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Paul Little a Primary Medical Care Group, Community Clinical
Sciences Division, University of Southampton, Aldermoor Health Centre,
Southampton SO16 5ST, b Nightingale Surgery,
Romsey, Hampshire SO51 7QM, c Three Swans Surgery, Salisbury, Wiltshire SP1 1DX, d Health
Research Unit, School of Health Professions and Rehabilitation
Sciences, Southampton University
Correspondence to: P
Little psl3{at}soton.ac.uk
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Abstract |
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Objective:
To identify patient's preferences for
patient centred consultation in general practice.
The patient centred approach is widely advocated, but
implementation in practice is limited and related to characteristics of
both doctors and patients.1-3 Some aspects of patient
centredness may have important benefits for patients: improved
communication can improve satisfaction and biomedical
outcomes4-9 and involving patients in partnership can
have benefits without increasing their anxiety
10 11
and
with the potential to reduce adverse outcomes connected to
prescribing.2
One of the problems in implementing patient centredness in practice is
knowing which elements are the most important. One influential patient
centred model of consultation with a doctor encompasses five principal
domains: exploring the experience and expectations of disease and
illness, understanding the whole person, finding common ground
regarding management (partnership), health promotion, and enhancing the
doctor-patient relationship; and a sixth domain, the realistic use of
time.7 However, there is little empirical evidence from
the patients' perspective to support the precise structure of the
model or to identify which components are most important to patients.
It makes little sense to try to implement each component of the patient
centred approach unless they are consonant with patients'
perspectives. Although there is evidence in general terms about what
patients want from doctors and what satisfies them,12-19
most of the data do not specifically examine preferences for the
different aspects of a patient centred approach A further potential problem with the patient centred approach is the
feasibility of implementing all domains in practice and whether a
targeted approach can be used for particular patient groups. Although
the last domain of the proposed patient centred model is realistic use
of time,7 provision of most of the components in all
consultations may not be feasible in a busy surgery. Furthermore there
is evidence, mostly from secondary care settings, that older patients
and those with serious illness
20 21
(estimated at one
third in a recent study22) may not prefer a patient
centred approach. If this is true then it would be unwise to advocate universal adoption of all components of patient centredness and important to be sensitive to patients' preferences for information seeking and partnership. However, it would be premature to extrapolate these data to patients in primary care as the nature of the problem (for example, cancer care22) may affect preferences for
patient centredness, and the range of problems seen in primary care is different. Nevertheless, important questions are still raised: do all
patients in primary care want all components of patient centredness,
and are there preferences according to clinical groups? As the
literature relating clinical groups to preference for patient centredness is limited
10 20-22
there may be important
differences in preferences according to several dimensions: whether the
problem is a new problem, age, socioeconomic status, how unwell or
worried the patient feels, and whether the doctor is the patient's
usual doctor.
We report on a study of patient preferences for patient centredness in
the context of an impending consultation with a doctor in primary care.
We report the principal domains of patient centredness from the
patients' perspective and compare preferences for these components
with preferences for other more conventional "biomedical" aspects
of the consultation such as providing a prescription or physical examination.
Practices
Development and piloting
Design:
Questionnaire study.
Setting:
Consecutive patients in the waiting room of three doctors' surgeries.
Main outcome measures:
Key domains of patient
centredness from the patient perspective. Predictors of preferences for
patient centredness, a prescription, and examination.
Results:
865 patients participated: 824 (95%)
returned the pre-consultation questionnaire and were similar in
demographic characteristic to national samples. Factor analysis
identified three domains of patient preferences: communication (agreed
with by 88-99%), partnership (77-87%), and health promotion
(85-89%). Fewer wanted an examination (63%), and only a quarter
wanted a prescription. As desire for a prescription was modestly
associated with desire for good communication (odds ratio 1.20; 95%
confidence interval 0.85 to 1.69), partnership (1.46; 1.01 to 2.09),
and health promotion (1.61; 1.12 to 2.31) this study may have
underestimated preferences for patient centredness compared with
populations with stronger preferences for a prescription. Patients who
strongly wanted good communication were more likely to feel unwell
(very, moderately, and slightly unwell; odds ratios 1, 0.56, 0.39 respectively, z trend P<0.001), be high attenders (1.70; 1.18 to
2.44), and have no paid work (1.84; 1.21 to 2.79). Strongly wanting
partnership was also related to feeling unwell, worrying about the
problem, high attendance, and no paid work; and health promotion to
high attendance and worry.
Conclusion:
Patients in primary care strongly want a
patient centred approach, with communication, partnership, and health promotion. Doctors should be sensitive to patients who have a strong
preference for patient centredness
those vulnerable either psychosocially or because they are feeling unwell.
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Introduction
Top
Abstract
Introduction
Method
Results
Discussion
References
particularly
patients' ideas, expectations, and the desire for partnership
or do
not come from patients who are about to have a consultation. An
impending consultation with the doctor provides the most relevant
context in which to assess preferences, as attending patients are about
to be "recipients" of the consultation approach (as opposed to
population samples, which include a relatively high proportion of
non-attending or low attending patients). Furthermore, an impending
consultation with a particular problem may plausibly change priorities
and preferences and provides a real rather than an abstract or
theoretical basis for patients considering questions and answers.
![]()
Method
Top
Abstract
Introduction
Method
Results
Discussion
References
We chose local practices that were active in research and
in supporting research to ease the logistic problems of performing the
study, which required reception time to approach patients for the study
and clerical help in accessing notes. The three practices selected
represented a range of settings to ensure that the impact of
demographic factors on patient preference could be assessed. The three
practices serve a population of 24 100 patients, with an average
patient turnover of 8.3% per year. One practice was in a deprived area
of a large provincial city; the second was a training practice serving
an urban population of a cathedral city; the third was a training
practice in a market town serving a mixed urban-rural population.
Patients completed a short questionnaire before their
consultation, asking them to agree or disagree on a seven point Likert
scale (very strongly agree, strongly agree, agree, neutral, disagree,
strongly disagree, very strongly disagree) with questions about what
they wanted the doctor to do in the consultation. We developed the
questionnaire on the basis of the five principal domains of the patient
centred model as previously described, including the main categories
used to measure patient centredness.7
Main domains of model of patient centredness
for
example, after "I want the doctor to be interested in how it affects
my life (positively worded)" we included "How it affects my life is
my affair and nothing to do with the doctor" (negatively worded).
We also included questions about preference for a prescription and an
examination, whether the problem was new or long standing or whether
the doctor asked them to attend (or a combination), how unwell they
were feeling, and how worried they were about the problem (on six point
Likert scales ranging from extremely to not at all).
Main study
Both the main study and pilot study had ethical approval
from the Salisbury and the Southampton and South East Hampshire local
research ethics committees. After informed consent, patients completed
the pre-consultation questionnaire and a post-consultation questionnaire, which included sociodemographic details (age, sex, paid
work, manual work, marital status, partner's work, years in higher
education), nature of presenting problem, number of medical problems,
current medication, and the short state anxiety questionnaire.23 The post-consultation questionnaire also
contained patients' ratings of the consultation style of the doctor
according to the different domains of the patient centred model (these
data will be presented subsequently). Patients completed the
pre-consultation questionnaire in the waiting room and if possible also
completed the post-consultation questionnaire before they left the surgery.
Sample size (for 80% power and 95%)
To detect variables that predicted preference for patient
centredness (or for an examination or prescription) with an odds ratio
of 2 and a prevalence of variables ranging from 25% to 75%, and
assuming that at least 25% of "unexposed" patients want patient
centredness we calculated that we needed 448 post-consultation
questionnaires (which documented predictive variables) or 640 in total
allowing for 30% non-response.
Analysis
We scanned data with Formic 3 software and performed data
analysis with SPSS for Windows and Stata for Windows software. We did
factor analysis with varimax rotation to assess the underlying main
latent variables (or domains) and assessed the internal reliability of
the scales developed from these factors with Cronbach's
statistic.
We assessed predictors of preferences for the components of patient
centredness or for an examination or a prescription using logistic
regression. Variables significant in univariate analysis at the 5%
level were entered by forward selection and retained if the variables
remained significant.
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Results |
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Of the 865 patients who participated, 824 (95%) and 661 (76%), respectively, returned pre- and post-consultation questionnaires.
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Response
When we compared those who returned the post-consultation questionnaire (responders) with those who did not (non-responders) there were no significant differences in those feeling moderately or
very unwell (44% and 38% respectively) or worried (55% and 58%),
nor those strongly wanting good communication (43% and 45%), partnership (27% and 32%), or health promotion (25% and 25%).
Patient characteristics and generalisability
Compared with patients' estimates from the national
morbidity survey for patients consulting at a surgery, the responding
sample (that is, "responders" to the post-consultation questionnaire) were similarly mostly adults aged 17 to 64 (10% aged
0-16 years, 73% aged 17-64, and 18% aged 65 and over in sample versus
20%, 62%, and 18% in morbidity survey), married or living as married
(67% versus 60%), working (in those aged over 16: 57% versus 57%),
and female (66% versus 60%).
Main results
Table 1 shows patients' preferences for the consultation.
Factor analysis suggested a three component solution, which explained 91% of the variance. Firstly, there was
"communication," which included listening, exploration of concerns
and requirements for information, doctor-patient relationship, and
clear explanation (Cronbach's
for the scale based on this factor
0.92). Second was "partnership," which included specific aspects of
communication related to finding common
ground7
exploration, discussion, and mutual agreement
about patients' ideas, the problem, and treatment (Cronbach's
0.87). Finally, there was health promotion, including how to stay
healthy and reduce the risks of future illness (Cronbach's
0.90).
which are both about communication, albeit different aspects of communication. This is
evident from the items which loaded most weakly on to these two
factors
that is, item 3 of factor 1 and item 1 of factor 2
and which
also loaded moderately on to the other factor. Thus the loadings for
factors 1 and 2 for "I want the doctor to be interested in what I
want to know" are 0.51 and 0.44 (that is, loading on to factor 1 but
also moderately on to factor 2) and conversely for "I want the doctor
to be interested in what I think the problem is" are 0.44 and 0.50.
Most patients wanted all aspects of good communication, partnership,
and health promotion (questions answered with agree or more strongly
for these domains, ranged from 88-99%, 77-87%, and 85-89% respectively).
Secondary analysis of predictors of patients' desire for patient
centredness
The groups of patients who agreed strongly that they wanted
good communication were more likely to feel particularly unwell, be
high attenders, and not have paid work and less likely to be aged over
60 (table 2). Similarly, those wanting partnership were
more likely to feel particularly unwell, be very worried, be high
attenders, and not have paid work. Those strongly wanting health
promotion were high attenders and those worried about their problem. No
domain of patient centredness related to whether the problem was new or
long standing or whether the doctor had initiated the
consultation.
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Patients' desire for prescription and for examination
A quarter of patients wanted a prescription, and 63%
wanted an examination (see table 1). Patients who wanted a prescription were more likely to want good communication strongly (odds ratio 1.20; 95% confidence interval 0.85 to 1.69), partnership (1.46; 1.01 to 2.09), and health promotion (1.61; 1.12 to 2.31). Patients wanting a prescription were more likely to be unmarried, have
a partner with no paid work, no education beyond GCSE, and be aged over
60. Those wanting an examination were more likely to have no education
beyond GCSE and to feel worried about their problem (table
3).
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Discussion |
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This study is one of the largest quantitative studies to date to assess patients' preferences and one of the few to assess specifically preferences for patient centredness. We have shown that as patients are waiting to enter the consulting room they strongly want a patient centred approach. From these data and from previous studies this desire is greater than for "biomedical" aspects of the consultation such as an examination or a prescription. There are likely to be at least three important domains of patient centredness from the patients' perspective: communication, partnership, and health promotion. Patients with a very strong preference for patient centredness are those who are vulnerable either socioeconomically or because they are feeling particularly unwell or worried.
Limitations of the study
The study is limited by the fact that patients required
about 3-5 minutes to complete the questionnaire before seeing the
doctor, and thus patients who came within 2-3 minutes of seeing doctors
who were running on time (a small minority of consultations) could not
be approached. The effect of this would possibly be slightly to
overrepresent new same day appointments later in the surgery, when the
doctors tended to run late. However, the type of problem did not
predict preferences for patient centredness, and thus this probably
does not greatly bias the study estimates. The time limitation also
meant that relatively few questions could be asked; nevertheless we
included questions relating to the five main domains of the patient
centred model.7 Although the sample came from only three
surgeries, the surgeries reflect a range of practices (deprived urban
inner city, cathedral city, market town), and the characteristics of
the sample were similar to the attending sample from the national
morbidity survey, with the exception of slightly more women.
that is, agreeing or disagreeing on a
seven point scale with statements about what they wanted from the
doctor; in this case most patients were "neutral" about wanting a
prescription (54%). If we had used a question with a dichotomised
answer (yes or no) this might have altered the apparent preference for
a prescription; similarly if we had used "hoped for" or
"expected" as in some previous studies rather than the more
strongly worded "wanted" more patients may have responded
positively. Demography may have influenced the results. Other studies
have used inner city populations, and demographic factors strongly
predict desire for a prescription. Surgeries in our study generally had
low rates of antibiotic prescription, which might modify
expectations.25 Also, government campaigns and media
coverage (for example, the "don't wear me out" campaign about
antibiotic use) may have influenced expectations for a prescription. However, even if we assume that expectations for prescriptions were
really lower than the national picture, it is still not likely to alter
the inference that most patients strongly want all components of the
patient centred approach, as the desire for a prescription was slightly
positively associated with the desire for patient centredness. Thus,
this study may have slightly underestimated patients' preferences for
patient centredness compared with other populations in which desire for
a prescription is stronger.
The loss to follow up potentially limits the study, although a 76%
follow up was achieved, and the characteristics of patients followed up
and those not followed up were similar in feeling unwell and worried
and in their preferences for patient centredness.
Important domains of patient centredness
This study provides empirical evidence that from the
patients' perspective there are probably at least three important and
distinct domains of patient centredness: communication, partnership,
and health promotion. These domains provide strong support for the
patient centred model,7 although the precise details of
the theoretical structure are not all supported. Thus patients' ideas
about the problem and expectations for treatment are more closely
related to mutual discussion and partnership (empirical finding) rather
than understanding the illness experience (theoretical model).
Similarly the doctor-patient relationship (for example, being friendly
and approachable (doctor), feeling understood (patient) is closely
allied to communication (empirical finding) rather than a separate
domain (theoretical model). Questions relating to the whole
person
feeling emotionally understood and how the problem affects the
patient's life
did not load strongly on to any factor and thus could
be considered a fourth potential component of a patient centred model.
Do patients want patient centredness?
We have shown that most patients waiting to see a doctor
strongly want a patient centred approach, not only a friendly
approachable doctor who communicates well but health promotion and a
partnership approach to both the problem and treatment. Furthermore
most patients probably want patient centredness rather more than they
want a prescription or an examination, with the caveats already
discussed. This work supports general evidence about what patients want
from their consultation
12-17 19
and contradicts evidence
from other settings that a considerable minority of patients want a
doctor centred approach,20-22 although the latter
discrepancy may be explained by the very different nature of the
problem (for example, cancer care). The current study is likely to be
more representative of patients' views in primary care.
What predicts who wants patient centredness, a prescription, and
an examination?
The patient groups who agreed strongly that they wanted
good communication were more likely to feel unwell and worried, be
higher attenders (who have a high incidence of anxiety and
depression26), and have no paid work. The preference for a
patient centred approach in this group of patients
that is, those with
a high prevalence of psychosocial problems
supports previous work that
patients presenting with psychosocial problems are more likely to be
satisfied with a patient centred consultation style.18 A
similar pattern was found for those strongly wanting partnership and
health promotion. Age was important only in the desire for
communication: middle aged patients were more likely and older patients
less likely to want good communication strongly. No domain of patient
centredness related to whether the consultation was for a new or
chronic condition or was initiated by the doctor. In contrast with the
predictors of desire for patient centredness, sociodemographic factors
were more important in the desire for a prescription: unmarried
patients, partner with no paid work, no education beyond GCSE, and age.
The finding that older patients are more likely to want a prescription
is supported by a previous smaller study of patient
expectations.27 Predictors of wanting an examination were
both psychological and sociodemographic: no education beyond GCSE and
feeling worried.
Conclusion
Most patients strongly want a patient centred approach.
There are likely to be at least three important domains of patient
centredness from the patients' perspective: communication, partnership, and health promotion. Doctors should be sensitive to those
individuals who are likely to have a particularly strong preference for
patient centredness: patients who are vulnerable either psychosocially
or because they are feeling particularly unwell.
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What is already known on this topic
A patient centred approach to consultation in general practice is often advocated Little is known about the main domains from the patients' perspective What this study addsThree important domains of the patient centred approach are communication, partnership, and health promotion Patients in primary care strongly want a patient centred approach Doctors should be sensitive to those patients who are likely to have a particularly strong preference for patient centredness: patients who are vulnerable either psychosocially or because they are feeling particularly unwell |
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Acknowledgments |
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We are grateful for the help of the doctors, staff, and patients at Aldermoor Health Centre, Nightingale Surgery, and Three Swans Surgery. We thank Professor Ann-Louise Kinmonth and Drs Paul Kinnersley and Simon Griffin for their expert advice.
Contributors: PL had the idea for the study, wrote the grant application, and with HE performed the analysis. HE and CG managed the data on a day to day basis. All authors contributed to the development of the protocol, study management, and writing the paper. Professor Kinmonth, Dr Griffin, and Dr Kinnersley were advisors to the study. PL is the guarantor.
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Footnotes |
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Funding: NHS Research and Development South West and South East Regions. PL is funded by the MRC.
Competing interests: None declared.
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(Accepted 2 December 2000)
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