BMJ 1999;319:790 ( 18 September )
Reviews
Netlines
NETLINES
- A quarter of all the material on the internet is health related
(www.ama-assn.org/sci-pubs/journals/archive/jama/vol_281/no_4/cv80008x.htm). About a third of web surfers are searching for health information (www.rcsed.ac.uk/journal/vol44_4/4440040.htm). Much of this
material is not technical but of interest to consumers.
- A comprehensive starting point is the Hardin Meta directory
at http://www.lib.uiowa.edu/hardin/md/index.html, which is
effectively a gateway to other directories. This site is catalogued by
specialty, but it is more than just a simple (and extensive) collection. The webmaster has gone to the trouble of checking that the
links within the target directories are functioning, and Hardin is
quite choosy about whom it includes (see
www.lib.uiowa.edu/hardin/md/submit.html). If you cannot find
what you are looking for in Hardin, there is a list of other similar
collections. This site allows the user to locate specific good quality
information quickly.
- Another guide to appraising health information is an instrument
called DISCERN (www.discern.org.uk). A questionnaire prompts
assessment of the quality of health information materials. The
instrument has been widely validated for written leaflets and for use
by designers of new information as well as people assessing existing material.
- A site that caters for both doctors and patients is at
www.cancerbacup.org.uk. This UK based resource on cancer
information and support is aimed primarily at people with cancer and
their families or carers; the home page proudly proclaims that there are about 1500 pages of data. It is a content-rich site, with the main
button bar sporting separate sections for health professionals and
patients. The division between the information needs of the health
professional and those of the lay person becomes blurred when the
information is presented well, as is the case with this website. But
the addition of a site map would greatly help navigation.
- www.betterhealth.com/virtualcheckup/noplugin/heart/index.html,
as the URL suggests, is a "virtual check up" and relies on
consumers inputting data relating to their cardiovascular health, such
as blood pressure and cholesterol concentration. The site then gives an
assessment coupled with a diagram of the coronary arteries. "Bad"
news from the self assessment may cause alarm
but others may feel that
they must do something to improve their health. At least it is thought
provoking and may promote a better lifestyle. As internet technology
improves, we will certainly see more (and more sophisticated)
variations on this kind of interactive consultation.
- To see some of the best design in a health website,
visit Cancer Help UK
(http://medweb.bham.ac.uk/Cancerhelp/indexg.html). Based at
the University of Birmingham in the Cancer Research Campaign's Institute of Cancer Research, this site is unusual for its
consideration of novice users. There are several ways of accessing
information, which allows readers to choose how they drill down to the
desired information. A glossary of terms can be left permanently on in a separate window, for looking up unfamiliar words. None of these touches is unique, but the combination is unusually friendly.
- Information on the web (or in newspapers and magazines) may not
be all that it seems
hence the importance of critical appraisal skills. A site to teach this to children is Quick
(www.quick.org.uk/), a quality information checklist for
health. It is a crisp, speedy, entertaining, and well illustrated
resource. Guidance for teachers is also available at
www.quick.org.uk/teachers.htm.
- Currently being developed is the "building site" of the
National Electronic Library for Health
(www.nelh.nhs.uk/buildng.htm). The site takes its
architectural theme a long way: when the library is built there will be
a floor for patients (branded as NHS Direct online) and the whole
enterprise will revolutionise information flows. Check the blueprints yourself.
- A branch of the US based National Institutes of Health has
produced a publication on impotence for doctors and patients
(www.niddk.nih.gov/health/urolog/pubs/impotnce/impotnce.htm). It is simply and clearly laid out. There are no links to other external
impotence websites, but a major plus is the lack of copyright, allowing
unlimited copying and dissemination of the contents of the page.
- After being diagnosed with a condition, patients may want
to join a self help group or a support group, but often the problem is
finding a suitable one. Two good UK sites that can help are www.cafamily.org.uk/home.html and
http://www.patient.co.uk. A useful place to start
hunting for US based self help groups is to look at
www.healthy.net/home/index.html. This can lead to a massive
archive of contacts within a few mouse clicks.
- And finally, point your browser at
http://pbcn.findhere.com and read the welcome page from the
Philippine Breast Cancer Network, a patient pressure group. The site
contains moving stories of women and their battle with breast cancer;
equally it emphasises the point that the internet is the number one
global publishing medium.
Harry Brown general practitioner and
trainer, Leeds UK
DrHarry{at}dial.pipex.com
David Dickinson consumer information
designer, UK
david.dickinson{at}consumation.com
We welcome suggestions for websites to be
included in future Netlines. Readers should contact Harry Brown at the
above email.
© BMJ 1999