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Let the sunlight in, let the people speak
The inability of Britain's government to come to
terms with rationing is exposed by this week's "interim guidance"
that doctors should not prescribe sildenafil (Viagra) (pp 000, 000).
1 2
The government should use this opportunity to
lead the debate that Britain needs on what will be provided on the NHS,
who will decide, and how.
The fiction of the NHS, encouraged by this government and the last, is
that the NHS can provide a comprehensive, high quality service that is
free at the point of delivery and covers everybody. The reality, well
recognised by most of those working in the service, is that health
systems cannot meet all four principles.3 Something has to
give. The United States has never had universal coverage. Britain has
had continuing slippage in comprehensiveness, quality, and free access
at the point of delivery, and now comprehensiveness is abandoned to a
blare of trumpets.
"Media coverage of this drug to date," said Frank Dobson,
secretary of state for health (recognising an opportunity to try and
pin the blame elsewhere), "has created expectations that could prove
a serious drain on the funds of the NHS. If this were to happen, other
patients could be denied the treatment they need. I cannot allow this
to happen." The reality is that patients are denied the treatment
they need every day of the week. What's more, coming through the
pipeline are a series of "lifestyle" drugs that will be attractive
to those who want to be thinner or to soup up their slowing brains.
Recognising that the founding principles of the NHS cannot be
maintained, many would opt for abandoning comprehensiveness rather than
universal coverage, quality, and free access at the point of delivery.
Mr Dobson might thus find considerable support for the painful
decisions that have to be made. What is unacceptable is that these
decisions are made piecemeal, on the hoof, behind closed doors,
according to unknown criteria. We need a comprehensive, transparent,
continuing debate that is based on evidence and values. Almost
certainly Britain needs an institution Instead, Mr Dobson is seeking "further expert advice" and
"discussions with the manufacturer." No doubt he will try to bully the manufacturer into reducing the price. Good luck. But this won't
solve the problem. Nor will "expert advice." There are no technical
fixes for rationing. No expert can trade a man's impotence against a
couple's infertility against adequate care for psychogeriatric patients against chemotherapy for childhood cancer. These trade offs
depend on the values of our society, the agreed purposes of the NHS,
and many other issues laid out in the agenda for the rationing debate
published by the Rationing Agenda Group in the BMJ.5 The government has never taken up the
agenda offered by the Rationing Agenda group, but now would be a good
time to do so. The government cannot be blamed for failing to provide, but it can be blamed for obscuring and avoiding the debate.
Will Gaylin, president of the Hastings Centre, bemoaned that in
the United States that "What could have been a wide open, far ranging
public debate about the deeper issues of health care BMJ
perhaps a version of the Royal
College of Physicians' National Council for Health Care
Priorities4
that can hold the debate. There will be no end to the debate and no neat resolution, but the process will be of
vital and continuing importance.
our attitudes
toward life and death, the goals of medicine, the meaning of
"health," suffering versus survival, who shall live and who shall
die (and who shall decide)
has been supplanted by relatively narrow
quibbles over policy."6 Britain should accept George Eliot's invitation and take up the "the labour of choice." And the
government must lead.
The BMJ will be hosting the second
international conference on priority setting in London on 8-10 October.
For more information call Elaine Oliver 44 171 383 6137 or email her
eoliver{at}bma.org.uk
© BMJ 1998
Read all Rapid Responses
Israeli students are refusing to perform intimate examinations on anaesthetised women without their informed consent.