if experiencing mental distress. When followed up after release, none had sought medical help despite the fact that many had considerable emotional problems. Many participants were hesitant to seek help because they feared being given a formal diagnosis of mental illness. Some of these men feared the stigma that such a diagnosis would bring, whereas others feared that a diagnosis would mean having to confront the problem. Lack of trust emerged as the most prominent theme in prisoners' discourse about not seeking help from health professionals. Distrust towards the "system" and authority figures in general was linked to adverse childhood experiences. Distrust directed specifically at healthcare professionals was often expressed as specific negative beliefs: many perceived that health professionals (most often doctors) "just don't care," "just want to medicate," and treat patients "superficially." Those men who would consider going to a general practitioner reported positive previous experiences of being respected and listened to.
Conclusions Distrust is a major barrier to accessing health care among offenders. Like most people, the respondents in this study wanted to feel listened to, acknowledged, and treated as individuals by health professionals. By ensuring that a positive precedent is set, particularly for sceptical groups such as ex-prisoners, general practitioners and prison doctors may be able to encourage future help seeking. Information specifically designed for prisoners is needed to help to de-stigmatise mental illness, and preparation for release should include provision of information about access to health and social services. Awareness training for health professionals is recommended: trust might be fostered in this population by seemingly trivial gestures that indicate respect.
A researcher (AH, a medical sociologist) approached eligible prisoners while they were in the prison and gave them a comprehensive explanation of the study. To offset potential anxiety so soon before release, she explained that their participation was voluntary and that the research was not being done by, nor was it associated with, Her Majesty's Prison Service. AH gave eligible prisoners a copy of the study description and a minimum of 24 hours to decide whether they wished to participate. Within the next few days, she returned to the prison, obtained consent, and interviewed respondents in a secure interview room in the prison. On completion of the initial interview, AH offered respondents a £10 (
15; $19) food voucher. They invariably seemed surprised by this gesture, which indicates that it did not act as an incentive to take part.
We developed the study design and interview topic guide in partnership with "the Revolvers," the users' involvement group of the Revolving Doors Agency, a voluntary sector organisation that provides services to ex-offenders with mental health problems (www.revolvers.org.uk). We piloted the pre-release interview schedule on three members of the Revolvers based in London. It covered a variety of topics in four primary domains (box 1). However, we also encouraged participants to digress from the schedule to talk about their lives and other matters that were relevant and important to them. All topics were explored in each interview, which lasted between one and two hours.
|
Extant literature suggests that the first four to six weeks after release from prison are particularly hazardous with regards to risk of suicide and self harm.4 11 We therefore planned to follow up all participants and interview them again approximately four to six weeks after release. The second interview focused on the experience of transition from prison into the community, experiences of mental distress, and specific barriers to use of health services. Although our intention was to do face to face interviews at follow-up, this was not always possible in a population in which homelessness and transience are common and often compounded by other major psychosocial constraints. For these reasons, we made some follow-up contacts by letter, telephone, or text messaging.
Data analysis
We audiotaped all interviews, with permission, and transcribed them verbatim. We combined pre-release and post-release interviews and treated them as single cases. We analysed data thematically by using some of the principles of grounded theory, including the constant comparison method. We used this to identify deviant cases or exceptions to the emerging pattern of relations between codes.12 We used a variety of other techniques such as open coding of the early data,13 reflexivity methods, and peer group reviews. AH, RB, and DH met regularly to discuss the coding and interpretation of the data. We did not develop inter-rater reliability scores, as the interviews were relatively unstructured.14
|
Factors that inhibit help seeking
Of the 35 prisoners interviewed, 21 said that they would not consider consulting a general practitioner about mental health problems, seven said that they would consider doing so, and the remaining seven said that they would consider it under certain conditions. Of those who were followed up, none had had contact with either primary or secondary care for mental or physical problems during the period between release and the second interview. We identified three inter-related themes that emerged from the analysis as factors that inhibited help seeking for most of this group: chaotic upbringing, distrust, and fear of a diagnosis of mental illness.
Chaotic family background
Most of the respondents in this study had tumultuous personal histories characterised by split families, physical abuse or neglect, and frequent drug and alcohol use in the homes in which they grew up. The extent of the disarray was commonly reported in the interviews (box 2). Although dramatic, such reports were routine rather than exceptional among interviewees. Most of the respondents talked about their childhood experiences generally, but several drew connections between their past experience of abuse or neglect and their present inability to trust others: "I don't know, I just . . . I've never trusted people, I've never trusted them at all. I think it stems from when I was younger and all that 'cos [sic] my upbringing wasn't the best of upbringings really" (respondent 7). This participant in particular was able to draw a link between his childhood experience and his sense of distrust.
|
Distrust
Within this context, how distrust emerged as a major theme in the analysis is understandable. To distrust is to regard as untrustworthy, to regard with suspicion, or to lack faith or confidence in something. It is the expectation that others will not act in one's best interest.15 Scholars understand that trust is built on the normality, predictability, and reliability of one's social environment.16 Thus, when the rules governing social interaction have been significantly eroded, as with participants in this sample, trust is likely to deteriorate. Several types of distrust characterised this sample. Many men expressed a general distrust of almost all people; some reserved trust only for the closest of family members. Others proclaimed a distrust for everyone, including relatives: "I don't have no trust in the system. I don't trust the system one bit, I hate the system. All they've ever done is shit on my life. Why should I trust them? Probation, they've shit on me, DTTO, they shit on me, course they shit on you, everybody shits on you. So I don't trust nothing or no-one. I don't trust my missus, I don't trust my own mum and if I don't trust my own mum I ain't going to trust no-one" (respondent 3).
The most common types of distrust were a generalised distrust towards "the system" and distrust directed specifically at healthcare professionals (box 3). The second type was often expressed as specific negative beliefs; for instance, a commonly reported belief was that healthcare professionals (most often doctors) "just don't care," "just want to medicate," or "treat patients superficially." Many respondents based these perceptions on negative experiences with healthcare professionals, whereas others discussed these feelings more generally, not referring to actual experiences. These categories were not mutually exclusive, as some respondents expressed a combination of these sentiments: "They don't care one bit, they really don't care. They must have a flippin' . . . programme to follow or something, where they must have to tick boxes or something" (respondent 27).
|
A subset of men in this group were less angry but simply did not feel comfortable discussing personal problems with healthcare professionals because no previous relationship existed: "I don't know, it's just going to see a complete stranger. Yeah he's a doctor, but it's just going to speak to him, a complete stranger, and tell him all your problems. No, it's just not my type" (respondent 1). Other respondents lacked confidence that general practitioners or mental health professionals could do anything to help them when they had mental health problems. For instance, one respondent remarked that he would never see a general practitioner if he was having mental health problems: "Well, what are they going to do? Are they going to sort your problems? No chance. Are they going to give me medication? What are they going to do? There's nothing they can do, is there?" (respondent 18). Some based this lack of confidence on previous experiences in which they felt that they were not taken seriously, which often led to a sense of hopelessness among interviewees. Others simply did not believe that the system had anything constructive to offer to solve their complex problems. This form of distrust seemed to be based on logical conclusions about likely lack of efficacy in the face of insurmountable problems, rather than on an emotional response to past experiences.
Fear of diagnosis of mental illness
Another impediment to help seeking for many participants was the fear of a diagnosis of mental illness. Many participants feared that being formally diagnosed as having a mental health problem would result in them being stigmatised by friends, family, or othersthat is, they feared the external or social consequences of the label: "Like I say, like, you know, it seems either if you're ill or just off your head . . . no, not ill, sorry, if you're just off your head, say a criminal and going out there and doing crime and stuff and all your friends are there for you, and then you are diagnosed with a mental illness, then they all seem to turn their back like . . . I mean no-one . . . it seems people are scared of mental illness. That's one of their worst fears, actually being diagnosed as mentally ill you know" (respondent 8).
Others divulged that they were not personally ready to accept such a diagnosis, often stating that they did not want to know about, or were not ready to admit, the existence of a mental health problem because knowing would mean having to confront the problem. Although both fears are likely to be inter-related, one can be conceptualised as a fear of the external consequences of the diagnosis, whereas the other can be thought of as a fear of the internal costs of admission (box 4).
|
Factors that promote help seeking
In contrast with the participants discussed above, however, a few interviewees did report trust or confidence in the ability of their general practitioner to help them with mental health problems. Some respondents trusted their general practitioners because they had established a previous positive relationship with them, whereas others remarked that they had been treated with respect by a doctor or other healthcare professional in the past (box 5). For instance, participants spoke of the importance of characteristics that indicate respect, such as attentive listening or being dealt with in a compassionate manner. These categories are not mutually exclusive. Several of the respondents who expressed a readiness to consult had been treated with respect by a healthcare professional at some point in their lives, and this had enabled them to establish a positive relationship with their general practitioner.
|
The 100% agreement to participate and the fact that a substantial number of participants were re-interviewed after release are strengths of the study and suggest that the findings are important to people who plan and provide health care for offenders in the community. The ethics committee that approved the study did not feel that the small food voucher payment made to participants was excessive inducement to participation; furthermore, the surprise expressed by participants after this token gesture suggested that it had not acted as a major factor influencing their involvement. The generalisability of our findings is limited because the sample was drawn from a prison in southwest England that predominantly holds white British offenders with sentences of less than one year; to what extent our findings might relate to long term offenders, those from black and ethnic minorities, or women is therefore unclear. The perspectives explored here, however, are illustrative of people commonly referred to as the "revolvers" or "churners," as they are frequently in and out of the prison system. Some people maintain that this group is at higher risk for suicide and self harm than long term prisoners, because when released they do not fall under probation services and therefore do not benefit from any type of post-release sentence planning.17 This study begins to shed some light on the experiences of a highly vulnerable group of offenders who have limited post-release support.
Emerging themes
Overall, lack of trust emerged as the most prominent theme in prisoners' talk about their likelihood of seeking help from health professionals. Trust has traditionally been considered the "cornerstone" of the doctor-patient relationship.18 Without it patients may be unlikely to disclose medically relevant information, let alone deeply personal and potentially stigmatising information about their mental health problems. This may be particularly true for people who have led lives characterised by chaos, abuse, and institutionalisation, such as those in this sample. Many of the respondents in this study did not feel that health professionals genuinely cared about them or had the ability to help with mental health problems. It is tempting to speculate that these findings may relate to the challenging and sometimes anomalous roles and attitudes that health professionals show during the course of consultations,19 which form the basis of the "clinical gaze."20 Other participants were hesitant to seek help because they feared a formal diagnosis of mental illness. Some of these men feared the stigma that such a diagnosis would bring, whereas others feared that a diagnosis would mean having to confront the problem.
Prior et al and others have reported that stigma was not in itself a barrier to disclosure of emotional problems, but that people suppressed information during general practice consultations because they doubted whether medicine had anything to offer.21 22 Our findings suggest that offenders in particular are sceptical about the ability of doctors to offer anything other than palliative approaches for mental distress.
That many people consult their general practitioner because a close friend or relative is concerned and has encouraged them to do so is well known.23 24 Absence of stable, supportive relationships and the consequent lack of potential for lay referral may further explain these offenders' disinclination to consult. At the same time, it underlines the potential value of consulting for these troubled and needy men, for whom an enduring relationship with a sympathetic general practitioner may serve as a lifeline.25
For the few respondents who reported that they would turn to a general practitioner or other healthcare professional for mental distress, trust seemed to have an important role, and this was based on previous positive experiences of health care. A recent study of suicidal men by Strike et al has drawn attention to the fact that negative experiences often lead to avoidance of healthcare settings and that this can result in crisis and involuntary contact with services.26
Recommendations for care
Given this information, how can healthcare professionals help to foster help seeking and trust among this population? We can make several tentative recommendations for care within and outside prisons on the basis of these findings. More information specifically designed for prisoners and distributed within the prison may help to de-stigmatise mental illness among this group. Pre-release preparation might include group discussions about recognition of mental health problems, responses to distress, and the potential value of accessing health services. For offenders with an identified history of mental illness, individualised crisis plans and links with community based services could be developed.
Like most people, the participants in this study wanted to feel listened to, acknowledged, and treated as individuals by their general practitioners. Although trust is often established through continuity of care in the course of the patient-clinician relationship,27 trust can also be established by seemingly trivial gestures that indicate respect. By ensuring that a positive precedent is set, particularly for sceptical groups such as ex-prisoners, general practitioners may be able to encourage future help seeking. Finally, as most health professionals are not trained to manage people who have been involved in the criminal justice system,28 we recommend appropriate staff training and development.
|
Contributors: JC was principal investigator, sought funding for the study, and contributed to designing and planning the study and writing the paper. AH designed the study, did the interviews, led the analysis, and was lead author for the paper. RB was a co-investigator; sought funding; designed the study; and participated in the planning, analysis, and writing of the paper. DH, CO, and PA contributed to design and planning the research and writing the paper; DH also contributed to the analysis. JC is the guarantor.
Funding: National Institute of Mental Health in England.
Competing interests: None declared.
Ethical approval: South Essex local research ethics committee, reference number 05/Q0302/110.
![]()
CiteULike
Complore
Connotea
Del.icio.us
Digg
Reddit
StumbleUpon
Technorati What's this?
Read all Rapid Responses