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Paul Kim a Health Communication and Telehealth, Office of
Disease Prevention and Health Promotion, US Department of Health and
Human Services, Washington DC, USA, b National Institute for
Occupational Safety and Health, Centers for Disease Control and
Prevention, Washington DC
Correspondence to: Dr Eng teng{at}osophs.dhhs.gov
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Abstract |
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Objective:
To review published criteria for
specifically evaluating health related information on the world wide
web, and to identify areas of consensus.
Design:
Search of world wide web sites and peer
reviewed medical journals for explicit criteria for evaluating health
related information on the web, using Medline and Lexis-Nexis
databases, and the following internet search engines: Yahoo!, Excite,
Altavista, Webcrawler, HotBot, Infoseek, Magellan Internet Guide, and
Lycos. Criteria were extracted and grouped into categories.
Results:
29 published rating tools and journal
articles were identified that had explicit criteria for assessing
health related web sites. Of the 165 criteria extracted from these
tools and articles, 132 (80%) were grouped under one of 12 specific categories and 33 (20%) were grouped as miscellaneous because they
lacked specificity or were unique. The most frequently cited criteria
were those dealing with content, design and aesthetics of site,
disclosure of authors, sponsors, or developers, currency of information
(includes frequency of update, freshness, maintenance of site),
authority of source, ease of use, and accessibility and availability.
Conclusions:
Results suggest that many authors agree
on key criteria for evaluating health related web sites, and that efforts to develop consensus criteria may be helpful. The next step is
to identify and assess a clear, simple set of consensus criteria that
the general public can understand and use.
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Key messages
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Introduction |
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The large volume of health information resources available
on the internet has great potential to improve health,1-3
but it is increasingly difficult to discern which resources are
accurate or appropriate for users.3-8 Because of the
potential for harm from misleading and inaccurate health
information,9-14 many organisations and individuals have
published or implemented criteria for evaluating the appropriateness or
quality of these resources.
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Two published reviews of
evaluation criteria for health related web sites did not present
information on the range of criteria proposed by various authors, and
included rating tools that were not developed exclusively for health
related sites.
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Our study reviews criteria currently
proposed or employed specifically to evaluate health related web sites.
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Methods |
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Databases and search engines
Between September 1997 and May 1998 we conducted a search of the
web and peer reviewed medical journals for criteria for evaluating
health related information on the web using Medline and Lexis-Nexis
databases, and web search engines including Yahoo!, Excite, Altavista,
Webcrawler, HotBot, Infoseek, Magellan Internet Guide, and Lycos.
Medline searches (using PubMed) used variations of the following:
"quality," "Internet," "World Wide Web," "computer communication networks/standards," "quality control,"
and "medical Informatics/standards." Searches with
web search engines and Lexis-Nexis used "quality," "health
information," "health," and variations of "rating,"
"ranking," "evaluate," "award," and
"assess." Investigating references and hyperlinks from initial
results gave additional resources. We ended the sampling period when
searches produced similar results, and when previous search results
became outdated.
Criteria
We included criteria when they were explicit, specifically used
for evaluating health related web sites, and published in a peer
reviewed journal or publicly accessible web site. We also considered
peer reviewed journals not indexed by Medline. We included resources
framed as "guidelines" because there was little difference
between them and other criteria, and the intent of the authors was
similar. When subcriteria provided details about main criteria, we
included only the main criteria to prevent overrepresenting that
author's perspective. Criteria were extracted and sorted into similar
groups according to their wording and description. When a criterion
seemed to combine several concepts and could fit in multiple groups, we
considered the first mentioned concept.
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Results |
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Twenty nine rating tools and articles
24 web sites and five
journal articles
had explicit criteria for assessing health related web sites (table 1). Of the 165 criteria identified, 132 (80%) were
grouped under 12 specific categories (table 2). Thirty three (20%)
criteria that lacked specificity or were unique were categorised as
"miscellaneous." Frequently cited criteria included those dealing with content, design and aesthetics of site, and disclosure of authors,
sponsors, or developers.
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Discussion |
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Not surprisingly, "content" of the site, which includes concepts of information quality and accuracy, was the most commonly cited criterion group. Design and aesthetics of the site and ease of use were the second and sixth most frequently cited groups respectively, indicating that authors highly value good quality application design and user interfaces. Disclosure of authors, sponsors, or developers had the third highest frequency, highlighting the need for users to be able to consider a site's content in the context of who created or financed the site. It was somewhat surprising that disclosure was not more commonly cited given recent reports about misleading health information and fraud on the internet. 9 11 12 Most rating tools discriminated between content and the fourth most common criterion group, currency of information (includes frequency of update, freshness, maintenance of site), suggesting that currency of information is nearly as important as the information itself.
Criteria related to confidentiality and privacy of information were only cited by one author despite widespread interest in this issue.19 Some health related web sites are already collecting personal health information to "tailor" content, and as sites begin to integrate healthcare services and information, confidentiality and privacy safeguards will become increasingly important.19-21
Study limitations
Study limitations include the subjective variables around the
scope of the criteria categories used. Testing of the category
groupings, however, showed that they were reproducible by others. It is
also possible that some authors used the same criteria terms to
describe different concepts. Because subcriteria were not included,
some concepts may not have been represented. Inherent limitations of
web search engines and the dynamic nature of the web also prevented us
from locating all existing published criteria.22
Nevertheless, our review located more sources of criteria specifically
for health related sites than did previous reviews.
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Conclusion
Given the evolving state of the internet, it may be difficult or
even inappropriate to develop a static tool or system for assessing
health related web sites. Our results suggest that many authors agree
on key criteria, and that efforts to develop consensus criteria may be
helpful.
6 16 23-25
The next step is to identify and
assess a clear, simple set of consensus criteria that the general
public can understand and use. Tools that integrate them need to be
developed and validated, and their ultimate impact and effectiveness in
assisting the public with health related decisions should be monitored
to ensure that they remain useful.
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Acknowledgments |
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We thank Farrokh Alemi and Anne Restino for their assistance and advice on this study. The views expressed in this paper are solely those of the authors and do not necessarily reflect those of the US Department of Health and Human Services.
Contributors: PK participated in data collection, analysis, and interpretation, and writing the paper. TRE formulated the study design, developed the core ideas, and participated in data analysis and interpretation, and writing the paper. MJD participated in the study design and interpretation, and edited the paper. AM participated in data analysis and interpretation, and edited the paper. PK and TRE will act as guarantors for the paper.
Funding: Internal funds of the US Department of Health and Human Services.
Competing interests: None declared.
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References |
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let the reader and buyer beware.
JAMA
1997;
277:
1244-1245[Medline].
acute renal failure caused by oil of wormwood purchased through the internet.
N Engl J Med
1997;
337:
825-827(Accepted 30 December 1998)
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