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Informed participation in screening programmes requires that the people
screened know the aims and risks and benefits of the programme. To
assess the information given to women attending for breast cancer
screening Slaytor and Ward (p 263) examined 59 leaflets used by cancer
organisations and screening programmes in Australia and scored each
against a 10 item scoresheet. The commonest information given was
lifetime risk of developing breast cancer (which varied from 1 in 11 to
1 in 16): only one leaflet gave information on the risk of dying,
though screening reduces mortality, not incidence. The benefits of
screening were most commonly expressed as relative risk reductions
(varying from 30% to 50%). Only 15 leaflets gave the sensitivity of
mammography and none gave the specificity. None gave positive
predictive value or numbers needed to screen to prevent one death.