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Confronting deceit and denial is vital if children are to be protected
Publishing recently in Pediatrics,
Southall et al described their experience of using covert video
recordings to diagnose life threatening abuse.1 Of 39 children (median age 9 months) referred to two UK hospitals for
investigation of suspicion of induced illness, including 36 with
apparent life threatening events, the authors filmed evidence of abuse
in 33. This included suffocation in 30, poisoning in two, and the
breaking of an arm. The transcripts of the recordings make distressing,
yet essential, reading. Risk of abuse extended to other children within
these families: 12 out of 41 siblings had died suddenly and
unexpectedly (suffocation was subsequently admitted for 8, and
reinvestigation of another revealed salt poisoning), and abuse was
documented in a further 15.
Southall et al have revealed the grim world which has been
intermittently explored over the past 100 or so years.2-4
Now, however, the filmed evidence concretely exposes what was
previously available only to professional imagination. These children
were not damaged during bouts of anger but harmed coolly and callously by parents who appeared concerned and caring, yet when left alone with
their children seriously harmed them. The added deception of the health
professional increases the feeling of betrayal, not just on behalf of
the child but also in relation to the trust doctors and nurses are
accustomed to placing in the parent as the child's representative.
What are the lessons from these disturbing data?
A crucial issue for doctors is the ability to distinguish cases of
abuse from other causes of an acute life threatening event. Compared
with controls, Southall et al found that the abused children were less
likely to be prematurely born, more likely to present with bleeding
from the nose or mouth, and more likely to have a history of sudden and
unexpected death or abuse in siblings. In addition, 23 of the abusive
parents were diagnosed as having personality disorders.
Intrafamilial child maltreatment is not a unitary, or easily definable,
phenomenon but covers a wide range of ways in which parents harm their
children. It ranges from neglect (the most common) through physical and
emotional harm, to life threatening assault and rape of children. Most
cases identified are not life threatening, and death from abuse is
unusual. Professionals concerned with the majority can therefore be
lulled into a sense of false optimism and assume circumstances will
improve, even for the more problematic cases. Additionally, our
training and professional calling to help the sick can encourage
professional denial of such acts of harm.3 By contrast,
those working in specialised units have to appreciate that milder,
non-life threatening forms of maltreatment comprise most cases. Systems
of child protection must be able to cope with the full range of child
maltreatment.
The variety of child abuse that is factitious illness by proxy also
incorporates a range of seriousness.5 In an
epidemiological study in the United Kingdom McClure et al identified
128 cases.6 In 23 the perpetrator gave only a false
history of illness and in a further 21, although both history and signs
were fabricated, the parents did not inflict direct physical harm on
the child. Thus, for a third of children harm resulted from the
subsequent medical investigations. Of the remaining 84 children, 44 were poisoned and 32 suffered deliberate suffocation (3 children
experienced both); 8 children died.
Southall et al suggest that "partnership" may not be feasible in
cases of life threatening or serious harm. The term partnership has
acquired a range of meaning, including professional style (mutual
respect, communicative openness), sharing of power, as well as parental
involvement in planning and decision making.7 Partnership
as avoiding confrontation, or mere togetherness, is always dangerous in
serious abuse. However, partnership is still possible, provided it is
made explicit that the focus of all work is the child's
welfare.8 A joint acknowledgment of maltreatment is
mandatory, not merely desirable, and family reunification is not
automatic. Indeed, partnership can exist around relinquishment of
parental care What implications are there from this work for practitioners? Firstly,
all professionals must remain alert to the possibility of serious, life
threatening abuse. Secondly, the nature of the working partnership with
abusive parents needs to be moulded by the requirements of child safety
and welfare. Thirdly, child protection systems must encompass a range
of responses, from family support to an ability to respond vigorously
to prevent fatal abuse. One way of ensuring deaths from abuse are not
overlooked would be the universal introduction of local child death
reviews.
9 10
Covert video surveillance needs to be
available as a tool for diagnosing some forms of factitious illness,
though it must not replace a full child and family assessment, on which
intervention should be based. Southall et al's work reveals important
clues which may help to distinguish cases of acute life threatening events caused by abuse. Finally, the work which follows recognition is
all important, for herein lies the potential for preventing further
harm to children, and stopping escalation in less serious cases.
Park Hospital for Children, Oxford OX3 7LQ United Medical and Dental Schools of Guys and St Thomas's
Hospitals, Guy's Hospital, London SE1 9RT
this being just as legitimate a therapeutic goal as
reunification.8 Professional style should be mutually
respectful and as inclusive of parents as possible while still
maintaining the child's safety. Some interprofessional discussion
must, however, remain confidential when parents are devious or
seriously harmful.
Margaret A Lynch
© BMJ 1998
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