Researchers are positive about involving consumers in trials

Despite consumers becoming increasingly involved in healthcare research, not much is known about the nature of their involvement. A survey by Hanley et al (p 519) concentrated on the work of 62 clinical trial coordinating centres in the United Kingdom. The survey found that 23 of 62 centres had already involved consumers in their work, and most found this to be a positive experience. In 48 specific trials, participation of consumers helped to refine research questions, improve the quality of information for patients, and make the trial more relevant to the needs of patients. Further research is needed on the views of consumers themselves, and on the actual effects of involvement.

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Relevant Article

Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey

Bec Hanley, Ann Truesdale, Andy King, Diana Elbourne, and Iain Chalmers
BMJ 2001 322: 519-523. [Abstract] [Full Text] [PDF]