Published 5 October 2009, doi:10.1136/bmj.b3876
Cite this as: BMJ 2009;339:b3876

Practice

A Patient’s Journey

Behçet’s syndrome

Michael Hart, patient1, Robert J Moots, professor of rheumatology2

1 Caergeiliog, Anglesey, 2 Aintree University Hospitals NHS Foundation Trust, University Hospital Aintree, Liverpool L9 7AL

Correspondence to: M Hart michaelanddawn@btinternet.com

Finding an effective treatment for Behçet’s syndrome has been a long and painful journey for Michael

The first 150 words of the full text of this article appear below.

I was 18 and had just returned from a trip to Australia when lumps started to appear on my legs. The doctors thought it was deep vein thrombosis caused by the long flight and prescribed anti-inflammatory drugs, which seemed to calm things down. However, over the next few months I was very unwell—one week with tonsillitis, the next with an infection in my testicles, then back to tonsillitis, and so on. I also had bad mouth ulcers that sometimes made eating difficult. All of this was accompanied by flu-like symptoms, whereby my bones ached and I had very little energy.

During the two years when I had repeated infections, I was admitted to hospital nine times. My mouth and genitals were ulcerated and lumps kept appearing. During one of these stays, I was taken for tests and found myself in the genitourinary medicine clinic. They suspected AIDS or something similar, . . . [Full text of this article]


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